Eugenics compensation can still start this year

Were not surprised Gov. Bev Perdue vetoed on Friday the budget the Republican-dominated N.C. legislature passed a week earlier. Many of the flaws she noted in rejecting the budget this editorial board noted when we gave a measured thumbs up to the $20 billion plan after it passed.

We found the plan flawed but good enough, given the circumstances. It begins to restore some of the unfortunate cuts made to K-12 education in recent years. Lawmakers gave back $251 million in K-12 funding for the coming year, a boost officials at Charlotte-Mecklenburg Schools welcomed. And that includes a 1.2 percent state pay raise for teachers and other state employees.

Still, like Perdue, we found plenty not to like about this budget. It is better than the draconian Senate version that was once on the table. But the compromise with the House came short of providing adequate resources for the states public schools and university system or its mental health and criminal justice services. And it continues the legislative bait-and-switch by giving schools more money with one hand, then requiring that they return millions back to the state with the other.

Most abominably, the budget provides no money to begin compensating victims of the state-sponsored sterilization program that ran from 1929 through 1974. That eugenics program was the longest running and the most aggressive in the nation. Victims were often coerced into the procedure or lied to about what was happening. Whites, blacks, American Indians were all victimized by the state through this needless and shameful practice.

Whether the legislature can successfully override Perdues veto, lawmakers still have a chance to do the right thing this year on the eugenics program. Both Perdues budget and the House budget had provided $10 million to finally make amends with $50,000 going to each living victim of the program. When the legislatures budget passed with no money set aside for compensation, Perdue suggested amending the budget with a lower amount, $5 million, to begin the program.

Legislators didnt budge, and Perdue stamped veto on the budget.

Before lawmakers start duking it out over the veto, they can and should include money for compensating sterilization victims. Perdue last week noted that an additional $117 million in revenues has been collected unexpectedly, leading to a combined $350 million in higher collections for the fiscal year that ended Saturday. She says some portion of the $117 million could fund needs left out from the budget.

Republicans counter that the money is one-time funding (an unexpected tax settlement) and is largely the result of a timing issue in which revenues arrived unexpectedly before the fiscal year ended. The unanticipated revenues will be canceled out by lower revenues next year and other obligations, they say.

Ironically, one of those obligations will be to refund business tax payments under a new tax break that begins July 1. That break, created to help small businesses, will also needlessly benefit wealthy businesses. As weve said before, a fix in that tax break, limiting it to small businesses that need it, could have funded the sterilization compensation program many times over.

Lawmakers can still fix that tax break. Or they could use the one-time funds that are part of the higher revenue collections this year to tackle the one-time issue of making amends for the states egregious sterilizations. This budget fix is doable, and worth one more try.

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Eugenics compensation can still start this year

Gov. Perdue wants compensation for eugenics victims

Raleigh, NC -

Announcing her intentions to veto the N.C. General Assembly's budget, Gov. Bev Perdue today called on legislators to continue working to benefit citizens of North Carolina. She repeated her support for providing compensation to surviving victims of the state's former forced sterilization initiative.

"They failed to take action on a bipartisan plan to compensate the verified living victims of the state's former Eugenics Board program which as, you know, involuntarily sterilized North Carolinians in the 20th century," Gov. Perdue said. "It's not a lot of money but a tremendous move for the state.

"We can't change the terrible things that happened to so many of these vulnerable citizens in North Carolina. But I believe it's long past time for us to take responsibility as a people for our state's mistakes, and to show North Carolinians and the world that we do not tolerate violations of basic human rights."

Gov. Perdue's original budget designated $10.3 million to compensate verified victims and provide continued funding of the N.C. Justice for Sterilization Victims Foundation. This week, she urged a compromise of $5 million. At this time, it is unclear if lawmakers intend to provide funding to the N.C. Department of Administration for continued operation of the Foundation or require DOA to find dollars from existing programs.

While more than 30 states at one time operated eugenics programs, North Carolina implemented the most aggressive program and had been poised to become the first to provide financial compensation to verified victims. Last Wednesday, the Foundation suspended intake of new victim verification. Because its original 2009 allocation of non-recurring funding will expire at the end of the current fiscal year, it has been preparing to shut down on Saturday.

