Dr. Agnes Gomes retires after 52 years in pediatric medicine – Grand Island Independent

When Dr. Agnes Gomes finished one of her first appointments as a pediatrician at the Grand Island Clinic, her patient looked up at his mother. Mom, he asked. When is the doctor going to get here?

Forty-one years of practice later and Gomes patients have flipped the stereotype. Now they ask about a doctors arrival when theyre treated by male pediatricians.

Weve come full circle, Gomes laughed.

For over 41 years Gomes has broken barriers and formed bonds at the Grand Island Clinic, but her full circle began thousands of miles away from Nebraska, when Gomes started medical school as a teenager in India.

Gomes father suffered a stroke from hypertension and her brother died when he was young. Gomes said she knew she wanted to be a part of preventing the illnesses that had impacted her family.

No family should ever have to lose a child, Gomes said.

So she began medical school as a 16-year-old, which Gomes said was unusual for a female in India.

My father was asked, Why are you wasting your time and money on a daughter? Gomes said. But my father had always told us that education was the most important thing. Nobody can take that away from you, he told us.

Gomes lessons emphasized treating patients regardless of who they were, or how much money they might have.

We learned we were doing a service to humanity, Gomes said. We were there because we wanted to help and to heal.

Gomes brought that mentality to the United States when she and her husband traveled to Connecticut for their residency trainings, and she brought it to Grand Island when they landed here in 1975.

Gomes and her husband didnt intend to stay in the United States permanently, but she said the country made it easy for them to do what they wanted to do.

In India you have to worry about patients paying upfront, and if they cant pay you cant treat them, Gomes said. In the United States, the hospital is just the place that takes care of you.

When the couple began to look around, a co-resident from Gomes program recommended Nebraska.

Where in the world is Nebraska? Gomes wondered.

But when she and her husband visited Grand Island, they were persuaded by its kind and welcoming people.

Over her years, every patient has been different and beautiful. Watching the children grow has been an honor that I have never taken lighten lightly, she said.

Like her father, Gomes values education. She encourages every patient to make the most of their education and talents, and she pushes every parent to give their children opportunities.

Every child has potential, Gomes said. And getting that potential out is up to the adults.

Seeing children reach their capabilities has been the reward of Gomes 52 years in medicine, and she said she hoped people would continue to see the value in a childs potential.

Sometimes people dont realize that children are the future of a nation, Gomes said. If we invest in children we will never go wrong.

The last month at the Grand Island Clinic before Gomes retirement was bittersweet.

You dont realize the impact you have on people, or the impact they have on you, she said.

Gomes said it would be hard to say goodbye to her patients, after years of trust and treatment.

And it will be hard for her patients to say goodbye to her, too. One little girl told Gomes her retirement was no problem; she could just come straight to Gomes house.

And I dont think she was joking, Dr. J.D. Law said. I feel like shes going to show up in Aggies garage.

Law is a pediatrician at the Grand Island Clinic and said Gomes passion was part of what persuaded him to become a pediatrician.

Law remembered Gomes staying hours after close with patients, approaching every child as if they were the days first patient and earning the nickname the baby whisperer for her ability to make every child comfortable.

Every kid is her grandchild, Law said. She shows that compassion every day, which was very inspiring to me and made me say, Yes, this is something I want to do for the rest of my life.

With Gomes entering retirement, Law said her colleagues joke that the clinic will have to hire three doctors to replace her.

So as three doctors do her work, Gomes will enjoy peace and quiet and time with her family, She wants to be involved with volunteering in the community but, Gomes said. It has to involve children.

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Dr. Agnes Gomes retires after 52 years in pediatric medicine - Grand Island Independent

Medical school subcontractor: Late $1 million payment ‘ruined’ him – Buffalo News

Charlie Sorce's insulation and coatings business has done $3 million of contracted work on the University at Buffalo's new medical school, doing insulation and fireproofing over the last two years.

But he says his company, Insulation Coatings & Consultants, still is owed nearly $1.06 million from the State University Construction Fund for additional work he says was completed more than a year ago.

"They owe me a lot of money, and it's hurting me terribly," said Sorce, noting that he has 40 unionized employees working for his Sherman-based company. "I'm robbing Peter to pay Paul constantly. It's out of my pocket. My line of credit is gone. This has ruined me."

The $375 million project to build a new medical school on the Buffalo Niagara Medical Campus is overseen bythe State University Construction Fund. The money Sorce is seeking appears to be delayed as the state construction fund reviews changeorders on the construction project,which is being managed by general contractor LPCiminelli.

Sorce says he is not getting clear answers about the holdup but has been told the amount owed to him is among other change orders on the projectthat have been held up by state review.

A change order is work done or deleted outside the scopeof the original contract.

Neither representatives from the State University Construction Fund nor UB wouldanswer specific questions about the outstanding payments owed to Insulation Coatings & Consultants other than to acknowledge a review of the matter is ongoing.

"I understand you may have questions, but the review is not complete, and I will have no further comment until it is," said Holly Liapis, a spokeswoman for the State University of New York, wrote in response toquestions about the change orders. Liapis did notanswer a detailed list of follow-up questions.

[Gallery:UB's downtown medical school nears completion]

Sorce provided The Newswith a copy of anemail dated Feb. 22 in which a Construction Fund official acknowledged the delay.

"I came on last summer and am moving the issues as best we can. We have folks dedicated to this project alone and staff solely dedicated to reviewing and processing change orders," wrote Anne L. Garrity, regional director of design at the Construction Fund, in a Feb. 22 email that was copied to LPCiminelli Vice President William J. Mahoney. "The backlog, thanks to all involved in the process, has significantly reduced. We have changed some of our processes to enable field orders to move quicker. We will keep plugging away and ask for your continued patience."

The $375 million medical school, designed by architecture firm HOK, is slated to open later this year. The building will includestate-of-the-art research laboratories, classrooms and advanced simulation centers for patient care and surgical training.

Sorce has contacted LPCiminelli, the Construction Fund, the Empire State Development Corp. and state Sen. Catharine Young, R-Olean, who represents his district. His company has logged more than 6,000 emails on the entire project.

Young said the situation "gives the state a black eye."

"It is unfortunate when a subcontractor fails to get paid due to a dispute between the state and the main contractor," she said. "I am very concerned about Mr. Sorce's business and his employees, and we need a positive outcome."

Young on Wednesday said she had her staff reached out to the "proper entities" multiple times to rectify the matter. "We've just advocated that this guy needs to get paid. We don't want him to go out of business."

LPCiminelli and UB officials also declined to answer specific questionsabout delayed payments.

"As the State University Construction Fund continues its review, LPCiminelli has been working closely with state officials to ensure all appropriate documentation is in place and help move the project forward to completion," the company said in a prepared statement.

LPCiminelli has been at the center of controversy during the last year as three of its top executives resigned to fight charges in a federal corruptionprobe regarding its contract on an unrelated Buffalo Billion project to build the SolarCity plant in South Buffalo.

UB released a one-line prepared statement when contacted by The News. "We have contacted the State University Construction Fund about this issue and we understand that they are in the process of reviewing it," UB's statement said.

Sorce, whose firm did insulation and fireproofing work on the medical school construction site, said the lack of timely payment could cost him his 40-year-old business.

"I can't get supplies for other jobs because my line of credit is gone to buy supplies. That job ate it all up," Sorce said.

Sorce said a delay in starting construction on the medical school project drove up subcontractor costs, requiring some of the change orders.

