Diagnosed with peritoneal mesothelioma at age 15, Alyssa Hankus adolescence was anything but normal.
She missed nearly her entire freshman year of high school and spent much of her sophomore and junior years in and out of hospitals dealing with the effects of aggressive cancer treatments.
I wanted everything that wasnt necessarily promised to me at that point in time, Hankus told Asbestos.com. I wanted to go to school and get married and have kids and to grow old and have grandkids. All of these different things, I wasnt going to take no for an answer.
The 15-year mesothelioma survivor, who is now 30, is making good on some of those goals.
Despite all the missed classroom time, Hankus graduated high school in four years. She later earned a bachelors degree in interior architecture from UNC Greensboro and recently got her first job in the industry, designing eating spaces for colleges, restaurants, businesses and health care facilities.
For a moment, she considered nursing as a way to give back, but her passion has always been design.
I thought maybe I could give back in that way through hospital design, she said. Being in there for as long as I was, its a way to make it better for all those involved patients, doctors, what have you.
Hankus hopes the position can be a stepping stone to one day designing patient rooms, as a way to touch the lives of patients and make them feel as comfortable and at home as possible when facing an illness.
Alyssa Hankus with her boyfriend, Eric.
Outside of her career, Hankus enjoys spending time with friends and her three young nephews. She looks forward to a future with her boyfriend in hopes of having kids and starting the next chapter of her life.
Its all a part of that continued fight of making it and achieving all of the things that at 15 I was told I never would, she said. Those little day-to-day simple joys are what mean so much, because those were never promised to me.
Mesothelioma has a long latency period, meaning it typically takes years often decades between a patients initial exposure to asbestos and the development of symptoms.
The overwhelming majority of cases are diagnosed at ages 75 to 84.
My doctors told me it takes at least 15 years to present symptoms, but I actually started showing symptoms around age 12, Hankus said.
She hasnt been able to pinpoint when or where her asbestos exposure occurred a common issue for women who dont fit the traditional mesothelioma patient profile of older men who worked high-risk jobs.
At the time of her diagnosis, Hankus was told she was one of 10 children in the world diagnosed and only the second to survive.
Im sure there are more out there, but all of the survivors Ive met are adults, she said. It is just so rare in children.
Because of the incredible odds, Hankus didnt receive her mesothelioma diagnosis until three years after she began showing symptoms.
The doctors thought that it was just growing pains, because it wasnt that severe at first, she said.
In the fall of her eighth-grade year, the pain intensified to the point where her mom had to rush her to the hospital.
They thought at first that it was my appendix because of where the pain was located, Hankus said.
During an appendectomy, doctors discovered a troubling sight.
The lining of my stomach was twisted like a dish rag, she said.
Doctors removed part of the lining attached to the back of the appendix but still couldnt determine the underlying issue.
The pain continued, which eventually led Hankus to Johns Hopkins Hospital in her hometown of Baltimore, Maryland. Pediatric physicians there determined she had irritable bowel syndrome and prescribed a corticosteroid that unfortunately made her undiagnosed cancer grow faster, causing more pain.
In October 2001, Hankus agreed to an exploratory surgery at Hopkins, but the pediatric surgeon involved had never seen mesothelioma before. An oncologist who specializes in adults later delivered the diagnosis.
Hankus treatment plan started with chemotherapy, but it was too much for her young body to take.
They were initially going to do six rounds of chemotherapy but were only able to do three because it was killing me, she said. I wasnt even able to keep ice cubes down. I was throwing up everything and losing a ton of weight.
Making matters worse, Hankus came down with a case of fungal pneumonia.
Everything was fighting against my body, she said.
The next option became exploratory surgery and hyperthermic perioperative chemotherapy (HIPEC). Hankus transferred to the National Institutes of Health in Bethesda, Maryland, and she was placed under the care of Dr. Richard Alexander, an internationally recognized surgical oncologist who specializes in treating abdominal cancers.
A week before her procedure in 2002, a CT scan revealed what doctors called a complete snowstorm around the lining of her stomach. They determined the mesothelioma cancer was in the most advanced stage.
Doctors released Hankus for the week to celebrate Easter with her family. It was her first holiday home from the hospital in five months.
When surgery day arrived, the unexplainable happened. The expected 10-hour surgery took only half that time. Alexander had to respond to an emergency, putting Hankus operation in the hands of another surgeon.
My family and people from our church were together praying, so the doctor waited to let them finish praying and give them the news, Hankus said. He told them the lining was pristine, that there were only three acorn-sized tumors and two microscopic specs.
The rest was clean. There was no snowstorm as previously described. Hankus surgical team couldnt explain it. Years later, the lead surgeon told her that he didnt expect shed make it off the operating table that day.
Honestly, I give it to God, Hankus said. To have such a different outcome and such little evidence of the mesothelioma, no one could explain with science.