The House approved legislation earlier this month that reflected Gov. Bev Perdue's call to pay $50,000 lump sum compensation to living victims, as well as funding for the Foundation's continued operation and expanded outreach.

To date, the Foundation has confirmed matches with archived eugenics records to 161 individuals in 57 counties, including 146 living victims. Foundation Executive Director Charmaine Fuller Cooper said the increase reflects discovery of cases in which multiple siblings and entire families were sterilized.

Fuller Cooper noted that time is not on the side of aging victims. An updated estimate from the N.C. State Center for Health Statistics earlier this month revised down the number of likely living victims from about 1,500 to 2,000 to about 1,350 to 1,800.

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Gov. Perdue wants compensation for eugenics victims

N.C. eugenics compensation out for now

Victims of North Carolinas former eugenics program will have to wait for compensation from the state.

Legislators recently approved a $20 billion budget that excluded funding for eugenics programs. The new budget goes into effect July 1, setting those who have pushed for state compensation back another budget year.

Gov. Beverly Perdue included $10 million in her budget proposal to go towards $50,000 lump sum payments for verified living victims and continued operations of the N.C. Justice for Sterilization Victims Foundation to provide outreach and clearinghouse services. A bipartisan group of legislators in the House approved Perdues proposal to compensate living victims, but the package did not make the Senate budget.

I think when it got down to it on the Senate side there were two things that happened: First, belief that the budget was so tight this year that some of Republican majority didnt feel as if this was a year to begin that process, said Sen. Floyd McKissick, D-Durham. Then, there is a group that feels an apology itself would be sufficient. They believe it was a terrible thing, but theyre afraid to go down the path of compensating victims.

The Governors Eugenics Compensation Task Force found that 7,600 North Carolinians many of whom were poor, sick or disabled were sterilized by force or coercion under the authorization of the states Eugenics Board from 1929-74.

Survivors told gut-wrenching stories of being robbed by the state of the opportunity to bear children at public meetings held by the Task Force in the past year.

Elaine Riddick, a Winfall, N.C., native, has been one of the most vocal victims. Riddick said she was sterilized after giving birth to a son as the result of being raped at age 13. She had health complications, but didnt find out about the sterilization until a doctor told her she had been butchered, when she was trying to conceive when she married at age 19.

Females made up 85 percent of sterilization victims in North Carolina. Blacks and Native Americans made up 40 percent, according to the task forces report. Task force researchers found some victims or their families were threatened with losing welfare benefits.

Don Akin, a statistician for State Center for Health Statistics, estimated that there were between 1,500 and 2,000 living victims at a task force meeting last summer.

The N.C. Justice for Sterilization Foundation verified 161 victims in 57 counties, including 146 living victims.

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N.C. eugenics compensation out for now

Forced sterilization compensation denied

Victims of a eugenics program in NorthCarolina from 1929 to 1974 were potentially going to receive compensation, up to$50,000 each, but state senators recently rejected the plan. Some claim the budgetsimply can't afford the estimated cost of $10million in a challenging economy.

CNN's Elizabeth Cohen looked into what is included in the $20 billion budget bill. She foundthere's more than $1 million going to organizations like a private culinary school, anOyster Sanctuary, the Grape Growers Council and the Transportation museum. There was more than $400,000 set aside to fund anupcoming gubernatorial inauguration and $5 million wasbudgeted for undisclosed purposes that can only be described as "economicdevelopment" projects.

Cohen says some lawmakers in N.C. are wary of offeringcompensation to sterilization survivors because it could set an expensive precedent for others who feel they've been treated unjustly by the state.Opponentsdraw parallels between the compensation of sterilization victims andthat of the descendents of slaves.

Legislators who supportpayment to eugenics victimspledged to continue to work toward justice for them.

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Forced sterilization compensation denied

Eugenics verification program suspended

Published 11:14am Friday, June 22, 2012

RALEIGH Without funding the process cannot continue.

