Family need to raise 120K by September for lifesaving treatment for 11-year-old – Cheshire Live

The family of a brave 11-year-old Wistaston boy needs to raise 120,000 by September so he can have lifesaving treatment in Asia to stop a rare form of bone cancer returning.

Georgy Capener was diagnosed with the highly malignant Ewings Sarcoma after a fall in a friends back garden on Easter Sunday in 2018.

Since then the plucky Wistaston Church Lane pupil has undergone numerous rounds of high dose aggressive chemotherapy and radiotherapy.

As a result of the treatment he lost his right arm which has been replaced a titanium prosthesis.

Georgy went into remission in March of last year and life returned to a semblance of normality for the Crewe boy, his mum Helen, dad Richard, and sisters Ellie, 18, and Chloe, 13.

But in April this year the family were dealt another devastating blow when they learned the cancer had returned - this time in Georgys left sinus, just under his eye socket and in the back of his nose.

Helen told CheshireLive: Everything had been going really well and then there was the impact of the coronavirus pandemic so one scan [to check Georgy] was moved further on but we never got to it because he started having really painful headaches. I knew something wasnt right.

Georgys parents were told that, because of the location of the tumour, there was a chance he could lose his eyesight or suffer a stroke during the biopsy he needed.

Helen told how, at first, she didnt want him to have the biopsy, but she knew he had to.

We didnt know if he was going to come out with his eyesight or have a stroke but he came through it, she said. Hes so brave, hes been so brave throughout.

Georgy, who is a passionate Liverpool fan, is now undergoing chemotherapy and radiotherapy again.

The tumour cannot be removed surgically because of its location.

But the vital stem cell therapy which is essential to ensure he can live a normal, healthy life and prevent the cancer returning at a later stage costs 130,000 and is not available for Georgy on the NHS.

Helen said: After lengthy discussions with a stem cell transplant hospital in a top medical treatment centre in Thailand, we are thrilled that they are willing to accept Georgy.

The transplant will involve removing the faulty mother cell and harvesting new purified cells from a donated umbilical cord into his body to stop the cancer from returning. These procedures have very high success rates.

Georgy is due to finish his sixth and final round of chemotherapy at the beginning of September.

For the stem cell treatment to be successful the procedure would have to start immediately after that to ensure the cancer doesnt return straight away.

The family has set up a JustGiving appeal to raise the funds needed to save their little boys life. They need to raise 120,000 by the beginning of September.

Helen said: We set it up in the hope that we can raise some of this amount to help save our sons life. It is our only realistic option and, for the first time in a long time, we can be positive and see some sort of future.

If you can help please donate by visiting JustGiving here.

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Family need to raise 120K by September for lifesaving treatment for 11-year-old - Cheshire Live

Peripheral Nerve Repair Devices Market Research Report by Device, by Application, by End User – Global Forecast to 2025 – Cumulative Impact of…

New York, July 29, 2020 (GLOBE NEWSWIRE) -- Reportlinker.com announces the release of the report "Peripheral Nerve Repair Devices Market Research Report by Device, by Application, by End User - Global Forecast to 2025 - Cumulative Impact of COVID-19" - https://www.reportlinker.com/p05941595/?utm_source=GNW

The Global Peripheral Nerve Repair Devices Market is expected to grow from USD 5,396.43 Million in 2019 to USD 11,283.48 Million by the end of 2025 at a Compound Annual Growth Rate (CAGR) of 13.08%.

Market Segmentation & Coverage:This research report categorizes the Peripheral Nerve Repair Devices to forecast the revenues and analyze the trends in each of the following sub-markets:

"The Neurostimulation & Neuromodulation Device is projected to witness the highest growth during the forecast period"

Based on Device, the Peripheral Nerve Repair Devices Market studied across Biomaterial and Neurostimulation & Neuromodulation Device. The Biomaterial further studied across Nerve Conduit, Nerve Connector, Nerve Protector, and Nerve Wrap. The Neurostimulation & Neuromodulation Device further studied across External Neurostimulation Device and Internal Neurostimulation Device. The Biomaterial commanded the largest size in the Peripheral Nerve Repair Devices Market in 2019. On the other hand, the Neurostimulation & Neuromodulation Device is expected to grow at the fastest CAGR during the forecast period.

"The Nerve Grafting is projected to witness the highest growth during the forecast period"

Based on Application, the Peripheral Nerve Repair Devices Market studied across Direct Nerve Repair/Neurorrhaphy, Nerve Grafting, Neurostimulation & Neuromodulation Surgery, and Stem Cell Therapy. The Direct Nerve Repair/Neurorrhaphy further studied across Epineural Repair, Group Fascicular Repair, and Perineural Repair. The Nerve Grafting further studied across Allograft, Autograft, and Xenograft. The Stem Cell Therapy commanded the largest size in the Peripheral Nerve Repair Devices Market in 2019. On the other hand, the Nerve Grafting is expected to grow at the fastest CAGR during the forecast period.

"The Ambulatory Surgery Center is projected to witness the highest growth during the forecast period"

Based on End User, the Peripheral Nerve Repair Devices Market studied across Ambulatory Surgery Center and Hospital & Clinic. The Hospital & Clinic commanded the largest size in the Peripheral Nerve Repair Devices Market in 2019. On the other hand, the Ambulatory Surgery Center is expected to grow at the fastest CAGR during the forecast period.

"The Asia-Pacific is projected to witness the highest growth during the forecast period"

Based on Geography, the Peripheral Nerve Repair Devices Market studied across Americas, Asia-Pacific, and Europe, Middle East & Africa. The Americas region surveyed across Argentina, Brazil, Canada, Mexico, and United States. The Asia-Pacific region surveyed across Australia, China, India, Indonesia, Japan, Malaysia, Philippines, South Korea, and Thailand. The Europe, Middle East & Africa region surveyed across France, Germany, Italy, Netherlands, Qatar, Russia, Saudi Arabia, South Africa, Spain, United Arab Emirates, and United Kingdom. The Americas commanded the largest size in the Peripheral Nerve Repair Devices Market in 2019. On the other hand, the Asia-Pacific is expected to grow at the fastest CAGR during the forecast period.

Company Usability Profiles:The report deeply explores the recent significant developments by the leading vendors and innovation profiles in the Global Peripheral Nerve Repair Devices Market including Axogen Inc., Baxter International, Boston Scientific Incorporation, Cyberonics Inc., GlaxoSmithKline Pharmaceuticals Ltd., Integra LifeSciences Corporation, Medovent GmbH, Medtronic PLC, NeuroMetrix, Inc., Orthomed S.A.S., Polyganics B.V., Renerva, LLC,, St. Jude Medical, Stryker Corporation,, Synovis Micro Companies Alliance, Inc., and Toyobo Co., Ltd..

FPNV Positioning Matrix:The FPNV Positioning Matrix evaluates and categorizes the vendors in the Peripheral Nerve Repair Devices Market on the basis of Business Strategy (Business Growth, Industry Coverage, Financial Viability, and Channel Support) and Product Satisfaction (Value for Money, Ease of Use, Product Features, and Customer Support) that aids businesses in better decision making and understanding the competitive landscape.