Although the surgery went far better than expected, Hankus experienced residual pain for two years.
Return visits to NIH became frequent.
They tried all kinds of things like acupuncture and hypnosis and just kept increasing the narcotics, trying to get rid of the pain and not knowing what the source of it was, she said.
Hankus was eventually able to get on an adult program back at Johns Hopkins. Doctors there planned to get her off the high dosages of pain medications through three weeks of in-patient care and six weeks of out-patient care.
During the first few weeks of the program, doctors agreed to let Hankus parents take her to a healing service led by evangelical minister Kenneth Copeland and his wife, Gloria.
Gloria Copeland laid her hands on me and the pain went away that night and never came back, Hankus said. I was able to get off the medicine without any withdrawal symptoms. Doctors couldnt explain it. Its just been one miracle after another.
She was able to return to high school, but it took a toll on her immune system, which was readjusting to life outside of a hospital room. After graduating, the adjustments continued through community college.
It took me about four years to get a two-year degree, only because my stamina was too low, she recalled.
In her last year at the community college, Hankus challenged herself, taking on more classes and joining clubs to prepare her body and mind for the rigors she would face in the interior design program at UNC Greensboro.
Alyssa Hankus with her parents after graduating from UNC Greensboro.
I wanted to prove to myself that I could do it, she said.
She did and is now living her dream as a designer. Her next milestones: Marriage and starting a family.
Now 15 years in remission, she hopes her story will inspire other survivors and raise more awareness that mesothelioma doesnt only affect older men.
A big part of your survival is your mindset, she said. Im just trying to make the most of a future that wasnt promised to me.
Visit link:
15-year Mesothelioma Survivor Living Life By Design - Asbestos.com (blog)
- Diagnosing Pleural Mesothelioma with Lung Fluid: The Battle of the Biomarkers - Surviving Mesothelioma - March 24th, 2017 [March 24th, 2017]
- Republican Health Care Bill Includes Asbestos Exposure Funding for Libby Residents - Mesothelioma.com - March 24th, 2017 [March 24th, 2017]
- Pembrolizumab shows promise in treatment of mesothelioma - Science Daily - March 24th, 2017 [March 24th, 2017]
- Veterans with Mesothelioma Benefit from Telephone Triage - Asbestos.com - March 24th, 2017 [March 24th, 2017]
- Mesothelioma Survival Rates Slowly Improving - Mesothelioma.net Blog (blog) - March 24th, 2017 [March 24th, 2017]
- Understanding Mesothelioma Caregiver Styles - Asbestos.com (blog) - March 24th, 2017 [March 24th, 2017]
- Mesothelioma Patients Turn to Cannabis - AlterNet - March 24th, 2017 [March 24th, 2017]
- Mesothelioma | Overview, Treatment Options and Survivor Stories - March 24th, 2017 [March 24th, 2017]
- Accelerated Approval Granted to Drug in Mesothelioma Research Pipeline - MesotheliomaHelp.org (blog) - April 8th, 2017 [April 8th, 2017]
- New Study Affirms Mesothelioma Survival Benefit with Post-Surgical IMRT, According to Surviving Mesothelioma - Benzinga - April 8th, 2017 [April 8th, 2017]
- The Key to Mesothelioma Treatment Success with Immunotherapy - Surviving Mesothelioma - April 8th, 2017 [April 8th, 2017]
- New Evidence Supports Post-Surgical IMRT for Mesothelioma Treatment - Surviving Mesothelioma - April 8th, 2017 [April 8th, 2017]
- Shorter Mesothelioma Survival Linked to High Platelet Count - Asbestos.com - April 8th, 2017 [April 8th, 2017]
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- Early research suggests first immunotherapy for mesothelioma on the horizon - Medical Xpress - June 6th, 2017 [June 6th, 2017]
- Bristol-Myers Squibb's Opdivo, Yervoy put the brakes on mesothelioma in phase 2 - FiercePharma - June 6th, 2017 [June 6th, 2017]
- Methanol from African Plants Kills Mesothelioma Cells - Asbestos.com - June 6th, 2017 [June 6th, 2017]
- Mesothelioma Patients to be Celebrated on National Cancer Survivor's Day - Mesothelioma.net Blog (blog) - June 6th, 2017 [June 6th, 2017]
- IO Strategy In Mesothelioma Finally Gets Mapped Out | Seeking Alpha - Seeking Alpha - June 6th, 2017 [June 6th, 2017]
- New Blood Test Could Mean Earlier Mesothelioma Diagnosis - Surviving Mesothelioma - June 6th, 2017 [June 6th, 2017]