Due to the joint budget agreement to exclude funding for compensation for victims of the states former Eugenics Board program, as well as continuation funding for operation of the N.C. Justice for Sterilization Victims Foundation, the Foundation has suspended intake of new victim verification requests.

The House approved legislation earlier this month that reflected Gov. Bev Perdues call to pay $50,000 lump sum compensation to living victims, as well as funding for the Foundations continued operation and expanded outreach. House Speaker Thom Tillis restated his personal support for House Bill 947, but added: There is a very strong message from the Senate that they are not prepared to take it up this year.

Foundation Executive Director Charmaine Fuller Cooper said the Foundation must curtail intake requests because its current operational funding is scheduled to expire on June 30, the end of the fiscal year. Other operational matters will be addressed soon.

The Foundation confirmed an increase in the number of verified victims, which counts 161 individuals in 57 counties, including 146 living victims. Fuller Cooper said the increase reflects cases of multiple siblings and entire families being sterilized. One of those victims resides in Hertford County, where 106 sterilization procedures (the 10th highest in the state) were performed during the peak years of the program (1946-1968).

Cooper noted that time is not on the side of aging victims. An updated estimate from the N.C. State Center for Health Statistics this month revised down the number of likely living victims from about 1,500 to 2,000 to about 1,350 to 1,800.

As of June 20, Lenoir County continues to have the highest number of verifications with 24 matches to N.C. Eugenics Board records. Mecklenburg, which had the highest number of procedures of any North Carolina county, follows with 13 verifications, then Wake with 11.

The N.C. Eugenics Board implemented a program of involuntary sterilization that took place in all 100 counties between 1929 and 1974. By the end of the program, nearly 7,600 documented people were sterilized.

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Eugenics verification program suspended

Lawmakers reject eugenics compensation

RALEIGH, N.C., June 21 (UPI) -- North Carolina's failure to approve a plan to compensate victims of forced sterilization has devastated survivors, the head of a victims' organization said.

Republicans in the North Carolina Senate turned down a House plan Wednesday to give $50,000 to each surviving victim of the state's decades-long sterilization program, The (Raleigh, N.C.) News & Observer reported.

The plan hit a dead end during negotiations between the House and the Senate.

Executive Director Charmaine Fuller Cooper of the N.C. Justice for Sterilization Victims Foundation said the Legislature's failure to approve a compensation plan has "really devastated victims."

"Even though they are 80, 90 years old they remember it vividly. They had to reopen old wounds," she said. "They're angry and they have justification in how they feel."

North Carolina began one of the most active eugenics programs in the country in 1929 when a state board ordered sterilization for poor, feeble-minded, mentally diseased or people likely to have disabled children.

The program continued until 1974.

Cooper's foundation estimates 1,350 to 1,800 people were victims of the program

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Lawmakers reject eugenics compensation

No money for eugenics compensation in budget, local victim not giving up hope

Submitted by Marissa Jasek on Wed, 06/20/2012 - 10:42pm.READ MORE: No money for eugenics compensation in budget, local victim not giving up hope

WILMINGTON, NC (WWAY) -- Compensation for victims of the North Carolina eugenics program was cut from next year's budget. Victims of forced sterilization were supposed to get $50,000 each after a panel approved a $10 million compensation package.

A few weeks ago, the first serious proposal to compensate eugenics victims seemed like a done deal. Wednesday, victims learned the Senate chose leave the money out of next year's budget.

In the end House Speaker Thom Tillis simply could not convince his Republican colleagues in the Senate to sign off on the plan to compensate eugenics victims.

"I said if eugenics didn't occur it would be a personal failure, and at this point it is, and it's something Ill continue to work on," Tillis said.

"There was no ability to develop consensus on one path forward with reference to eugenics," Senate President Pro Tem Phil Berger said. "So for the sake of the budget deal, the $10 million compensation package that was decades in the making was sacrificed."

Brunswick County resident Elnora Mills was sterilized at age 16 and found out two years later while trying to get pregnant. She was devastated Wednesday after hearing the news, but was too sick to go on camera. She now suffers from thyroid cancer.

"I wanted a boy and a girl," Mills said last week during an interview. "Now I don't have that, and I don't have no grandchildren. Just two little baby dogs and my husband."