Competitive Strategic Window:The Competitive Strategic Window analyses the competitive landscape in terms of markets, applications, and geographies. The Competitive Strategic Window helps the vendor define an alignment or fit between their capabilities and opportunities for future growth prospects. During a forecast period, it defines the optimal or favorable fit for the vendors to adopt successive merger and acquisition strategies, geography expansion, research & development, and new product introduction strategies to execute further business expansion and growth.

Cumulative Impact of COVID-19:COVID-19 is an incomparable global public health emergency that has affected almost every industry, so for and, the long-term effects projected to impact the industry growth during the forecast period. Our ongoing research amplifies our research framework to ensure the inclusion of underlaying COVID-19 issues and potential paths forward. The report is delivering insights on COVID-19 considering the changes in consumer behavior and demand, purchasing patterns, re-routing of the supply chain, dynamics of current market forces, and the significant interventions of governments. The updated study provides insights, analysis, estimations, and forecast, considering the COVID-19 impact on the market.

The report provides insights on the following pointers:1. Market Penetration: Provides comprehensive information on the market offered by the key players2. Market Development: Provides in-depth information about lucrative emerging markets and analyzes the markets3. Market Diversification: Provides detailed information about new product launches, untapped geographies, recent developments, and investments4. Competitive Assessment & Intelligence: Provides an exhaustive assessment of market shares, strategies, products, and manufacturing capabilities of the leading players5. Product Development & Innovation: Provides intelligent insights on future technologies, R&D activities, and new product developments

The report answers questions such as:1. What is the market size and forecast of the Global Peripheral Nerve Repair Devices Market?2. What are the inhibiting factors and impact of COVID-19 shaping the Global Peripheral Nerve Repair Devices Market during the forecast period?3. Which are the products/segments/applications/areas to invest in over the forecast period in the Global Peripheral Nerve Repair Devices Market?4. What is the competitive strategic window for opportunities in the Global Peripheral Nerve Repair Devices Market?5. What are the technology trends and regulatory frameworks in the Global Peripheral Nerve Repair Devices Market?6. What are the modes and strategic moves considered suitable for entering the Global Peripheral Nerve Repair Devices Market?Read the full report: https://www.reportlinker.com/p05941595/?utm_source=GNW

About ReportlinkerReportLinker is an award-winning market research solution. Reportlinker finds and organizes the latest industry data so you get all the market research you need - instantly, in one place.

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Peripheral Nerve Repair Devices Market Research Report by Device, by Application, by End User - Global Forecast to 2025 - Cumulative Impact of...

How Kaiser Permanente fights inequity in the face of COVID-19 – American Medical Association

Long-standing systemic health and social inequities have put members of racially and ethnically minoritized and marginalized communities at an increased risk for severe illness from COVID-19. With the disproportionate impact the pandemic has on Black, Latinx and other underserved communities, Kaiser PermanenteanAMA Health System Program Partnersends a clear message that the health program stands with those fighting for equity and justice.

We have a long-standing commitmentits in our DNAthat equity is important to us, said Edward M. Ellison, MD, a physician executive leading Permanente Medical Groups in Georgia and Southern California, and co-CEO of The Permanente Federation. It always has been equity, diversity and inclusion, and we recognize that there's more that we can do, and we want to do more.

In a recent call with Dr. Ellison, we discussed what Kaiser Permanente is doing to address inequities in health care. Here is what he had to say.

AMA: What inequities are driving the disproportionate impact of COVID-19 on Black and Latinx communities?

Dr. Ellison: Nationally it has been recognized that Black and Latinx communities have historically had increased challenges with access to health care in generalthe availability of proper nutrition, higher rates of preexisting conditions that we know predispose you to more significant outcomes with COVID-19, like heart disease, respiratory disease, diabetes, and there are other socioeconomic and environmental factors.

We also know the impact of ACEs [adverse childhood events] early in life and how that contributes to lifelong challenges with health, chronic stress, and what that can contribute to in terms of overall health.

In our country we've long had inequities in health care outcomes in Black, Latinx and underserved communities. COVID-19 has just exacerbated what we've observed in the past and highlighted the need to approach communities of color with targeted interventions to help us better serve and improve the outcomes, not just for COVID-19, but in all of the other areas.

Learn about five steps physicians can take to prioritize Black patients well-being.

AMA: What inspired Kaiser Permanentes 75-year commitment to equity and inclusion?

Dr. Ellison: I've been with the organization for 35 years and one of the things that drew meand kept me hereis I am inspired by the mission, vision and values of Kaiser Permanente. If you look at our mission, we are committed to providing high quality, affordable, accessible care for our members and the communities that we serve.

We have a history going back to the early days of Kaiser Permanente when Henry Kaiser declared that our hospitals would not be segregated. We want everyone to have equitable opportunities and recognized that with all thats going on in the country today, it was important to recommit. It was important to be public and make sure that all of our patients, our people, our communities knew where we stood. It was about how we've always had a long-standing commitment to closing gaps in health care inequities. We can always do better, but we've made a tremendous impact.

AMA: How do you help physicians and other health professionals maintain that commitment?

Dr. Ellison: One of the things that we have done is to embark on listening sessions. They have been powerful. I have appreciated the courage and the vulnerability of my Black colleagues and my Latinx colleagues who are sharing their experiences of discrimination and racism, and at times violence. There's so much for us to learn and so we want to use those learnings to help inform the actions that we take.

We participate in something called Hippocrates Circle, which includes our own physicians who have come from underserved populations and minority groups who found their own path through medicine to become physicians and overcame many obstacles. We affiliate with middle schools in underserved communities and students who self-identify as being interested in a career in medicine.

Kaiser Permanente sponsors fellowships for physicians to go into the community, identify need, and then help to address that need. There are many ways in which we try to help support our physicians and staff to stay connected to and understand how they can contribute and give back to the community.

We have something in Southern California called the Watts Counseling and Learning Center. It was founded in 1967, two years after the civil unrest in Watts and it started with just going out and meeting with mothers in the community.

We opened another facility, Baldwin Hills Crenshaw, in an underserved area in need of revitalization. We learned what they needed in the community and so when we built this facility, part of this almost nine-acre campus includes two and a half acres of green space and a two-mile walk.

They have this motto that health care is interwoven into people's daily lives, meeting people where they stand, and I think that's the philosophy that you take into making a difference in the communities. That particular facility was intentional40% of the contracts for building the building were to diverse businesses and companies owned by women, minorities, or veterans.

AMA: Are there different solutions for Latinx and Black communities, or does a broader solution work for all vulnerable communities?

Dr. Ellison: There are approaches that would be beneficial to all communities, including appropriate use of language, being culturally sensitive and responsive to different needs that different communities that we serve have, and understanding the impact of socioeconomic differences.