- Using Viruses to Boost Mesothelioma Immunotherapy - Asbestos.com - June 6th, 2017 [June 6th, 2017]
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- Janet Stanton Schnitzer Remembers Her Father's Mesothelioma Battle - Mesothelioma & Asbestos Awareness Center (blog) - June 7th, 2017 [June 7th, 2017]
- Treating Mesothelioma: A rare, aggressive caner - ABC2 News - June 7th, 2017 [June 7th, 2017]
- Asbestos and Mesothelioma Lawsuits: What to Expect | Nolo.com - June 7th, 2017 [June 7th, 2017]
- Mesothelioma Victims Center Now Urges a Roofer/Insulator With Mesothelioma to Call About Why It Is Necessary to ... - PR Newswire (press release) - June 9th, 2017 [June 9th, 2017]
- Mesothelioma Patients May Have Another Treatment Option With FDA Expanded-Use Approval of Lung Cancer Drug - MesotheliomaHelp.org (blog) - June 9th, 2017 [June 9th, 2017]
- A Breath Test for Mesothelioma? - Surviving Mesothelioma - June 9th, 2017 [June 9th, 2017]
- Mesothelioma Cancer: 12 Essential Facts - Asbestos News - June 9th, 2017 [June 9th, 2017]
- Mesothelioma - NHS Choices - June 9th, 2017 [June 9th, 2017]
- Mesothelioma Cancer Overview | Experienced Lawyers Here to Help - June 11th, 2017 [June 11th, 2017]
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- What is Mesothelioma? | Surviving Mesothelioma - Surviving Mesothelioma - June 13th, 2017 [June 13th, 2017]
- Cases of Pleural Mesothelioma - Surviving Mesothelioma - June 13th, 2017 [June 13th, 2017]
- The Importance of Cancer Research in Immunotherapy - Mesothelioma.com (blog) - June 14th, 2017 [June 14th, 2017]
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- Remembering Loved Ones Lost to Mesothelioma, Looking Forward to Progress in Treatment - MesotheliomaHelp.org (blog) - June 14th, 2017 [June 14th, 2017]
- Chicago Public Schools Ignoring Asbestos Problem - Mesothelioma.com - June 16th, 2017 [June 16th, 2017]
- Length of Time Between Surgeries a Marker for Mesothelioma Survival - Surviving Mesothelioma - June 16th, 2017 [June 16th, 2017]
- Mesothelioma Survivor Deals with Pain 15 Years After Surgery - Asbestos.com (blog) - June 16th, 2017 [June 16th, 2017]
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- The Challenges of Research in Immunotherapy - Mesothelioma.com (blog) - June 17th, 2017 [June 17th, 2017]
- Despite Mesothelioma Diagnosis, Dad Loved Father's Day - Asbestos.com (blog) - June 17th, 2017 [June 17th, 2017]
- I Want to Keep Writing About Mesothelioma and My Family's Journey Because It Matters - MesotheliomaHelp.org (blog) - June 17th, 2017 [June 17th, 2017]
- Mesothelioma Clinical Trial Opens with High Expectations - Asbestos.com - June 17th, 2017 [June 17th, 2017]
- Cediranib May be Safe Supplement to Mesothelioma Treatment - Surviving Mesothelioma - June 17th, 2017 [June 17th, 2017]
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- Mesothelioma Symptoms - Identify Early Warning Signs - June 18th, 2017 [June 18th, 2017]
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- The Influence of BAP1 on Mesothelioma Survival - Surviving Mesothelioma - June 20th, 2017 [June 20th, 2017]
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- Remembering Mesothelioma Victims in the UK - Mesothelioma.com (blog) - June 21st, 2017 [June 21st, 2017]
- Peritoneal Cancer Index: What it Means for Mesothelioma Patients - Mesothelioma & Asbestos Awareness Center (blog) - June 21st, 2017 [June 21st, 2017]
- Mesothelioma Risk Continues to Rise for Decades After Asbestos Exposure - Surviving Mesothelioma - June 21st, 2017 [June 21st, 2017]
- Nintedanib Combination Delayed Progression in Malignant Mesothelioma - Cancer Network - June 22nd, 2017 [June 22nd, 2017]
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- Time Between Surgeries Helps Predict Mesothelioma Survival - Asbestos.com - June 23rd, 2017 [June 23rd, 2017]
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- Mesothelioma Law Firm | Sokolove Law - June 23rd, 2017 [June 23rd, 2017]
- MicroRNAs May Be Key to Better Immunotherapy for Mesothelioma - Surviving Mesothelioma - June 24th, 2017 [June 24th, 2017]
- Mesothelioma Survival Rate | Factors Affecting Survivorship - June 24th, 2017 [June 24th, 2017]
- Scientists "Turn Off" Tumor-Protecting Protein in New Mesothelioma Study, According to Surviving Mesothelioma - Benzinga - June 26th, 2017 [June 26th, 2017]
- Symptoms of Mesothelioma - Critical Signs to Watch For - June 26th, 2017 [June 26th, 2017]
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