The NC Justice for Sterilization Victims Foundation has verified 146 living victims. Many, like Mills, are sick and aging fast. According to the Associated Press, the foundation said Wednesday that they must end its work because its funding expires June 30. Legislators did not include any money in the state budget for the foundation.

WWAY reached out to Sen. Thom Goolsby (R-9th District) for comment. He did not return our calls. Mills says though she is not surprised this happened, she is not giving up hope.

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No money for eugenics compensation in budget, local victim not giving up hope

Eugenics victims must wait even longer for compensation

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Eugenics victims must wait even longer for compensation

Eugenics victims say they will keep fighting for compensation

CHARLOTTE, N.C.

Victims of North Carolinas forced sterilization program say they will fight to get compensation that will not be coming from the state legislature.

"They knew. They knew they was wrong, said Janice Black, who was still a teenager when she had the operation.

It took almost 40 years and the encouragement of her friend and legal guardian, Sadie Long, for Black to come forward as the first person in Charlotte say she had been in the eugenics program that may have sterilized thousands of people.

"She didn't realize what she was signing because no one explained to her what the legal papers were," Long said Thursday.

Gov. Bev Perdue had proposed paying victims a lump sum of $50,000 in compensation for their suffering. When lawmakers voted Wednesday on a budget that left that compensation package out, Long was disappointed.

"There are a lot of things in life you cannot change, and a lot of things we can't do anything about and I understand that. But when you have the power to make some differences, you should -- to show the people that you care enough about them," she said.

The vote also took away funding for the state agency that has helped victims of the sterilization program.

The agency has identified 161 victims and said there could be thousands more, but without money, the agency has stopped taking information from new potential victims.

But Black and Long are not giving up.

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Eugenics victims say they will keep fighting for compensation

Eugenics Q&A

Q: Why did it happen?

A: Supporters of eugenics believed that "defective" humans could be weeded out of the population. Scientists discredited the assumption by the 1930s, and most states ceased their programs.

The North Carolina program, however, expanded in the 1950s and 1960s, partly because out-of-state doctors, professors and other eugenics supporters were seeking a testing ground for a new national campaign they hoped would sterilize millions of Americans. Specifically, a Princeton, N.J.-based group known as Birthright formed in the mid-1940s.

The group sought states with low numbers of Catholics, according to documents in the Social Welfare History Archives at the University of Minnesota. The Catholic church historically opposed eugenics and any artificial means of birth control.

One of the leading promoters of the North Carolina eugenics program was Dr. Clarence Gamble, a Boston doctor and heir to the Proctor & Gamble fortune. He helped form Birthright and was the driving force behind the national campaign.

Gamble convinced his brother Cecil Gamble to help, and in December 1944, the Gamble Family Trust made a $10,000 donation to Birthright, which would be the equivalent to about $125,000 today.

Clarence Gamble didn't have a role in Proctor & Gamble, and while Cecil Gamble was on the board, the company said last year the donation was personal and in no way reflected the company's opinion.

Birthright later changed its name to the Human Betterment Association. They had a national office in New York and loosely affiliated chapters in North Carolina, Georgia, Iowa, Arkansas and Texas. Some of the chapters were short-lived, but the one in North Carolina operated for almost 30 years.

Q: How was the eugenics campaign promoted?

A: Gamble hired a New York City advertising firm to help sell the campaign. Leading journalists, along with some doctors and professors, voiced support, too.

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Eugenics Q&A

State legislators offer $20.2B budget without eugenics provision

Chris Seward - cseward@newsobserver.com

N.C. Senate Pro-Tem Phil Berger, left, and N.C. House Speaker Thom Tillis announce a joint budget during a press conference held Wednesday, June 20, 2012 at the Legislative Building in Raleigh.

House and Senate leaders presented a $20.2 billion budget Wednesday that the chambers will vote on this week.

The budget includes 1.2 percent raises for state employees and teachers, and a 1 percent cost of living increase for state retirees.

A $10 million plan to compensate state eugenics victims did not make it in to the budget. Senate leader Phil Berger said there was not support in his chamber for payments. The compensation effort is likely dead this year.