The cultural values for many Latinx patients and their families are gathering together, celebrating together, living in multi-generational households. But we know that is an added risk for COVID-19. We know that for the African American community, we have to work harder at building trust in the health care system because of past history.

We have to understand that there are actions we can take that are helpful, but it's not one size fits all. There are attributes beyond race that are impacted in terms of culture, socioeconomic conditions and educational background.

Learn about eight steps Kaiser Permanente is taking to suppress COVID-19.

AMA: During the COVID-19 pandemic with concerns about physical distancing, what ways have physicians continued to be involved in those communities?

Dr. Ellison: We've seen a tremendous acceleration of virtual care delivery of telemedicine both in terms of video and telephone, so understanding how you can meet the needs of the patient, even if it's virtually is really important. And those same cultural and language issues are just as important, if not more so.

Establishing a trusting relationship between the patient and the person providing care is really important and providing education to our physicians and other providers about how you can do that effectively, virtually. Then recognizing that not all of our members have access to virtual care.

Providing appropriate face-to-face care is still important but doing it in a safe way. Many of our patients want their care virtual right now for obvious reasons. And for those who need or desire face-to-face care, it's important that it's provided.

We worked hard to do outreach to our patients with communication about what's going on to reduce fear and uncertainty about the COVID virus, to get facts, to be as fact-based as possible, and to provide that in different languages so that we can make it easier for different communities to have the information that they need.

Learn more about helping patients put essential care ahead of COVID-19 fears.

AMA: Regarding staffing, how is Kaiser Permanente improving inclusiveness and diversity now and in the future?

Dr. Ellison: We're looking at how we recruit, how we develop individuals, how we provide opportunities for advancement. All of those are part of the work that we do, but I would say I'm very excited about the Kaiser Permanente School of Medicine.

In just a few weeks our first class of 50 students will be arriving. We took a very holistic approach in recruitment, so that we will be welcoming a class that does bring a diverse background and lived experiences.

We train a larger number of residents so after medical school, in a wide array of specialties, we have physicians being trained within our system and they're being exposed to the same vision, values and commitment in our organization.

It's also working with the communities and providing opportunities for minority-owned businesses to succeed. When we're contracting for services, were being intentional about providing opportunities from the communities that we serve.

AMA: Do you have any tips for other organizations that want to make a commitment to equity and inclusion?

Dr. Ellison: It starts with having a passionthat this is the right thing to do. I believe that it starts with the leadership of any organization. You have to create intentionality, be explicit in declaring what you value and why you value it. Create a safe space to execute on those values and create infrastructure that supports it and remove barriers to it.

The more of us that lean in together, the more successful that we'll be. But I do think it comes from also a place of humility knowing we don't have all the answers. It means listening to your peoplethey have the answers.

Whatever impact you can make, where you are with your opportunity, start there. Its about starting where you are and then reaching out and connecting. The more of us that do that, the more successful we'll be.

The AMA continues to compile criticalCOVID-19 health equity resourcesto shine a light on the structural issues that contribute to and could exacerbate already existing inequities. Physicians can also access the AMAsCOVID-19 FAQs about health equity in a pandemic.

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How Kaiser Permanente fights inequity in the face of COVID-19 - American Medical Association

Representative Bud Williams & Senator Nick Collins introduce Reparations Bill – BayStateBanner

Last week, legislators from opposite ends of the state filed a bill establishingthe Commonwealth Health, Economic, Education and Equity Recovery and Reconstruction Fund or CHEEERRS. Even before we learned of the economic and health inequities suffered by the Commonwealths Black and Latino residents exposed by COVID-19, we had ample evidence of the impact of yearsof systemic racial disparities that have been endured for far too long. This national and local reckoning presents a unique time for a reset. We begin the process with the filing of this bill.

State Representative Bud Williams (D-Springfield) and State Senator Nick Collins (D-Boston), have joined together to file this most bold piece of legislation. This bill supports close to $1 billion, identifies the source of funding, and establishes a separate independent bureau to oversee a comprehensive collection of services and programming directed to the targeted communities.

Even before the pandemic, our children, families, and businesses were struggling in what most would describe as a strong economy for everyone else. Its hard to imagine it could be worse when youre already hanging on by a thread. Yet, the pandemic has stretched the pain even further; our children are falling so far behind in school,were on pace to lose permanently much more than the projected 40% of Black and Latino business and weve represented more than 60% of the COVID-19 cases. stated Rep. Bud Williams. If there ever was a case to be made for a reset, for reparations, the time is now.

Among the highlights of the bill creates an independent bureau, support for families and children; a small business stabilization fund; support for returning citizens; a first in the nation resiliency service corps; and a process to review all the policies in the Executive Branch through a racial and social justice lens with an eye towards leveling the playing field.

After numerous conversations and listening sessions, I bear witness for those suffering due to the results of systemic racism, said Senator Nick Collins. It is impossible to miss and it is frightening to think as the dust eventually settles on the pandemic, it will likely be worse. It is clear, we must be intentional and bold in our efforts to tackle racial and economic injustice. This bill presents a real opportunity to address longstanding injustices, while providing assistance to communities who have been impacted the most by this pandemic. Stated Sen. Collins.

Weve seen corporate, spiritual and government leaders across the state posting Black Lives Matter signs on websites and issuing public statements of commitment to dismantle systemic racism, stated Horace Small, Founder and Director of the Union of Minority Neighborhoods. This bill is a huge step to making those words real.

Its no mystery to us that whether youre standing in Nubian Square in Roxbury or Mason Square in Springfield, the story is the same, our communities suffer the worse in nearly every health category, our children continue to learn in understaffed and under resourced school and our businesses are struggling stated Bishop Talbert Swan, President of the Springfield NAACP. Its unbelievable to think, as we begin to think about post pandemic life, that it could be worse. Its time to make the promise real.

There are also plans and activities happening across the state to create an external, sustained fund to complement and support the work of this bill. Were committed to a sustained effort stated Priscilla Flint Banks, Convenor of the Boston Black COVID-19 Coalition, a group of more than 70 organizations, businesses and individuals whove waged a fierce battle to ensure that resources are committed to Black and Latino neighborhoods, including contracting opportunities to for Black and Latino businesses. We spent 8 weeks to get mobile COVID-19 testing done in one neighborhood even after the state identified it as a hotspot! Black and Latino businesses got less than 2% of Bostons contracts and even less of the states contracts over the last 3 months. An extraordinary failure given that all bidding processes have been suspended since the Governor declared the health emergency in March! Weve earned a reset. The time is now. The CHEEERRS bill is a real first step!

Rep. Williams and Sen. Collins hope to move this bill on an expedited schedule.

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Representative Bud Williams & Senator Nick Collins introduce Reparations Bill - BayStateBanner

NJBIZ panel: Diversity is organic, but inclusion is intentional – NJBIZ – NJBIZ

At the intersection of the COVID-19 pandemic and the national conversation on systemic racism brought on by the killing of George Floyd and protests thereafter, awareness and acknowledgment brings credibility to an organization, Senior Vice President of Human Resources for Delta Dental of New Jersey and Delta Dental of Connecticut Claude Richardson explained during an NJBIZ webinar panel discussion on diversity in the workplace on Tuesday.