Sorce has talked with Sam Hoyt, regional president of Empire State Development Corp., about the problem. "This is clearly a matter between the SUCF, the general contractor and the subcontractor. That said, when I heard from Mr. Sorce, I spoke with colleagues in Albany who immediately contacted the SUCF to encourage them to resolve this matter as soon as possible," Hoyt said.

The State University Construction Fund a public benefit corporation that addresses the construction and capital planning needs of the State University of New York and affiliated institutions is overseen by a three-person Board of Trustees, one selected by the SUNY Board of Trustees and the other two nominated by the governor and confirmed by the state Senate.

Sorce remains frustrated.

"I'm 66 years old and I don't need this," he said. "I wake at 2 a.m. because I cannot sleep. They wanted the job done quickly, and we worked long hours and overtime and did all this stuff for them to get the job done fast, so they can open the school on time. And now, they don't want to pay us quick."

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Medical school subcontractor: Late $1 million payment 'ruined' him - Buffalo News

Medical school facilities to receive $3.9 million facelift – GW Hatchet (subscription)

The School of Medicine and Health Sciences is getting $3.9 million this fiscal year to upgrade labs and classrooms in Ross Hall.

The medical school is getting $3.9 million in the coming fiscal year to step up its labs, classrooms and facilities.

The project will include upgrades to labs and classrooms in Ross Hall and the schools information technology infrastructure, Walter Harris, senior associate dean for administration and operations of the medical school, said. The renovations will allow the medical school to keep up with modern technology and stay competitive with other universities, faculty said.

The updates are standard and will simply enable work to continue and improve support for our faculty and students, Harris said in an email. These renovations enable our students, faculty and staff to continue the work they are doing in medical research and education.

Harris said the renovations and upgrades will be implemented throughout the coming fiscal year, which begins this summer. The renovation process will have minimal impacts on students and faculty, he said.

The renovations will be funded by the roughly $67 million capital budget, which the Board of Trustees approved last month.

Harris declined to say what the renovations will specifically entail and how classrooms and labs will be updated. Harris declined to provide a timeline of the renovations and how officials decided which improvements to make to the schools facilities.

In recent years, the medical school has sought funding to upgrade its facilities outside the capital budget, looking to collect $25 million for building renovations during the Universitys $1 billion capital fundraising campaign, which will officially end later this month.

Julia Cruz, a clinical instructor of medicine, said with the fast pace of technology in the medical field, frequent upgrades are necessary to prepare future doctors who will require high-grade equipment for their work.

I think even within a short period of time I think technology has changed so much, we do have to have those things to be able to share with students, Cruz said.

Cruz said that using the money to provide medical students with standardized patients, or actors who pretend to be patients with specified medical conditions, would be helpful for training students on how to conduct medical consultations.

I think that anytime that we can spend money using as close a model to a real patient as we can, and use the students to play the role that they are eventually going to play, that is money very well spent, Cruz said.

Daniel Ein, a clinical professor of medicine, said he has been lobbying to have an allergy fellowship funded for several years, which could allow for more specialized training for his students.

I would love to see a little tiny bit of that money go into helping us develop an allergy fellowship, he said. I think we provide a lot of value in terms of patient care.

He added that every other department in the medical school has this type of fellowship and that his department would benefit from such a program.

Patricia Berg, a professor of biochemistry and molecular medicine, said upgrading equipment in the medical school allows scientists and researchers to be competitive with their work. Advanced equipment will allow for innovative discoveries, she said.

If youre working on something and somebody else at another institution is working on the same question and they have modern equipment and you dont, you can forget it, Berg said. You wont get grants, you wont publish, you might as well just forget science so its crucial to keep up.

She added that putting money towards cores, or designated labs with common equipment to help with investigations, can make a university attractive to prospective scientists and researchers.

They do look to see what cores might be available if they were to come to that place, Berg said. This means they dont have to duplicate the equipment and pay for it and maintain it.

This article appeared in the June 12, 2017 issue of the Hatchet.

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Medical school facilities to receive $3.9 million facelift - GW Hatchet (subscription)

Liberty defense stops Storm late, lifts offense in home victory – Newsday

The Storm stormed back against the Liberty on May 26 in Seattle, rallying from 10 points down late in the third quarter and scoring the final nine points in the fourth to rip the game away. The rematch came Sunday at the Garden, and this time the Liberty wouldnt let go.

Tied with 2 12 minutes left, it was anybodys game. Then the Liberty raised the heat on defense, forcing six turnovers. Sugar Rodgers made two steals and five free throws in the final 54.9 seconds.

Rodgers and Tina Charles contributed 21 points each, and the Liberty overcame productive games from Sue Bird and Breanna Stewart to win, 94-86.

We made all the right plays down the stretch defensive-wise, coach Bill Laimbeer said. It led to easy baskets on the offensive end. Were still a defensive team. But if we can consistently score, it makes us even more dangerous.

The Liberty (6-3) will play six of seven on the road after closing its five-game home stand with four straight victories, all after Epiphanny Prince and Kia Vaughn departed to prepare for the EuroBasket tournament.

Weve seen two different teams; Piph and Kia were on the team prior, Bird said before adding that when theyre gone, it kind of sets the table for other people to step up. Youve got to give the New York players credit.

The Storm (5-4) led 83-80 before Shavonte Zellous (16 points) hit the tying three-pointer. Bria Hartley made a steal and turned it into a go-ahead layup with 2:16 remaining. Kiah Stokes had a putback with 1:14 left to make it 87-84.

Rodgers stole a pass by Jewell Loyd (19 points) and fed Zellous for a layup. Rodgers stole the ball again on the next possession and made two free throws for a 91-84 advantage.

I was guarding one of the best guards in the league, Jewell Loyd, Sue Bird, whoever it is . . . just making sure they feel me when Im out there, Rodgers said.

She sank another free throw with 29.3 seconds left and hit two more at 15.9 to cap a game-closing 14-3 run. Sugar is just growing right before our eyes, just what she puts on herself to get stops, said Charles, who had 14 rebounds.

It sure didnt help Seattle when Stewart (23 points, 10 rebounds) fouled out with 4:27 remaining. It was so frustrating, she said.

Stewart and Bird (21 points, 10 assists) totaled three three-pointers to power a 13-4 burst that cut a 12-point deficit to 43-40 at the break. But the Liberty ended up making it a very happy homestand.

Its huge, Charles said. You dont want to play catch-up in this league.

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Liberty defense stops Storm late, lifts offense in home victory - Newsday

Liberty is a scary thing – Personal Liberty Digest

Human liberty is a frightening concept to people who have only known bondage.

We read in the Holy Scripture that no sooner had the Israelites actually realized that their freedom from Egyptian slavery was at hand, but that they might have to fight to keep it, they began to clamor to return to their chains.

Then they said to Moses, Is it because there were no graves in Egypt that you have taken us away to die in the wilderness? Why have you dealt with us in this way, bringing us out of Egypt? Is this not the word that we spoke to you in Egypt, saying, Leave us alone that we may serve the Egyptians? For it would have been better for us to serve the Egyptians than to die in the wilderness. Exodus 14:11-12 (NASB)

The majority of American people are no different from the Israelites of old. Most dont even realize it. Some sense that something is wrong but arent sure what it is. And there are those who see it for what it is and embrace it. They wont admit it, even to themselves, but they are slaves and are engaged in self-sacrifice to their detriment and the detriment of their children.

We have described government as an organism of power designed by the ruling elite which uses politics and political parties to confuse and disorient the public mind about human liberty. Politics is the system used as a subterfuge to cause people to imagine freedom and liberty even as they are enslaved.