House Speaker Thom Tillis said he considered the inability to get eugenics funding a personal failure.

Its something Ill continue to work on, he said.

The budget includes portions of the education plan Berger pushed, but does not end teacher tenure.

The budget includes more money in anticipation of higher Medicaid costs. Rep. Nelson Dollar said legislators asked for a recalculation of costs for inflation and additional use of the government insurance program for the poor and disabled after state health officials told them last week that a $205 million budget shortfall this year had grown by another $75 million.

Legislators want better management of Medicaid and its budget, one of the most unpredictable elements of the state spending plan. Every time we hear a number from the department, it seems to be changing, said Dollar, a Cary Republican.

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State legislators offer $20.2B budget without eugenics provision

No money for eugenics victims in N.C. budget deal

RALEIGH (AP) A group set up to help people sterilized against their will in North Carolina is halting its efforts to find more victims.

The N.C. Justice for Sterilization Victims Foundation said Wednesday the group must end its work because its funding expires June 30. Legislators did not include any money in the state budget for the foundation or to compensate the victims of the decades-old sterilization program.

The foundation says it has now verified 161 victims, including 146 living victims.

The foundation also says the number of likely living victims is now estimated at between 1,350 to 1,800 people, instead of the previous 1,500 to 2,000 victims.

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No money for eugenics victims in N.C. budget deal

No money for eugenics victims

RALEIGH (AP) Victims of a decades-old forced sterilization program will have to wait on compensation because legislators did not include any money for them in a state budget deal, in part because Republican leaders could not agree on how to respond to the victims.

North Carolina was the first state in the country to tackle the question of how much to give victims of the program, which lasted from 1929 to 1974 and sterilized more than 7,600 people. The program was aimed at creating a better society by weeding out people who were deemed feeble-minded, many of them poor women.

The state House had agreed to provide $50,000 to victims who were alive as of March 1, 2010, but the effort faltered in the Senate. Many Republicans raised questions about the potential aggregate cost of providing $50,000 to each living victim and whether offering compensation would open the door to other groups of people to seek damages for previous misguided activities by the state.

"I think there's a very strong message from the Senate that they're not prepared to take it up this year," House Speaker Thom Tillis, R-Mecklenburg, told reporters today in announcing details of next year's proposed $20.2 billion budget agreement. The two chambers will vote on the compromise later this week before it goes to the governor.

Tillis spoke passionately for the compensation, taking the unusual step during floor debate earlier this month to turn over the proceedings to someone else so he could speak. He has said that a lack of compensation would be a personal failure on his part.

"It's something that I'll continue to work on," Tillis said.

The compensation also had the support of Democratic Gov. Bev Perdue.

One of the most outspoken victims, Elaine Riddick of Atlanta, said she was angry with the Senate. Riddick was 14 years old when she said she was raped and then sterilized after giving birth to a son.

"I have given North Carolina a chance to justify what they had wronged," she said, adding that she plans legal action on behalf of herself and other victims, including those who have died. "I gave them up until the last moment, but now I have no other choice. These people here don't care about these victims. ... I will die before I let them get away with this."

State officials have estimated that 1,500 to 2,000 of the victims are still alive. They have verified 132 victims, of whom 118 are living.

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No money for eugenics victims

What caused NC to have one of the nation's largest post-World War II eugenics programs?

Q: WHAT HAPPENED IN NORTH CAROLINA? A: Under the state's eugenics program, which began in 1929, more than 7,600 people underwent sterilizations. Some procedures were forced to weed out the "feebleminded" while others were a voluntary form of birth control.

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What caused NC to have one of the nation's largest post-World War II eugenics programs?

Eugenics shadow still 'looms large,' historian says

Alexandra Stern is a University of Michigan historian of medicine and expert on eugenics who lectured at the University of Houston this spring on disability rights. The author of the forthcoming "Telling Genes: The Story of Genetic Counseling in America," she spoke with Chronicle medical reporter Todd Ackerman after the lecture about the limitations of genetic medicine, whether to take advantage of for-profit company genetic tests and how eugenics didn't die out with the Holocaust.