If you appear to be tone-deaf to whats going on, if you appear to be tone-deaf to the plight of others in your organization, youre going to lose credibility of your workforce that you understand what it is that theyre going through, what their needs are, and that you perhaps even have their best interests at heart, Richardson said.

Agudosi

Richardson was joined by fellow panelists Amy Flynn, human resources specialist for HR business Insperity; Hackensack Meridian Health Director Diversity and Inclusion Avonia Richardson-Miller; and Genova Burns LLC Partner Rajiv Parikh to discuss how diversity and inclusion have become centrally important in todays business world.

New Jersey Office of Diversity and Inclusion Chief Diversity Officer Hester Agudosi moderated the discussion.

D&I is at the forefront of everything and at the core of everything right now, more than ever, Richardson-Miller said, noting the disparate impact of COVID-19 on communities of color, specifically Black communities; and her and other CEOs responses to the killing of George Floyd.

Richardson-Miller

HMH Chief Executive Officer Robert Garrett put out a statement on Floyds death, unarmed at the hands of a police officer in Minneapolis, shortly after it happened. His statement was compassionate, Richardson-Miller said, and really acknowledged what was going on and [had] a level of empathy and cultural intelligence around what the team members within the organization were feeling. His statement wasnt just a statement, she said, importantly, he also made a commitment to action going forward.

Parikh noted that an organizations leadership team should have goals with their D&I work, rather than just conversations; and that the goals arent one size fits all.

Parikh

Everybody knows you have to have them and you should have them, but at the end of those conversations, what do you want to have as your goal? Do you want a more communicative workforce? Do you want less tension, he said. Theres a question [in the Q&A] about internal staff division Do you want to try to alleviate that type of staff division? I think that all of those goals can be accomplished just, you know, by creating kind of a custom methodology for your organization.

Flynn noted that, with COVID-19, it may seem hard for organizations to put a timeline to the implementation of D&I policies and programs.

I know some of our clients are overwhelmed and thinking, this is massive. How am I going to accomplish all of this? she said. Her advice? Start somewhere.

Be able to start with a couple of initiatives that we think, okay, I can start with this and then we keep growing, she said. But really being able to make that commitment.

Part of D&I is managers or employers making sure theyre amplifying diverse voices.

In the age of the perpetual Zoom meeting, Richardson noted that while someone might have something valuable and constructive to offer, being reserved and having others chime in might dissuade them from doing so. Richardson recommends managers go around the squares of any Zoom call, giving participants the opportunity to share what they wanted to but didnt get to.

Richardson

Especially if they know in your meeting thats a routine of yours on and they definitely dont miss the opportunity to contribute, he said. [It helps them] not to be tone-deaf whats going on and helping them to express kind of where do we stand as an organization? and making sure that we dont lose the voice of those that may not otherwise speak up in this type of environment is really important.

As many companies continue to work partially or fully remote, keeping employees connected to one another is a challenge. Flynn suggested that employers offer their employees the chance to come together for varied discussion groups, and shared that one of the employers she works with has started a book group.

After all, the business case for focusing on diversity and inclusion is manifold: According to census data, Agudosi noted that New Jersey is on track to be majority minority in 20 years, banks that had a higher percentage of women on their boards fared better than their peers during the financial downturn of 2008, and diverse companies are more adaptive and innovative than their counterparts.

Flynn

According to Flynn, close to 70 percent of job seekers now are seeking out employers that make D&I a priority.

A webinar attendee from a mid-size conservation-based nonprofit told the panelists during Q&A that his or her organization was having trouble recruiting Black and Latinx people, and asked what could be done to attract that talent.

Richardson-Miller asked them if they were reaching out to historically black colleges and universities (HBCUs), Hispanic-serving institutes, and Black MBAs or Latino MBAs.

What are your intentional efforts in going after this talent? I think that there just has to be a very thoughtful methodical and intentional approach and making sure that your recruitment efforts are targeting agencies and organizations where that talent exists and where you can connect with that talent, she said.

Everyone matters. Diversity is organic, but inclusion is intentional, Agudosi said.

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NJBIZ panel: Diversity is organic, but inclusion is intentional - NJBIZ - NJBIZ

The difference between conspiracies and disinformation – Fast Company

The COVID-19 pandemic has spawned an infodemic, a vast and complicated mix of information, misinformation, and disinformation.

In this environment, false narrativesthe virus was planned, that it originated as a bioweapon, that COVID-19 symptoms are caused by 5G wireless communications technologyhave spread like wildfire across social media and other communication platforms. Some of these bogus narratives play a role in disinformation campaigns.

The notion of disinformation often brings to mind easy-to-spot propaganda peddled by totalitarian states, but the reality is much more complex. Though disinformation does serve an agenda, it is often camouflaged in facts and advanced by innocent and often well-meaning individuals.

As a researcher who studies how communications technologies are used during crises, Ive found that this mix of information types makes it difficult for people, including those who build and run online platforms, to distinguish an organic rumor from an organized disinformation campaign. And this challenge is not getting any easier as efforts to understand and respond to COVID-19 get caught up in the political machinations of this years presidential election.

Rumors are, and have always been, common during crisis events. Crises are often accompanied by uncertainty about the event and anxiety about its impacts and how people should respond. People naturally want to resolve that uncertainty and anxiety, and often attempt to do so through collective sensemaking. Its a process of coming together to gather information and theorize about the unfolding event. Rumors are a natural byproduct.

Rumors arent necessarily bad. But the same conditions that produce rumors also make people vulnerable to disinformation, which is more insidious. Unlike rumors and misinformation, which may or may not be intentional, disinformation is false or misleading information spread for a particular objective, often a political or financial aim.

Disinformation has its roots in the practice of dezinformatsiya used by the Soviet Unions intelligence agencies to attempt to change how people understood and interpreted events in the world. Its useful to think of disinformation not as a single piece of information or even a single narrative, but as a campaign, a set of actions and narratives produced and spread to deceive for political purpose.

Lawrence Martin-Bittman, a former Soviet intelligence officer who defected from what was then Czechoslovakia and later became a professor of disinformation, described how effective disinformation campaigns are often built around a true or plausible core. They exploit existing biases, divisions, and inconsistencies in a targeted group or society. And they often employ unwitting agents to spread their content and advance their objectives.

Regardless of the perpetrator, disinformation functions on multiple levels and scales. While a single disinformation campaign may have a specific objectivefor instance, changing public opinion about a political candidate or policypervasive disinformation works at a more profound level to undermine democratic societies.

Distinguishing between unintentional misinformation and intentional disinformation is a critical challenge. Intent is often hard to infer, especially in online spaces where the original source of information can be obscured. In addition, disinformation can be spread by people who believe it to be true. And unintentional misinformation can be strategically amplified as part of a disinformation campaign. Definitions and distinctions get messy, fast.