Over time the system has evolved as a doctrine of life. It provides comfort and security for the group. Truth and inquiry beyond the system creates guilt, fear, hostility, and distrust. Society has parameters of thought that imprisons the population so that they respond only to suggestions of authority.

The essential thrust of psychological warfare is to build group consciousness that supports the system against individualism and creative survival.

Political power is built upon group consciousness, not individualism. Politicians appeal to the individual and human liberty, but their careers are built upon helping more and more power flow to the state.

When the American politicians talk about human liberty, they certainly are not talking about our or your personal and individual liberty. Human liberty is a code word for groupism (the crowd). Politicians and bureaucrats never remotely consider personal or individual liberty.

Government under any name or label is all about making and passing laws for the people. Where there are many laws, there is no individual freedom. Where there is no individual freedom, there is no freedom at all.

Politicians and bureaucrats have so skillfully imposed the word democracy that the crowd has total confusion of groupism and individual liberty. Democracy by all definitions is mob rule or groupism. It is anathema to individual liberty. Democracy does not equal human liberty. Democracy precisely means the manipulated mob. Mobs are never spontaneous.

Watch that word democracy. It is the charade for criminal politics. Its hard to believe how writers who pretend to oppose big government endear this most deceptive word. They are either a part of the system or victims of the systems brainwash. In any case, they are perpetuating the deception.

When you see or hear anyone use the word democracy implying human liberty, you should suspect treason whether the use is intentional or otherwise.

The word and modern usage of democracy is the focus of world propaganda. We absolutely must be alert to this or risk continued deception. It is all important to recognize code words and phrasesthat are used by bureaucrats and politicians to manipulate the public mind. I am speaking now to the American conservative. Todays conservative claims to believe in limited government, the Constitution and individual responsibility even individual liberty. In the abstract, any mention of rolling back government to its Constitutional parameters is greeted by conservatives with great enthusiasm. But when the rubber meets the road the hedging and waffling starts.

One of the great myths of our time is that the U.S. is a free market capitalist system. In reality, there is no free market in America and has not been for more than 150 years. A market with regulations and licensing and taxation and incentives and cronyism and restrictions on whom a business may or may not serve is in no way a free market.

Most of todays conservatives would agree that the market is overregulated. But they are few and far between who would agree that all federal regulations should be removed and Americas system should be laissez-faire.

Or try to get the conservative to agree to end Social Security, all gun laws, the Federal Reserve, all welfare programs, the income tax, the FDA, farm subsidies, regulations on the auto industry, antitrust laws, the FCC, the EPA and energy regulations. You cant take away all regulations, the conservative will say. Some of them are necessary. We dont want the seniors to be broke, kids to go hungry, to have the wild west or unregulated banks, etc., etc., and government and only government must prevent that.

This is nothing less than socialism and corporatism, or a watered-down version of the national socialism of Nazi Germany. Oh, the jackboots are not present, but midnight knocks on the door may be if you deign to bring an unapproved plant or seed into your home.

Thanks to years of propaganda that begins with the mass media assault on young minds (childrens programming) and extends throughout the public (non)education system and higher education system, people assume without inquiry their relationship to government. They are programmed to believe the government is a benevolent agent for mass good and it establishes public policy in order to provide for the public welfare and freedom.

Because the true nature of government is concealed beneath an aura of benevolency and imagined political freedom does not change reality, it changes only our perception of reality.

It is in the supreme interest of government that the people be systematically and gradually dumbed down. People who still have the mental capacity to question public policy do not think in the public interest. Public policy and the public interest are establishment concepts of conformity. Public policy and the public interest refers to the interest of the state, not the interest of the people.

The suppression of human liberty is always created upon or out of distorted reality. Any political system built upon self-sacrifice (and all are) is an illusion and can only maintain authority at your expense. Distorted reality is any ploy that seeks to persuade you to share what you have with nonproducers or to seek guidance from external authority. Politics is such an ingrained system that few realize that politics is a system of reliance on external authority which perpetuates itself on illusions and distortions.

There are only two influences or authorities in our lives. One is external authority and the other is internal authority or personal guidance from our own brain. It is our reliance upon external authority that has led us into socialism and turned the American dream into the American nightmare. Our dependence on the external authority of government and the politicians is a program for ruin. Look at us!

Relying on the external authority feels safe because it is the status quo. It feels like freedom because we have endured mass brainwash telling us our slavery is freedom and democracy.

But freedom and happiness is only restored through self-reliance and acting on our own judgment. Self-sufficiency and self-worth produces ultimate happiness and human liberty.

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Liberty is a scary thing - Personal Liberty Digest

Patience, plate discipline has Liberty baseball team one win from state final – Allentown Morning Call

For three innings Thursday, Liberty's lineup battled Philadelphia Public League Independence Division MVP Nick Herrera.

When Herrera failed to throw strikes, as he did during Jared Burcin's first at-bat, the Hurricanes took pitches. When Herrera left a pitch where a player liked it, as he did during Jake Wagner's second-inning plate appearance, Liberty did enough damage to build a 2-0 lead.

Liberty's patience and plate discipline through the first three innings paid dividends in the fourth. The Hurricanes knocked Herrera out with a six-run, five-hit frame that propelled them to an 8-0 win over Frankford and their first PIAA baseball semifinal since 2002.

"When pitchers get tired, sometimes the ball goes up a little bit," Liberty coach Andy Pitsilos said. "They start missing their spots. That's why that six-run inning happened. We kind of worked him a little bit, and he had to come out.

"It's a testament to our kids and the discipline they show at the plate. And when it's over the plate, they rip."

The Hurricanes want to rip for two more games. They first need to win Monday when they face District 1 champion Pennsbury in a PIAA 6A semifinal (12 p.m., Bears Stadium in Boyertown).

The Falcons have excelled at holding teams in check this season. They have limited foes to 2.5 runs per game and surrendered just one run over 18 innings in two state tournament wins.

Pitsilos will make sure his players respect what Pennsbury has done to reach this point. He also knows he can count on his senior-filled lineup to execute Liberty's plan.

The Hurricanes head into the semifinals with a .445 team on-base percentage. Left fielder Ben Piripavel (.561), Burcin (.505), and leadoff hitter Kyle Hlavaty (.504) have spent all season troubling opposing pitchers with their on-base skills.

Liberty has walked more times (152) than it has struck out (139). The Hurricanes have also been plunked 28 times.

"It's just all we practice and having fun with it," Burcin said. "If it's not our pitch, don't swing at it."

Added Wagner: "We kind of just wait for our time to shine, and then we just capitalize on it."

Patience could be crucial against Pennsbury. Senior Billy Bethel is expected to start for the Falcons. He has a 1.31 ERA and hasn't allowed an earned run since April 24.

Bethel held Parkland to four hits and one unearned run while striking out six over six innings in Pennsbury's state opener. He also fired a three-hit shutout in a District 1 semifinal win over Neshaminy.

Liberty has faced and defeated quality pitching before. The Hurricanes love to bunt and run to pressure their foes.

Their approach won't change.

"If you get the ball in play, good things are going to happen," Pitsilos said. "We definitely want to walk more than we strike out. These kids have phenomenal numbers this year as far as that goes. They also have good hitting numbers.