Q: In the history of medicine, how is the early 21st century likely to be remembered? Is this the genetic era, or is that still to come?

A: The genetic era has begun, but the big question is what we do with the information we now have to help people - to what extent will it lead to cures and more effective therapies? History shows the expectations and promise of a new era's technology are often much greater than what ends up being delivered.

Q: So you think we're likely to be disappointed?

A: Unfortunately, yes. We're a society in which people are interested in their DNA, how genetics affects them, but also want quick solutions, primed by the great progress we've seen in medicine from, for instance, vaccines and antibiotics. But those magic bullets don't translate well to genetic medicine. I don't want to come across as suggesting there won't be great outcomes, but the idea that we'll simply be able to decode the genome, tailor medicines to a particular person based on their genome and cure chronic disease I think there will be a lot of unmet expectations along those lines.

Q: How much are people receiving genetic diagnoses at this point?

A: Genetic tests or diagnoses are being offered in more and more areas of clinical medicine - from neurology to cardiology to oncology. But you're probably talking about those for-profit companies doing genomic testing that return a whole scorecard of probabilities of developing certain conditions.

I think people are increasingly seeking those out and that the problem is that what they get back is unfiltered. People not only need help deciphering their information, they also need help, from a genetic counselor, dealing with the psychological decision-making quandaries they face as a result of genetic testing, how to cope if you have a higher-than-average probability of developing, say, Alzheimer's.

Q: Has enough attention been paid to ethical questions raised by the coming genetic era?

A: It depends on whom you're talking about. Discussions tend to be very fragmented: bioethicists amongst themselves; scientists amongst themselves; disability rights people amongst themselves. But as a society are we having broad-based discussions about the ethical implications, what the priorities should be and what the changes mean for people with disabilities? I don't think so.

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Eugenics shadow still 'looms large,' historian says

Sunday conversation: Historian says shadow of eugenics 'looms large'

Alexandra Stern is a University of Michigan historian of medicine and expert on eugenics who lectured at the University of Houston this spring on disability rights. The author of the forthcoming "Telling Genes: The Story of Genetic Counseling in America," she spoke with Chronicle medical reporter Todd Ackerman after the lecture about the limitations of genetic medicine, whether to take advantage of for-profit company genetic tests and how eugenics didn't die out with the Holocaust.

Q: In the history of medicine, how is the early 21st century likely to be remembered? Is this the genetic era, or is that still to come?

A: The genetic era has begun, but the big question is what we do with the information we now have to help people - to what extent will it lead to cures and more effective therapies? History shows the expectations and promise of a new era's technology are often much greater than what ends up being delivered.

Q: So you think we're likely to be disappointed?

A: Unfortunately, yes. We're a society in which people are interested in their DNA, how genetics affects them, but also want quick solutions, primed by the great progress we've seen in medicine from, for instance, vaccines and antibiotics. But those magic bullets don't translate well to genetic medicine. I don't want to come across as suggesting there won't be great outcomes, but the idea that we'll simply be able to decode the genome, tailor medicines to a particular person based on their genome and cure chronic disease I think there will be a lot of unmet expectations along those lines.

Q: How much are people receiving genetic diagnoses at this point?

A: Genetic tests or diagnoses are being offered in more and more areas of clinical medicine - from neurology to cardiology to oncology. But you're probably talking about those for-profit companies doing genomic testing that return a whole scorecard of probabilities of developing certain conditions.

I think people are increasingly seeking those out and that the problem is that what they get back is unfiltered. People not only need help deciphering their information, they also need help, from a genetic counselor, dealing with the psychological decision-making quandaries they face as a result of genetic testing, how to cope if you have a higher-than-average probability of developing, say, Alzheimer's.

Q: Has enough attention been paid to ethical questions raised by the coming genetic era?

A: It depends on whom you're talking about. Discussions tend to be very fragmented: bioethicists amongst themselves; scientists amongst themselves; disability rights people amongst themselves. But as a society are we having broad-based discussions about the ethical implications, what the priorities should be and what the changes mean for people with disabilities? I don't think so.

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Sunday conversation: Historian says shadow of eugenics 'looms large'