Consider the case of the Plandemic video that blazed across social media platforms in May 2020. The video contained a range of false claims and conspiracy theories about COVID-19. Problematically, it advocated against wearing masks, claiming they would activate the virus, and laid the foundations for eventual refusal of a COVID-19 vaccine.

Though many of these false narratives had emerged elsewhere online, the Plandemic video brought them together in a single, slickly produced 26-minute video. Before being removed by the platforms for containing harmful medical misinformation, the video propagated widely on Facebook and received millions of YouTube views.

As it spread, it was actively promoted and amplified by public groups on Facebook and networked communities on Twitter associated with the anti-vaccine movement, the QAnon conspiracy theory community, and pro-Trump political activism.

But was this a case of misinformation or disinformation? The answer lies in understanding howand inferring a little about whythe video went viral.

The videos protagonist was Dr. Judy Mikovits, a discredited scientist who had previously advocated for several false theories in the medical domainfor example, claiming that vaccines cause autism. In the lead-up to the videos release, she was promoting a new book, which featured many of the narratives that appeared in the Plandemic video.

One of those narratives was an accusation against Dr. Anthony Fauci, director of the National Institute for Allergy and Infectious Diseases. At the time, Fauci was a focus of criticism for promoting social distancing measures that some conservatives viewed as harmful to the economy. Public comments from Mikovits and her associates suggest that damaging Faucis reputation was a specific goal of their campaign.

In the weeks leading up to the release of the Plandemic video, a concerted effort to lift Mikovitss profile took shape across several social media platforms. A new Twitter account was started in her name, quickly accumulating thousands of followers. She appeared in interviews with hyperpartisan news outlets such as The Epoch Times and True Pundit. Back on Twitter, Mikovits greeted her new followers with the message: Soon, Dr Fauci, everyone will know who you really are.

More recently, Sinclair Broadcast Group, which owns or operates 191 local television stations across the country, had planned to air an interview with Mikovits in which she reiterated the central claims in Plandemic. In airing this program, Sinclair would have used the cover and credibility of local news to expose new audiences to these falseand potentially dangerousnarratives. The company is reconsidering its decision after receiving criticism; however, the interview was reportedly posted for a time on the companys website and was aired by one station.

This background suggests that Mikovits and her collaborators had several objectives beyond simply sharing her misinformed theories about COVID-19. These include financial, political, and reputational motives. However, it is also possible that Mikovits is a sincere believer of the information that she was sharing, as were millions of people who shared and retweeted her content online.

In the United States, as COVID-19 blurs into the presidential election, were likely to continue to see disinformation campaigns employed for political, financial, and reputational gain. Domestic activist groups will use these techniques to produce and spread false and misleading narratives about the diseaseand about the election. Foreign agents will attempt to join the conversation, often by infiltrating existing groups and attempting to steer them toward their goals.

For example, there will likely be attempts to use the threat of COVID-19 to frighten people away from the polls. Along with those direct attacks on election integrity, there are likely to also be indirect effectson peoples perceptions of election integrityfrom both sincere activists and agents of disinformation campaigns.

Efforts to shape attitudes and policies around voting are already in motion. These include work to draw attention to voter suppression and attempts to frame mail-in voting as vulnerable to fraud. Some of this rhetoric stems from sincere criticism meant to inspire action to make the electoral systems stronger. Other narratives, for example unsupported claims of voter fraud, seem to serve the primary aim of undermining trust in those systems.

History teaches that this blending of activism and active measures, of foreign and domestic actors, and of witting and unwitting agents, is nothing new. And certainly the difficulty of distinguishing between these is not made any easier in the connected era. But better understanding these intersections can help researchers, journalists, communications platform designers, policymakers, and society at large develop strategies for mitigating the impacts of disinformation during this challenging moment.

Kate Starbird is an associate professor of human-centered design and engineering at the University of Washington. This article is republished from The Conversation under a Creative Commons license. Read the original article.

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The difference between conspiracies and disinformation - Fast Company

Creating a Tournament of Roses that celebrates the diversity of Southern California – OCRegister

History can be a powerful teacher, even when it involves a Rose Bowl queen.

Back in 1957, the Tournament of Roses named Joan Williams as Miss Crown City, the predecessor to the current Rose Queen. Then officials learned that she was African American and suddenly the city curtailed official duties of the honoree, according to an obituary for Williams, who died last year at age 86.

She was not invited to ride on a parade float. In fact, that year Pasadena decided against entering a float in the parade at all.

But in 2015 58 years later the city extended an apology and offered Williams an invitation to ride in the first float of the storied parade.

For 130 years, the spectacle on the first day of every new year has captured the attention of millions of people around the world. The parade was started as a showcase of sorts of the abundance provided by California weather, and also of its benefactors, the stalwart Pasadena scions who created it. For most of its history, the Tournament of Roses, which includes a foundation and committees that consist of volunteer members, reflected the epitome of Pasadenas old guard the white and male establishment.

In recent years, the organization has moved forward in fits and starts on its way to reflecting the Pasadena of today diversifying the ranks of volunteers, committee members and staff who keep it going. Its membership has grown to include more African Americans, Latinx and Asians, according to numbers provided by the organization.

As the community has become more diverse, so have the efforts to make the membership reflect that, says Tournament of Roses CEO David Eads.

Those efforts include adding at-large committee members who are ethnically diverse, says Laura Farber, the organizations immediate past president. Farber was the organizations first Latinx president; her term ended with the most recent festivities in January. She now chairs the committee that oversees football game management, a position never before held by a woman.

The committees are the pipeline by which executives, officers and presidents are promoted. All those who have served as president have come up through the committee system after years of service. The at-large members are chosen for their diversity.

I think that was intentional, observes Farber, an immigrant from Buenos Aires. We can at least make sure we are providing an opportunity to people from a variety of viewpoints. I credit the at-large positions for diversifying the organization.

The Tournament of Roses 935 members now number more women than men and are younger 43 is the average age of the latest class, Eads says. Its members are 11% African American, 20% Latinx and 20% Asian. Pasadena residents overall are almost 10% African American, 34.4% Latinx, 16% Asian and 36.5% white.

The committees oversee all the activities and the foundation that donates $200,000 to local nonprofits annually. They are what helped promote the Tournament of Roses first Asian American president in 2014, the first African American president two years ago and Farber one year ago.

An attorney with Pasadena law firm Hahn & Hahn, Farber says she first learned of opportunities to volunteer with the Tournament of Roses from other attorneys at the firm. She had never thought about it because she had the impression she would not be welcome.

Of course I would have never envisioned people like myself getting involved, she says. Im glad that I was encouraged to do so.

Farber has served on nine committees over 26 years and believes its important for young people from all walks of life and all socio-economic backgrounds to see people of color in prominent positions. With that in mind, she made a point to visit all of Pasadenas public schools and different community groups to invite them to visit the Rose Bowl headquarters while she was president.