"Then sometimes the running game leads to a little more fastballs, and then the hitting goes up. Let's just hope it can continue."

samiller@mcall.com

Twitter @mcall_smiller

610-820-6750

PIAA BASEBALL SEMIFINALS

CLASS 6A

District 11 champion Liberty (25-3) vs. District 1 champion Pennsbury (20-6)

When/where: 12 p.m. Monday, Bears Stadium in Boyertown.

At stake: A berth in the PIAA 6A final against District 3 champion Dallastown or District 6 champion State College. The title game is schedule for 3:30 p.m. Friday at Penn State's Lubrano Park.

LIBERTY

Coach: Andy Pitsilos.

About the Hurricanes: Reached the semifinals with a 5-4 win over District 3 runner-up Governor Mifflin and an 8-0 victory against District 12 champion Frankford. Average 7.3 runs per game and allow 2.4. Won five straight games and 17 of their last 18 games. Their only loss during that stretch came to Parkland 6-3 in the EPC final. This is the first time they have made the state semifinals since 2002, when they reached the state final. Senior right-hander Alex Super will likely start. He is 5-0 with a 1.12 ERA and 56 strikeouts in 10 games (8 starts) covering 50 innings.

PENNSBURY

Coach: Joe Pesci.

About the Falcons: Advanced to the semifinals with a 2-1, 11-inning win over District 11 runner-up Parkland and a 3-0 win over District 1 No. 4 seed Perkiomen Valley. Average 4.7 runs per game and allow 2.5. Have won their last 11 games. Won the Suburban One League National Conference with a 10-2 league record. It was their second SOL National title in three years. Beat North Penn 5-3 in the District 1 6A final June 1. This is their second state tournament appearance in three years. They fell to North Penn in the state quarterfinals in 2015. Senior ace Billy Bethel (8-2, 1.31 ERA, 63.2 innings) will likely start. He hasn't allowed an earned run since April 24.

CLASS 5A

District 11 champion Whitehall (12-12) vs. District 2 champion Wallenpaupack (18-2)

When/where: 4 p.m. Monday, Marywood University in Scranton.

At stake: A spot in the PIAA 5A championship game against District 1 runner-up Springfield-Delco or District 7 champion Greater Latrobe. The title game is schedule for 5:30 p.m. Thursday at Penn State's Lubrano Park.

WHITEHALL

Coach: Shaun O'Boyle.

About the Zephyrs: Reached the semifinals with a 7-0 win over District 3 runner-up Daniel Boone in the first round and a 5-2 win over District 1 No. 3 seed Upper Moreland in the quarterfinals. Average 5.3 runs per game and allow 3.5. Have won five straight games to return to .500 after a 7-12 start to their season. Averaging 7.4 runs per game during their winning streak after averaging 4.7 runs over their first 19 games. Alex Bruneio (3-4, 1.92 ERA) will likely start. He has allowed 52 hits and struck out 75 over 54 2/3 innings. Zach Hamscher and Matt Dobeck have combined to steal 33 bases without getting caught.

WALLENPAUPACK

Coach: Todd Schmalzle.

About the Buckhorns: Reached the semifinals with a 3-1 win over District 1 No. 4 seed Upper Merion and a 2-0 win over District 1 champion Marple Newtown. Average 5.3 runs per game and allow 2.2 runs per game. Enter the state semifinals with a nine-game winning streak. Have allowed one or no runs seven times in their last eight games. Aaron Husson, a UMBC recruit, should start. He is 5-0 with a 2.27 ERA. He has allowed 36 hits, walked 15 and struck out 61 in 46 1/3 innings. ... Have four players with at least 15 hits: Derrick Vosburg (21), Tyler Kirsten (21), Morgan Theobald (17) and Max Alessi (15). They have just 13 extra-base hits as a team.

Compiled by Stephen Miller

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Patience, plate discipline has Liberty baseball team one win from state final - Allentown Morning Call

Drone Racing League Raises $20 Million From Sky, Liberty Media, WWE – Variety

Drone Racing League announced today the close of a Series B investment round of more than $20 million, led by U.K. satellite provider Sky, Liberty Media and Lux Capital.

The two-year-old New York startup, which is trying to establish remote-controlled lightweight aircraft races as a spectator sport, also brought in WWE and Allianz (its global title sponsor) as new investors in the round.

DRL also announced additional partners and sponsors including Swatch, Forto Coffee Shots and the U.S. Air Force. The leagues 2017 television broadcast season kicks off on June 20 on ESPN, and will be broadcast in more than 75 countries with broadcast partners including Sky Sports, ProSiebenSat.1, Disney XD and OSN.

Earlier this month Drone Racing League recently announced a partnership with Amazon Prime Videos The Grand Tour as part of its 2017 Allianz World Championship Race in London, taking place on Tuesday, June 13. The deal includes a custom Grand Tour Finish Gate at the race at Alexandra Palace; a branded Grand Tour commentator booth for guest play-by-play announcers on-site; and the creation of digital content showcasing Grand Tour and DRL.

Were incredibly proud to announce new partners and investors aligning with DRL to solidify drone racing as the sport of the future, said Nicholas Horbaczewski, CEO and founder of DRL.

In addition to Liberty Media which now owns Formula 1 Sky, WWE and Allianz, other existing investors that participated in the latest round of funding in DRL include Hearst Ventures, RSE Ventures, Lerer Hippeau Ventures, and Courtside Ventures. DRL has also added as an investor CRCM Ventures, supporting its expansion into China. LionTree acted as financial adviser for the company and Morrison Foerster was the companys legal adviser.

The DRLs final race in the 2017 Allianz World Championship Season, will feature eight top pilots competing for the winner-take-all 2017 season finale flying drones at speeds over 90 miles per hour.

Horbaczewski, a former exec with endurance-competition event producer Tough Mudder, founded privately held DRL in 2015. The league launched in January 2016 as the only global professional drone racing organization, hosting five professional races in its inaugural season. In 2017, DRL is hosting a global series of six races, the Allianz World Championship, to be broadcast on ESPN, Sky Sports, ProSiebenSat.1 Media SE, Disney XD, OSN and other broadcast channels around the world.

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Drone Racing League Raises $20 Million From Sky, Liberty Media, WWE - Variety

Hoosier hoist a cold one for liberty | News | tribstar.com – Terre Haute Tribune Star

John Boroughs drank a Budweiser tall boy to toast what he believes is his right to buy a cold beer on Sunday.

He was joined by about 60 others in a standing-room-only crowd inside one of the current epicenters of the alcohol law debate, a Rickers convenience store in Columbus.

The store legally obtained a state license to sell cold beer in March but the legislature hit back with a law that will likely take that license away next year.

I think that was a shady move because they did try to go by the law, he said.

His beer came from a cooler inside the store where employees check IDs and serve from a refrigerated shelf behind the counter. He sat in one of 28 seats at the store which had been refitted to obtain a restaurant license.

Like-minded Libertarians from Jackson and Bartholomew counties participated in a Drink In for Liberty in support of reforming Indianas alcohol laws.

Jay and Nancy Ricker, co-founders of the Anderson-based chain, were on hand.

Were the only state in the nation that has a warm beer and cold beer law. I dont think people understand how unique, in a bad way, Indiana is in that respect, Nancy Ricker said.

Jay Ricker said that alcohol reform isnt limited to the Libertarian rally.

I think its a good subject for other parties to seize to show that a lot of time constituents wishes arent being reflected in the laws, Jay Ricker said.

Although Steven Buffington doesnt drink alcohol, he was at Rickers as vice chair of the Jackson County Libertarian party.