You need experience to lead, she says. It took time. It took an investment. We are reaping the fruits now of the work we did over many years to bring this change.

Farbers notable contributions to the organization included bringing on three Latinas as grand marshals of the parade, something that had never been done before. Actresses Rita Moreno and Gina Torres joined Olympic gymnast Laurie Hernandez for the festivities this past January.

Farber also opened up the parade entries to a more global audience, which brought in bands and floats from countries that had never participated before.

Farber and Eads made it their goal to broaden the organizations membership, to bring in many different groups within the community, not just ethnically diverse groups and women.

Farber says she wants people from all economic classes to feel welcome to the festivities and to Wrigley Mansion, the Tournament of Roses headquarters. She has joined committees with the local NAACP to help businesses during the current economic downturn.

Farber wants to encourage participation so that more people who represent the community at large move into executive positions. Many members of the Tournament of Roses committees come from nonprofit organizations that work to support the community and create an overlap of interests.

The foundation grants $200,000 annually to nonprofit groups offering programs in education, sports and recreation, and the visual and performing arts. It offers a scholarship for high school football players nationwide and funds local nonprofits in their fundraising efforts.

To increase participation, Eads says the organization has participated in community parades and events, such as the Black History Parade, the Latino Heritage Parade and the San Gabriel Valley Pride Festival. It has been a deliberate effort, he says.

We continue to evolve. We try to keep a balance between holding on to our values. The joy and excitement of the Tournament of Roses and our traditions are only enhanced when we have an inclusive membership, Eads says.

But while there has been progress in reflecting the community, that progress should not be taken for granted, says former Pasadena developer Jim Morris, who once protested the lack of diversity of the Rose Bowl with an actual roadblock of the coronation festivities. He and other activists persisted in efforts to bring awareness to what they saw as stagnation in getting the organization to better reflect the community.

Morris fears there are efforts to eliminate those at-large positions that helped elevate Farber, Gerald Freeny, the first African American president, and Richard Chinen, the first Asian American president.

Morris also believes the foundation can do a better job of supporting local communities of color rather than donating to organizations in economically well-off cities such as San Marino and La Caada Flintridge.

Along with the encouraging changes brought on by diversifying the membership, Morris hopes that diversity broadens and that more history of the event be known that, for instance, the land on which the Rose Bowl and the Wrigley Mansion reside was once owned by an African American.

Morris is encouraged, however, to see the recent demands for structural change in the country and believes it will benefit all people if these changes are enacted.

Theres a hope that this change is going to be meaningful, he says, adding that when more people are included in organizations such as the Tournament of Roses, everybody benefits.

Eads too looks forward to seeing the tournament continue to embrace and reflect all people of Southern California today. It makes for a better organization. We are stronger for it.

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Creating a Tournament of Roses that celebrates the diversity of Southern California - OCRegister

State hears testimony on closure of Holyoke Medical Center’s birthing center – GazetteNET

HOLYOKE When Jane Frey began working as a midwife in Holyoke in 1985, the citys infant mortality rate was the highest in the state.

As part of the Holyoke Infant Mortality Task Force, Frey and others worked with the Department of Public Health, or DPH, to take steps that significantly lowered that mortality rate. However, after Holyoke Medical Center recently announced that it intends to close its Birthing Center by Oct. 1, Frey is concerned that history might repeat itself.

I fear we are back to the beginning, Frey said Tuesday, speaking in front of the same state agency whose work with the task force led to the creation of the midwife practice at Holyoke Medical Center.

Freys comments came at a DPH hearing mandated as part of an essential service closure process that hospitals must complete before closing a unit. Holyoke Medical Center announced on May 29 that it planned to shutter its 13-bed obstetrics unit and 10-bassinet infant nursery services it had already temporarily ended in early April when it agreed to house patients from the Holyoke Soldiers Home during a massive coronavirus outbreak at that facility.

Beginning the hearing, HMC CEO Spiros Hatiras said that the medical center had previously closed birthing services in 1974 due to a low volume of births and that it only re-opened in 1993 because the hospital had lost contracts with two HMOs that insisted hospitals provide birthing services.

It was widely acknowledged that the reopening would be a risky move and would be unpopular with other providers in the area because there was no unmet need in the community for birthing services, Hatiras said.

Hatiras said that birthing volume has been below the hospitals target for nearly three decades and that a low volume does not allow providers to maintain their professional competencies. Hatiras also said the hospital has not received reports that patients, who are now being sent to Mercy Medical Center in Springfield, have had issues with accessing birthing services since the unit closed in April.

Holyoke Medical Center is only discontinuing birthing services at our facility, not all maternal services, Hatiras said. We have been and will continue to provide prenatal services, family planning services, GYN services and postpartum care.

Hatiras said the hospital has a transportation system for patients. He also said the hospital will continue to provide education, care and support for mothers and babies before and after birth, which he said are the most important factors for keeping infant mortality low.

Many speakers during the public hearing, however, expressed outrage over the decision to close the Birthing Center, the way the closure was handled and the effects they said it would have on the community.

I urge Mr. Hatiras and (head of womens services Marc) Zerbe to walk the two-mile climb from the Flats of Holyoke to the OB-GYN offices at Holyoke Medical Center, pushing a baby carriage or with other children in tow to see what it is like if you had no transportation, Frey said.

Frey added that when she recently called HMC to inquire about prenatal care, she was told there were only two OB-GYNs and one nurse midwife on staff, none of whom speak Spanish. She also said she was told obstetric care would be provided at HMC and that deliveries will be done at Mercy with providers patients have not met, she noted.

Many took issue with the way they said Birthing Center staffers were treated, which they said pointed to a systemic and intentional dismantling of midwifery and birthing services.

If the hospital had these concerns, never once did they truly share them with us, the people on the front lines, said Nina Kleinberg, a nurse midwife who worked at the practice from 1988 until 2019. Instead, they created a toxic atmosphere that made us want to leave, and thats why I dont trust their rationale.

Kleinberg was one of five former employees who spoke on the record for a Gazette investigation into the closure. The five women alleged that higher-ups engaged in bullying, intimidation and micromanagement of midwives and other staffers, pushing out many longtime employees in the process.

Despite what is being stated as low numbers, actually for our community hospital we were doing quite well and maintaining our numbers despite a plummeting birth rate in the nation as well as in the state of Massachusetts, said former HMC nurse midwife Vanessa Ross, who worked at the practice from 2006 until 2019. That administration systematically brought about the low numbers that you now see.

Ross and former nurse Lisa Pack Kirschenbaum, who worked at the Birthing Center for 26 years, challenged the assertion that a lower volume of births led staff to be less prepared for emergencies.

During his testimony, HMC Chief Medical Officer Simon Ahtaridis said that a low volume also meant the hospital only kept a small number of physicians on staff, which he said caused problems if somebody took time off for any reason.

Our patients and providers deserve better for that, and in partnering with Mercy our remaining two physicians will be able to join the Mercy team of nine physicians and provide more sustainable and stable coverage for urgencies and emergencies, Ahtaridis said.

For many speaking Tuesday, the closure of the Birthing Center represented a larger problem with health care in the region and country.

My concern is that the public health of individuals of our community, particularly in Holyoke, its always been considered due to revenue, said Ward 1 City Councilor Gladys Lebron-Martinez.

Patricia Duffy, who is running for the citys state representative seat, said city residents expressed concern that local control or other services may be lost at the hospital. Current state Rep. Aaron Vega, D-Holyoke, expressed frustration with a system that he said leaves the community hospital reliant on care packages from the federal government and last-minute bailouts by MassHealth to keep it afloat.

DPH now has 15 days to determine whether the services being closed are necessary for preserving access and health status within the hospitals service area. If deemed necessary, the hospital will have 15 days to submit a plan for assuring access.

However, that is the extent of the powers DPH has under state law. The state has no power to stop the closure or penalize the hospital for closing services, even if they are deemed essential. State Rep. Lindsay Sabadosa, D-Northampton, noted that fact in her comments Tuesday.

We see consistently programs taken apart piece by piece until they are no longer deemed essential, and that seems to happen more often than not in poor communities, it happens in communities of people of color and it seems to be real easy when women are involved, she said. And that is something that DPH along with the Legislature really is going to need to take a hard look at.

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State hears testimony on closure of Holyoke Medical Center's birthing center - GazetteNET

Women in Hip-Hop Cannot Thrive While Misogynoir Exists – HarpersBAZAAR.com

It was just the worst experience of my life. And its not funny. Its nothing to joke about. It was nothing for yall to start going and making fake stories about, said Megan Thee Stallion on Instagram Live, holding back tears as she addressed her shooting injuries. I didnt put my hands on nobody. I didnt deserve to get shot.

The men in the hip-hop community have failed Megan Thee Stallion. On social media she was mocked and memed, diminishing the gravity of violence enacted upon her. It points to a larger problem: the sadistic nature of misogynoir in hip-hop, an industry stained by the blood of violence against Black women by its forefathers.

Hip-hop, a genre born from the overt abuse and brutality Black communities have suffered by law enforcement, upholds the patriarchy. Its one of the few spaces where Black men can emulate the power ideals of whiteness. It's a developed framework that justifies Chris Browns existence on Billboards chart despite his physical assault of Rihanna in February 2009; instead of being held accountable by his peers, he was welcomed into a fraternity of success and masculinity built on the dehumanization of Black women. Its often said that Black women are fighting two wars based on the intersections of race and gender. Misogyny is institutional oppression against women at large, but misogynoir is the dehumanization of Black women perpetuated through individual, societal, and cultural violence toward Black women. Until men in hip-hop show genuine support and investment for Black women in hip-hop, the latter will never be granted justice, not even in death.

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As Black women took to the streets to protest the death of Breonna Taylor, social media and blogs reduced their calls to justice for Taylors death to a superficial meme, a trend void of the richness and complexity of her life. When news broke about Megans attack, Twitter erupted with misogynistic memes from Black users centered on her ass, boobs, and knees, implying that the loss of her sexual appeal mattered more than her actual life. Her face was superimposed on Ricky Bakers (played by Morris Chestnut) when he is shot in the film Boyz N The Hood and Madame Vera Walkers (played by Della Reese) when her pinky toe is shot in Harlem Nights. The migration of memes across social media platforms reinforces the devaluation of Black women in celebrity and hip-hop culture, where their full humanity is reduced, sexualized, and rendered as one-dimensional.

One of the most compelling emcees and lyricists of her generation, Megan Thee Stallion is hip-hop's biggest star. She has accomplished world-wide success and renown for her explicit lyrics that put women in power, catering to their satisfaction and fulfillment as she raps about her player ways and skimpy clothes. Shes the Houston hottie with a model body, yet through a patriarchal lens, men in hip-hop seek to reconstruct her lyrics of empowerment as justification for objectifying her body as a holding place of male desire, rage, and violence.

Who hears a Black womans cries of fear and pain if their personhood is stripped away?

Who hears a Black womans cries of fear and pain if their personhood is stripped away? If Black women are no longer regarded as human, then their bodies are deemed deserving of disproportionate amounts of pain. If Black women are no longer granted femininity, then their bodies are subjected to transphobic attacks in an attempt to validate the violence they endure. Camron responded to Megans attack by reposting an Instagram post that said her shooter "saw that dick and started shootn..IDC what no one say. His commentary reflects a double standard in hip-hops misogynistic framework, one that awards male rappers for protecting themselves against an aggressive assailant but blames women for their hostile behavior that results in gun violence. 50 Cent, who survived being shot nine times (he references the attack on his hit Many Men (Wish Death) from his debut album Get Rich or Die Tryin), posted a meme about Megans injury, which he later apologized for and deleted after her Instagram Live session.

Megan Thee Stallion didnt deserve to get shot. Liza Rios didnt deserve to be hit by Big Pun. Dee Barnes didnt deserve to be attacked by Dr. Dre. Steph Lova didnt deserve to be harassed by DJ Funkmaster Flex. Linda Williams didnt deserve to be punched by Damon Dash. Lil Kim didnt deserve to be in a violent relationship with The Notorious B.I.G. Drew Dixon, Sil Abrams, Sherri Hines, and others didnt deserve to be sexually assaulted by Russell Simmons. (Simmons has denied the allegations.) Misogynoir is an intracommunal pandemic.

Its not the responsibility of Black women in hip-hop to address the racialized and sexual violence towards their community.

Oppressive structures are maintained by the erasure and intentional neglect of individuals who are disregarded and marginalized. In a white supremacist society, hip-hop is unique because of its existence as one of the few influential structures where cisgender heterosexual Black men can be in positions of power, but their silence toward Black women is reflective of the patriarchal systems they have upheld. Hip-hop has provided a space for Black men to build empires and legacies; Def Jam Recordings, Roc-A-Fella Records, and Bad Boy Records have affirmed Russell Simmons, Jay-Z, and Diddys places as worldwide ambassadors for hip-hop culture. Where was Jay-Z following Megans attack? She signed to Roc Nation management and collaborated with Beyonc on the Savage'' remix, but he said nothing. Where was Diddy? He featured her on his COVID-19 Dance-a-Thon, but he also said nothing. Though some men like Wale and 21 Savage showed their support, the majority of voices in hip-hop who displayed comfort and support for Megan Thee Stallion were Black women, who historically have shown up for themselves when no one else would.

Before the age of 25, Megan Thee Stallion had publicly lost her mother and grandmother. Yet during her ascension to stardom, and through her grief, she still continued to reach out and support Hotties with engagements on social media, charitable donations to her hometown of Houston, and a CashApp campaign. On her July 27 Instagram Live, her first appearance since the shooting, she continued to show that resilience, assuring us, A bitch is alive and well. Strong as fuck. Im ready to get back to regular programming with my hot girl shit.I cant keep putting my energy in a bunch of you motherfuckers.