Its all about principle for me. We should be able buy where we want to, when we want to, how we want to. If the state is going to try to push markets on us and force to buy from specific places, I dont think thats reasonable or fair, Buffington said.

The Columbus store was one of two Rickers outlets that obtained restaurant permits, allowing for the sale of cold beer. Indiana law allows cold beer carryout sales only at package liquor stores.

Sundays gathering, however, wont meet new state requirements that 60 percent of Rickers cold beer sales, and those with similar new restaurant permits, must be consumed on the premises.

But the Drink In was aiming to underscore that Indianas alcohol laws need reform.

What I dont like is the government making decisions on who can sell things, said customer Brent Land. The only reasons for not allowing other high-volume retailers to sell it cold is the package liquor lobby ... When the government supports that, is the government trying to prop up a dying business model?

For the next two years, a legislative commission is to review the laws, focusing this summer on retail sales. No hearing dates have been set.

About 71 percent of Hoosiers favor allowing all state-licensed retailers the right to sell cold beer, according to a survey released last week by the Indiana Petroleum Marketers and Convenience Store Association which supports Rickers efforts.

The survey of 600 registered voters also showed that 65 percent supported Sunday carryout sales and that 64 percent favored a repeal of the restriction on liquor.

However, 67 percent opposed allowing minors into liquor stores and 59 percent opposed restricting the sale of spirits to only liquor stores.

The latter survey result could harm package liquor stores sales, a spokesman said.

Indiana must continue to have strict alcohol regulations because when abused or used irresponsibly alcohol can destroy lives, families, and communities, said Indiana Association of Beverage Retailers Vice Chair Jon Sinder in response to the survey.

Big Oil is well-intentioned with their polls and campaign. However, they miss the point alcohol is a dangerous commodity. It is not meant to be convenient.

Sinder added, As our state continues to be embroiled in a deepening addiction crisis, it is more important than ever that we look for ways to control access to potentially fatal commodities, not continue down the road of deregulation.

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Hoosier hoist a cold one for liberty | News | tribstar.com - Terre Haute Tribune Star

Liberty football coach Tyler Turner resigns – Jackson Sun

Brandon Shields , USA TODAY NETWORK Tennessee 7:45 a.m. CT June 12, 2017

Liberty Tech head coach Tyler Turner, right, celebrates with Laderian Harris after he squatted 585 lbs. during a weightlifting competition at University School of Jackson's Fred Teague Sr. Weight Training Facility in Jackson, Tenn., on Friday, April 7, 2017.(Photo: C.B. SCHMELTER/The Jackson Sun)Buy Photo

JACKSON After two seasons, 25 victories and a trip to Cookeville, Tyler Turner is stepping down as the head football coach at Liberty Tech.

Turner informed his team Monday morning he was leaving and has accepted the head coaching job at Olive Branch, Miss.

Im so grateful for the opportunity I got here two years ago when (former Liberty principal Dr. June Murry) and (Liberty athletic director) Luke Carter took a chance on a 29-year-old first time head coach, Turner said. Those two and (Liberty assistant principal) Wayne Alexander and (Liberty principal this past year) Tim Gilmer have been very supportive of the program, and I appreciate that.

Turner became the head coach at Liberty in April of 2015, put together a spring practice schedule in less than three weeks and led the Crusaders to their first-ever undefeated regular season. They remained undefeated until the Class 3A semifinals.

They made more history this past season when they made it back to the semifinals for a rematch with Christ Presbyterian Academy, the team whod defeated them the year before, and made the programs first trip to the BlueCross Bowl in Cookeville and played Alcoa for the state championship.

I never caught a pass or made a tackle here at Liberty, Turner said. Any success we had was because of the fact that this team was made of the hardest-working group of kids Ive ever seen in high school football.

I never had a bad day at Liberty because I knew no one would outwork us. And not only the kids, but the guys on this coaching staff. We changed up some stuff that first year and brought in a new coaching staff, and the coaches got to work early and stayed late a lot to get everything down we needed to.

Clips from Liberty's scoring drive right before halftime. BRANDON SHIELDS/The Jackson Sun

Turner takes over proud program at Olive Branch thats fallen on hard times recently. Hell be the programs fourth head coach in as many years, and the team went 0-10 last year. They won the Mississippi Class 6A state championship in 2011.

Olive Branch has high expectations, and its the kind of place coaches want to go to, Turner said. If the team isnt winning, the entire community isnt very happy.

Plus its about halfway between my family in Obion County and my wifes family in Arkansas. With a 7-month-old daughter at home, this was a decision I made for my family.

Turner understands the situation hes in taking the job so late in the offseason.

And coming in this late in the offseason, Im prepared to go 100 miles an hour with my foot on the gas and no brakes to get ready for this season, Turner said. Its similar to when I came here right before spring and had to get ready with no one on staff, but theres a different kind of urgency because were a couple months closer to the season.

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Turner said Libertys next coach has plenty to work with on the roster when hes hired.

This is a good group of athletes that will work hard for their coach, because they worked hard for me, Turner said. They know what it takes to be a great team because theyve seen it and were a part of it for the last two years.

Reach Brandon Shields at bjshields@jacksonsun.com or at 731-425-9751. Follow him on Twitter @JSEditorBrandon or on Instagram at jacksonsunsports.

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Liberty football coach Tyler Turner resigns - Jackson Sun

Indiana’s Libertarian Party ‘drinking-in’ to put lawmakers on tap for … – Fox 59


Fox 59
Indiana's Libertarian Party 'drinking-in' to put lawmakers on tap for ...
Fox 59
COLUMBUS, Ind. Indiana's Libertarian Party helped served a cold one Sunday afternoon. The day and location - purposeful. The message unequivocal.
Hoosier hoist a cold one for liberty | News | tribstar.comTerre Haute Tribune Star

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Indiana's Libertarian Party 'drinking-in' to put lawmakers on tap for ... - Fox 59

Trump’s Libertarian Budget Director: I Don’t Care What You Do In The Privacy Of Your Own Home – The Liberty Conservative


The Liberty Conservative
Trump's Libertarian Budget Director: I Don't Care What You Do In The Privacy Of Your Own Home
The Liberty Conservative
OMB Director Mick Mulvaney strongly stressed his libertarian leanings in a recent interview with the Washington Examiner. According to the Examiner's Alex Pappas, Mulvaney 'said he considers himself in the libertarian wing of the party'. Mulvaney went ...

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Trump's Libertarian Budget Director: I Don't Care What You Do In The Privacy Of Your Own Home - The Liberty Conservative

Why Canada will pay to help places like the Solomon Islands fight climate change – CBC.ca

"Nice name," said the president of the United States, perhaps deviating from his prepared text.

While announcing his determination to withdraw the United States from the Paris agreement on climate change, Donald Trump was lamentingthat American funds had been committed to help developing countriesmitigate and adapt to the impacts of a warming planet.

"Beyond the severe energy restrictions inflicted by the Paris Accord, it includes yet another scheme to redistribute wealth out of the United States through the so-called Green Climate Fund nice name which calls for developed countries to send $100 billion to developing countries all on top of America's existing and massive foreign aid payments," he explained.

The recent U.S. commitment to international climate financing has been approximately $2.7 billion US per year. To the Green Climate Fund specifically,BarackObama'sadministration had promised $3 billion.(Trump was conflating a general commitment by developed nationsto raise $100 billion US and the Green Climate Fund, which is a specific initiative within that commitment.)

Trump's Paris decision draws global criticism2:15

Canada's pledge to climate financestands at $2.65 billion Cdn over the next five years. And though Conservative MPs voted last week to endorse the Paris Accord, Conservatives have similarly grumbled about the expense.

"The bottom line is the government is nickel-and-diming Canadians to death to pay for the prime minister's out-of-control spending on his own vanity projects, like the $2.65 billion he spent on environmental projects outside of our country when the money could and should have stayed in Canada," Ed Fast, the Conservative environment critic, told the House of Commons in May.

Fast has repeatedly questioned the $2.65-billion commitment. Maxime Bernier criticized it during his leadership campaign as part of a promise to reevaluate all foreign aid.

Butto paraphrase one analyst, however much that money might flatter the prime minister's sense of self-worth, there is a decent case to be made for the spending.

The $100-billion goal a compromise from suggestions that developing nations required or deserved much more emerged during negotiationofthe Copenhagen Accord in 2009.

That amount can be justified as a matter of fairness and moral responsibility.

"If all we say to these countries is that they cannot copy what we have done ourselves when our development history has given us great prosperity while giving them many of its environmental costs there can be no reasonable dialogue on which to build a shared future," former British prime minister Gordon Brown said in pitching the $100-billion target.

Canada to fight climate change without U.S.2:08

Over the last two centuries, the world'srichest nations powered their economic growth by burning fossil fuels, producing the vast majority of historic emissions that are now contributing to climate change. As Dale Marshall of Environmental Defence puts it, the developed countries filled up more than their fair share of the planet's atmospheric space.

Meanwhile, the poorer developing nations, whilebeing asked to forgo those energy sources, are now expected to suffer disproportionately from the droughts, flooding and otherimpacts of global warming.

"Developed countries are ... morally obliged to pay partial compensation to poor and vulnerable countries," Meles Zenawi, the former prime minister of Ethiopia, argued in 2009.

But when the U.S. Treasury department asked Congress to continue supporting the Green Climate Fund this year, it offered practical arguments.

Such funding, the department reported, "advances U.S. interests" in several key areas.

By improving the resilience of vulnerable nations, funding would reduce the likelihood of civil unrest and strife, thus contributingto national and international security. And, in addition to helping to reduce global emissions, financial assistance can develop new markets, reduce the risk of economic shocks from extreme weather and change, and support the expansion of American businesses.

In an analysis published by the Brookings Institution in February, Timmons Roberts and Caroline Jones argued that withdrawing funding could reduce U.S. influence internationally. "To renege on our commitments to climate finance made in support of the Paris Agreement would weaken America's ability to muster enthusiastic support on important international policies we might care about," the two researcherswrote.

Key player in securing the Paris Climate Agreement says the costs of inaction on climate change are enormous for the U.S.5:49

The $100 billion in annual funding is to be provided by both governments and the private sector and can come in the form of loans, grants or insurance. The current Canadian commitment is being divvied up across a number of initiatives, including $300 million for the Green Climate Fund.

But Canada was involved in such aid long before Justin Trudeau was anywhere near the Prime Minister's Office.

Between 2010 and 2012, Canada contributed $1.2 billion in financing, as detailed in a 2013 report. And the commitment of $300 million to the Green Climate Fund was actually made by Stephen Harper's government in 2014.

Fast, a minister in that government, has worried that there will not be enough accountability for how the Trudeau government's commitment will be used, though officials tried to reassure him during committee hearings earlier this year. Canada's current commitments are broadly defined, but the federal government has mapped and detailed previous recipients.

Trump ventured that "nobody even knows where the money is going to," but the Green Climate Fund's websitedetails each of the 43 initiatives that have so far been funded. A project to deal with groundwater and irrigation in a tribal area of India received $166 million. A hydropower facility was installed in the Solomon Islands for $233 million.

Environmentalists also have questions about how the money will be usedand other analystshave argued that the tracking of funds needs to improve, but without saying that climate financing is an unworthy pursuit.

Of course, transparency and accountability are expectedwhenever public funds are spent.

But the main argument for climate financing is that it's justified and has an important purpose and critics have to reckon with that.

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Why Canada will pay to help places like the Solomon Islands fight climate change - CBC.ca

‘Historic’ islands bill published – BBC News


BBC News
'Historic' islands bill published
BBC News
The Scottish government has introduced what it has described as a "historic bill" to create a sustainable future for Scotland's islands. The proposed legislation aims to offer greater powers to island local authorities, including the Western Isles ...
Historic Islands Bill introducedStornoway Gazette
New islands bill introduced to Scottish ParliamentShetland Times Online
Scottish islands power playreNews

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'Historic' islands bill published - BBC News

Ohio River Islands National Wildlife Refuge works to improve butterfly habitat – Parkersburg News

Local News

Jun 12, 2017

Photo by Doug Loyer A Zebra Swollowtail butterfly lands on an Orange Butterfly Milkweed plant near a walking path at the Ohio River Islands National Wildlife Refuge Visitors Center.

By planting more milkweed plants, it will help the habitat support more butterflies as they breed and prepare for migration.

According to Monarch Watch, a non-profit organization that works for the conservation of Monarch butterflies, Monarch butterfly populations are declining. That is due to the loss of their habitat. To assure the future of monarchs, they are actively promoting the conservation and restoration of milkweeds and emphasize that it should become a national priority.

Today, we will be planting common milkweed at the refuge. This milkweed was free for us, said Matt Bristol, Wildlife Refuge Specialist. We were able to get the milkweed through Monarch Watch.

The host plant of a Monarch butterfly is milkweed, explained Bristol. The Monarch Watch Organization had grants available where they were giving away free milkweed plants. Bristol applied for a grant last fall and the refuge was awarded over 100 of the milkweed plants. They are small little seedlings.

Photo by Doug Loyer Wildlife Refuge Specialist Matt Bristol, staff and volunteers get milkweed plants ready to be planted.

On Saturday, those milkweed plants were added to the refuge with the help of volunteers to enhance the habitat and milkweeds that they already had.

Each butterfly has one or few host species of plants. The butterflies lay their eggs on those plants. The larvae eat the milkweed plant material and turns into a butterfly later. The milkweed is also a good nectar plant for butterflies and bees.

Ive seen some Monarchs moving through already, said Bristol. They are an interesting species because many of them migrate from Mexico through North America, breed and then migrate back. They need good breeding sites and we are in their breeding range. Thats where they would need the milkweed and nectar as well.

Bristol said people can help out the butterflies in their own yards by planting pollinator gardens. You can use a portion of your lawn and plant a wildflower seed mix and this would give you more diversity of plant species. Youd have flowers all summer, its looks nice and also provides nectar for the butterflies plus some milkweed. Theres several companies out there that sell those mixes.

The butterfly to me is like Art on Wings,' said volunteer Judy Parrish, of Vienna, and a member of the Parkersburg Womans Club. The General Federation of Womans Clubs are involved in conservation and ecology, those areas of life that tend to be overlooked.

Photo by Doug Loyer Longtime refuge volunteer Jon Benedetti finds a spot for a milkweed plant.

This is an absolutely beautiful place, said Parrish. I want to make sure we continue to have butterflies and the beauty that they provide.

One long-time refuge volunteer since the late 90s is Jon Benedetti of Vienna.

One of my hobbies is birding and we need to have places like this, said Benedetti. I think its pretty important.

Benedetti has been a birder since 1957 when he was in the Boy Scouts. He found that he really enjoyed it and just kept doing it.

Habitats need to be preserved if theyre going to live, emphasized Benedetti. He said he is appreciative that the government is responsible enough to have the U.S. Fish and Wildlife Service, the National Park Service and agencies like that which are trying to do something to maintain the environment at healthy level.

Theres a really good effort being made here at this refuge, said Benedetti. The staff here does a really nice job. They really care and do their level best to keep it going.

Birding and enjoying nature is a family passion as Jons wife, Judy Benedetti was also volunteering Saturday. She too, appreciates nature and enjoys what the refuge has to offer and enjoys being part of the effort to maintain and enhance it.

The Ohio River Islands National Wildlife Refuge is fully staffed and this summer even has five SCA (Student Conservation Association) interns helping out. One such intern is Melissa Cannell from Chicago who was helping to plant milkweed Saturday. Cannell is a graduate of Northern Illinois University with a degree in business marketing and is enthusiastic about her intern experience at the refuge.

I really like being outdoors and public spaces and sharing the love of the outdoors with others. Im loving my time here. Its fantastic, said Cannell. Its a nice quiet place and theres lots of nice people. Its really welcoming. It feels great.

Another passionate nature-lover helping out was Virginia Graves of Marietta.

Its a treasure that theyre preserving these areas, said Graves. This is something I really enjoy doing.

Graves said its fun to see the Monarchs. She has some milkweed plants in her yard at home as well, mentioning that she had six caterpillars at one point last year. When she went back out later, she only had two left. She explained that sometimes predators eat them. To protect the caterpillars, some people put them on their sun porches until they hatch and then release them.

The Ohio River Islands National Wildlife Refuge was established in 1990. The refuge protects and conserves habitat for native wildlife in one of our nations busiest waterways. The refuge covers 22 islands and four mainland tracts that lie along 362 miles of the Ohio River in three states (West Virginia, Pennsylvania and Kentucky.)

The refuge and visitors center is open year-round. The visitors center itself is located on Waverly Road, two miles north of Williamstown. The refuge is open to the public for hunting, fishing and wildlife observation.

For information and events throughout the summer, check out their website at fws.gov/refuge/ohioriverislands and their Facebook page, facebook.com/OhioRiverIslandsNWR/ where they post all of their events.

PARKERSBURG WesBancos Trust Department announces the awarding of four full four-year scholarships from the ...

BELPRE Belpre City Council will hold its next regular meeting at 7:30 p.m. today at the Belpre Municipal ...

CHARLESTON West Virginia Auditor J.B. McCuskey says if lawmakers pass a budget by the end of this week, his ...

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Ohio River Islands National Wildlife Refuge works to improve butterfly habitat - Parkersburg News

Gili Islands: Are they truly a vision of paradise on earth? – Hindustan Times

The Gili Islands, comprising Gili Trawangan, Gili Meno and Gili Air, are situated just off the northwest coast of Lombok, Indonesia.

Motor vehicles arent allowed here, so for transportation you either need to walk, take a bicycle or the cidomo (horse-drawn carriage). Amongst all the activities, the most popular ones are scuba diving, snorkeling, golf, horse riding and free diving. You might want to try snorkeling off the beach as then you shall notice the magnificent green and hawksbill sea turtles.

The most renowned spots for diving are Shark Point, Manta Point and Simons Reef. Shark Point gets its name due to the variety of marine life one gets to see such as Reef sharks, cuttlefish, turtles, stingrays and many more.

As far as staying there is concerned, you have options such as beach shacks, backpacker beach huts and hotels (both high end and budget) and various other options such as bungalows. You might want to visit this paradise on earth before it gets too crowded!

To know different hotel prices for Gili Islands, click HERE.

School of glassy cardinalfish (Rhabdamia spilota) watched by a diver at Gili Air. (Shutterstock)

Couches on the sandy beach at Gili Trawangan. (Shutterstock)

A man with horse in the sea in Gili Trawangan. (Shutterstock)

A woman cycling on Gili Air. (Shutterstock)

Boats on the beach at Gili Trawangan at sunset. (Shutterstock)

Exploring Gili Islands. (Shutterstock)

Mother and her baby on the way to a beach, Gili Trawangan. (Shutterstock)

Sea turtle near Gili Meno. (Shutterstock)

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Gili Islands: Are they truly a vision of paradise on earth? - Hindustan Times

Israel welcomes ‘Saudisation’ of Egyptian islands – Middle East Monitor

Israeli Defence Minister, Moshe Yaalon, today welcomed the transfer of the Egyptian islands of Tiran and Sanafir to Saudi Arabia saying the kingdom had pledged to respect the Egyptian-Israeli peace deal.

Radio Israel reported that Yaalon had said at a press conference that the Saudis, who do not have official relations with Israel, would abide by the peace agreement.

Israeli newspaper Haaretz reported that Prime Minister Benjamin Netanyahu was aware of the Saudi-Egyptian agreement and had not objected.

Read:Egypt removes disputed Red Sea islands from primary education curriculums

Egypt closed the Tiran Strait in 1967, prompting Israel to declare war on Egypt and other Arab states. When Egypt and Israel signed a peace treaty in 1979, Cairo pledged to respect freedom of navigation in Aqaba and Eilat, the only Israeli port leading to the Red Sea. Saudi Arabia said it would abide by the treaty when it receives the islands.

During a session of the Egyptian parliament yesterday, the government presented a detailed report on the treaty, stating that Egypt occupied the two islands at the request and blessing of Saudi Arabia to protect them from Israeli threats.

The status of the two islands, Tiran and Sanafir, is unclear pending judicial and legislative decisions. A decision is expected to be issued by the Egyptian Supreme Constitutional Court and another by parliament amid rising public anger over the Egyptian regimes attempts to prove Saudi ownership of the two islands.

In a ruling by Egypts Supreme Administrative Court, Judge Ahmed Al-Shadhli stated: Egyptian sovereignty over the islands of Tiran and Sanafir is beyond doubt. He added that the court had reached a unanimous verdict.

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Israel welcomes 'Saudisation' of Egyptian islands - Middle East Monitor

In genetic disorder cases, it is very important to take off the guilt from the parents mind: Dr. Sheela Namboothiri – ETHealthworld.com

In an interview with ETHealthworld, Dr. Sheela Namboothiri, Head, Paediatric Genetics, Amrita Institute of Medical Sciences, Kochi, talks on the lack of attention and awareness about genetic disorders in India. Edited excerpts:

Tell us something about the high incidences of genetic disorders in India.

One of the main reasons is the positive consanguinity. There are a lot of people who marry blood relatives and it is very prevalent in certain parts of India, especially in southern and northern parts of the Kerala. Other area where the consanguinity is very prevalent is Karnataka, Tamil Nadu and Andhra Pradesh.

Whenever people marry first cousins or a distinct relative what happens is that the chances of them to share the defective genes go up and so there is a high chance of them to have children with genetic disorders.

Even if there is no treatment option for genetic disorders, do you think genetic diagnosis is relevant?

It is very important because once you have a concrete diagnosis then only you can offer prenatal diagnosis for this couple. If they have one child who has a genetic disorder for which there is no treatment available, the parents are extremely upset and go from post to pillar for diagnosis.

They have real guilt in their mind because once they go to many hospitals they get to know that it has been branded as a genetic disorder. They think that they have given a defective gene to their child.

We should communicate with them, telling them that we are all human beings and we all have defective genes in our body. It is not their fault and this takes off the guilt part from their mind. It is extremely important for them to have a concrete idea so that they can do what is useful for that child.

How do you see the treatment options for genetic disorders?

People have a belief that there is no treatment aspect but currently there are certain genetic disorders for which treatment options are available.

The treatment for Lysosomal Storage Disorder is enzyme replacement therapy. Currently, we are treating 11 patients with lysosomal storage disorders in our own department.

Metabolic disorders definitely have treatment options if they have been diagnosed at the early stage and so it is extremely important to make a diagnosis at a very early stage so that the complications can be prevented.

What prompted you to start with the department of Pediatric Genetics at Amrita?

I have been working as a paediatrician for 12 years and then I got interested in genetics. I had my post graduate training in Genetics from the University of Glasgow from Scotland, came back and started this department in 2005.

This department has been there for the past 11 years and I am extremely happy that now we are able to help families with genetic disorders mainly from the point of view of making diagnosis.

In Kerala, the people are very much health conscious and there are many self referrals because now people are much more aware of the genetic disorders and the need for making diagnosis at an early stage.

Give us some insight on skeletal dysplasia.

My main area of interest is skeletal dysplasia, this group of patients have short stature and curved bones. These patients were always neglected and all were just clumped into one group of genetic disorders.

The main matter is that you want to know what exactly the patient is having so that at least we can prevent it in the future pregnancy.

The other thing is that there are some type of skeletal dysplasias for which treatments are available mainly in the form of a surgical repair. This way at least their morbidity can be reduced and they can live a better life.

Please tell us more about lysosomal storage disorder?

LSD is a condition where you have more than 50 disorders and in about 7 conditions there is treatment available. The main treatment is in the form of enzyme replacement therapy and currently for 5 conditions we are treating patients with LSD in our hospitals.

The conditions are Gaucher's disease, pompe disease, mucopolisacaridosis type I, type II and fabry disease. In these 5 conditions, what happens is that you want to make a diagnosis at an early stage because if the permanent damage has happened then it is very difficult to revert the systems.

The caveat here is that it extremely costly so patients cant pay from their own pocket. In India the main problem is that patients are paying from their own pocket whereas in western countries, the government this responsibility but here it is still in its infancy.

How did Namboothiri syndrome get its name.Your role and contribution?

There are more than 30,000 syndromes which have been named and when a new syndrome is identified which cant be fitted in with any of the known syndromes then it should be publicized in an international journal and it should be presented in the American Journal of Human Genetics meeting, where the experts will be accessing whether it is a completely unknown syndrome and then at some point in time that syndrome will be included into the London Dysmorphology database.

Many years back 2 patients who were siblings had come from northern parts of Kerala and both of them were having some abnormality of the feet. They were severe mental handicap with changes in the face which were not described before.

All the other conditions which could have some similarities with this condition were ruled out. It took somewhere around 56 years for us to formulate the condition and even now the gene has not yet been diagnosed. So we are in the process of identifying the gene which is responsible for this condition.

Tell us something about Amrita's role in supporting children with Down Syndrome.

We in the past 11 years have seen around 750 children with Down syndrome and it is extremely important for having to do something little extra for these patients rather than saying that you have the condition for which there is no cure.

There are so many families that as upset, so we wanted to go a little ahead and have a support system or support group so that the parents can have a helping hand from the other families who had gone through the same situation and how they coped with this situation.

It is named as Prathyasha, which means 'something to look forward to' in Malayalam. Here we conduct meetings twice a year where we call the families and experts who are handling children with Down syndrome. At the end of the program we give an opportunity to the children to express their talents. So every year the families really look forward as they find it very interesting to come and attend the function.

What is your message for pediatricians and others who deal with multiple abnormalities?

In many situations where a child has multiple abnormalities it is always written as multiple abnormalities and that is not going to be advantageous because we dont know what exactly the other child had. So if a child has very severe abnormalities then the child should be showed to a paediatrician and all the genetic features which you can see from outside should be documented.

Today everybody has a smartphone, we should always take a photograph of the child or a x-ray. These are two simple things which can be done by anybody which will help a lot because rather than saying that this child had an abnormality of the hand, we can see it in a photograph or the x-ray.

So this will be helping the geneticist in making a diagnosis in many situations and mainly in the skeletal dysplasia. Whenever you dont have a diagnosis it is always advisable to store EDTA blood sample for future DNA studies as it will be very useful if we need it at any point of time.

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In genetic disorder cases, it is very important to take off the guilt from the parents mind: Dr. Sheela Namboothiri - ETHealthworld.com

JScreen Doubles List of Tested Genetic Diseases – Atlanta Jewish Times

The leading nonprofit organizationscreening Jewish couples for genetic diseases hasmore than doubled its testing capacity.

JScreen, based at the Emory University School of Medicines human genetics department, increased its testing panel from 100 to more than 200 disease genes that could affect a couples future offspring.

Many of these conditions happen in families where theres no known history, JScreen Executive Director Karen Grinzaid said in a phone interview. All of a sudden, a child is born, and theres a genetic problem. There is testing available to give people a heads-up about these things before they have kids.

One in three people of Jewish background unknowingly is a carrier for at least one Jewish genetic disease.

Conditions common in the Jewish population, such as Tay-Sachs, Gaucher disease, thalassemia, mucolipidosis Type IV, spinal muscular atrophy and Fragile X syndrome, are part of the nationwide screening process, andmany others are now included.

Half (the diseases) are common in the Jewish population; the other half are just common in the general population, Grinzaid said. Having this broader screening panel is important because, even though I may think Im 100 percent Ashkenazi, I dont absolutely know my background. Its possible there is other ancestry we dont know about. In addition to that, people have mixed backgrounds or may be in interfaith relationships.

She added, What were looking for are diseases where both parents seem healthy, but they dont know theyre carriers, so if they pass that gene onto a child, that child will have that condition.

Joining Grinzaid in the interview was Gail Heyman, a member of JScreens advisory board and a carrier of the Fragile X syndromepre-mutation who unknowingly passed on the condition to two of her children. Its a gene that has impacted our family greatly. Usually when you find a genetic disorder, its alarming.You dont know what to do, but after counseling, you can figure out what to do next.

That counseling sets the JScreenprocess apart, Grinzaid said. There are companies you get a kit from that just mail you results, and you have to figure out on your own what to do and what that all means for you and your family. People need to understand the results and what their options are. We wanted to make that support an integral part of our program.

If families have information, they have choices, Grinzaid said. You can have a conversation with your spouse about what you would or would not do if you were to have an affected child. Our goal is to get to people preconception, as much as possible, so they can make decisions on different reproductive options, such as in vitro fertilization or adoption, and maximize their chances of having a healthy family.

The screening for these diseases is done through DNA found in saliva samples using genetic sequencing technology, and JScreen operates under the direction of aphysician who specializes in genetics.

Another thing, Grinzaidsaid. People dont do it because they dont think its affordable, or maybe their insurance doesnt cover it, or theres a huge deductible. A lot of what we do is from philanthropic dollars, so even if their insurance covers nothing, its the same for everybody. That really helps improve access and encourage people to take advantage of the test, and the expanded screening really opens up the door for more people to participate.

The cost of the test, including counseling, is $149.

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JScreen Doubles List of Tested Genetic Diseases - Atlanta Jewish Times

This Might Be The Best Time To Break Into The Healthcare Business – Forbes

This Might Be The Best Time To Break Into The Healthcare Business
Forbes
Last year I wrote about what entrepreneurship looks like in healthcare. It's an interesting topic because the two seem to have contradictory goals. How can you take the risks of an entrepreneur to an industry where the stakes are so high? But business ...

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This Might Be The Best Time To Break Into The Healthcare Business - Forbes