Its not the responsibility of Black women in hip-hop to address the racialized and sexual violence towards their community. Black men in hip-hop need to participate in the disinvestment of misogyny in the culture, instead of silence. In order for Black women in hip-hop to live and thrive, the structure of misogynior must be abolished.

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Women in Hip-Hop Cannot Thrive While Misogynoir Exists - HarpersBAZAAR.com

Monterey County joins in suing Trump administration over exclusion of undocumented immigrants in census. – Monterey County Weekly

The census happens every 10 years and is the federal government's process of data-gathering that guides all sorts of decisionssuch as how federal funds are allocated, and how congressional district lines are drawn and how much representation a region gets in Washington. And given those high stakes, President Donald Trump's efforts to exclude undocumented immigrants from the count have drawn immense backlash.

First, there was a proposal to include a new question:"Is this person acitizenof theUnited States?" Dozens of cities counties and states sued, arguing the question was contrived just for the purpose of intimidating non-citizens and discouraging them from completing the census. In June 2019, the U.S. Supreme Court ruled in the plaintiffs' favor, and the question was dropped.

Fast-forward to July 21, 2020, with the census in full swing.Trump issued a memo that would alter the definition of "whole persons" used in census-based calculations, excluding undocumented immigrants.

Cue another round of lawsuits, again filed by a large coalitionnine cities and six countiesagainstPresident Trump, the U.S. Department of Commerce, the U.S. Census Bureau, Commerce Secretary Wilbur Ross, and Census Director Steven Dillingham.

On July 28, the Monterey County Board of Supervisors voted to join that lawsuit.

As we continue to work hard to get an accurate count in the 2020 Census, we want to send a clear message to our communities: if you live here, you count, Chris Lopez, chair of the Board of Supervisors, said in a statement. Intentional and unconstitutional efforts to deter legal participation in the census will not go unchallenged. Our fair representation and equal access to funds depends on the census, we encourage every person living in Monterey County to stand up, log on, and get counted.

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Monterey County joins in suing Trump administration over exclusion of undocumented immigrants in census. - Monterey County Weekly

Not Everyone in Philly Has Access to Pads and Tampons. Thats a Problem. – Philadelphia magazine

Q&A

No More Secrets, a Mount Airy-based nonprofit, is doing the work to combat Philadelphia's period poverty.

Founder Lynette Medley (right) and her No More Secrets team are working to end period poverty in Philly at a grassroots level. | Photos courtesy No More Secrets.

I realize Im getting my period when I go to the bathroom with cramps and find that quite suddenly, Im bleeding heavily. I grab two Midol, a tampon that Ill have to change soon, and, depending on the pain level, a heating pad, and get on with my day. Some days, the pain is debilitating, and my body feels weak and woozy. Some days, I can tolerate it well. Regardless, I never have to worry about blood leaking everywhere. I can afford the tampons I prefer, the size that works for me, and pads for extra lining when I need it.

For much of Philadelphia, the reality is different.

Women all over Philadelphia wake up with their periods their uteruses contracting, often painfully, to help expel their lining and no supplies to help them manage the pain or the blood flow. Theyll miss work or school, or try to manage the bleeding in other ways, like by using kitchen towels or old rags. Theyll ruin clothes and underwear because of this. Theyll ration pads and tampons to get through. And theyll do it again next month.

This is period poverty: the inability to afford products for dealing with menstruation. Its an issue most often associated with developing countries (a UPenn sophomore won an Oscar last year for her work depicting the issue in New Delhi), but its actually common throughout the United States.

One local organization is trying to change that reality here in Philly. No More Secrets, a sexuality awareness and counseling organization, was founded in 2012 by Mount Airy-based sexual health counselor Lynette Medley, 51, who delivers daily care packages with her daughter, Nya McGlone, 28.

Medleys nonprofit delivers almost 200 three-month supplies of menstrual products in the Greater Philadelphia area each week, undaunted by thunderstorms, 95 degree weather and COVID-19. A normal day for the No More Secrets crew means upwards of 50 deliveries of menstrual products in the city and suburbs.

And what theyre doing is sorely needed. A 2019 study of American cities found that two-thirds of low-income women didnt have the resources to buy menstrual products at some point within the past year. In Philadelphia, almost a quarter of our citizens live in poverty, with Black Philadelphians being about twice as likely to live in poverty as white Philadelphians. And, for some reason, period products which are a human necessity for health, sanitation, and attending work or school arent covered by Medicaid or SNAP. Theyre also not uniformly available in our public schools. In addition to the years of work by No More Secrets, newer organizations like the teenage-run Menstrual Equity Project have been seeking to fill the gaps in Philly schools recently, but this problem mostly continues, as it has for years, without a government solution in sight.

In July, No More Secrets launched its latest social action campaign, #BlackGirlsBleed, to help raise awareness of and end period poverty, address systemic racism in the menstrual health space, and decrease stigma about menstruation in Black communities.

I chatted with No More Secrets founder Lynette Medley to find out more about #BlackGirlsBleed and period poverty in Philadelphia and what we can do about it.

Lynette Medley delivering supplies in the Philly area. | Photograph courtesy of Lynette Medley

Philadelphia magazine: How did you decide to launch your latest social media campaign?Medley: With #BlackGirlsBleed, we are really intentional about entering a space that is not really welcoming to Black bodies and Black organizations. We are really trying to push the envelope and get donations that are actually going to do good. We are trying to ask people to be inclusive of our efforts. Its funny, because we are small very small and we have been doing a lot, because it is our passion.

How did you first become aware of the extent of period poverty in Philadelphia?Im a therapist and sexual awareness counselor. I got into this space because of a situation with a client who was referred to me for acting out sexually. This 13-year-old young lady was sent to me for help.

I asked her, What is going on that you are acting this way? She said, Its just that I will do whatever I can to get a pad or tampon for me and my siblings! My mouth dropped. I was shocked.

I said, What are you talking about?! She said she would do whatever she could everything from stealing to selling her body. I said, You are kidding me!

I said we could fix it. We could call somebody. I told her, Im sure there are resources out there let me call these people. She told me, There are no resources.

Of course, I said we could fix it. We could call somebody. I told her, Im sure there are resources out there let me call these people. She told me, There are no resources. I said, Well, lets call together.

We start calling. I start calling my friends and the city and the health department and the schools. They said they could give her one pad or tampon, but not multi-day supplies. I told her, Dont worry, I am sure there is a bank somewhere. There was no bank. There were no resources. I said Well, doesnt public assistance cover it? She said no. I started calling the government, the state, and to my surprise, nothing covered it. I was shocked. And that is how I got into this space.

So there were no government resources, and you had to take matters into your own hands?Yes. I started collecting and distributing menstrual product donations immediately. I started with saying we were gathering toiletries for teens to raise money. I was aware that there is a stigma, and I didnt want to ask directly for funds for tampons. I didnt know how the community was going to donate, you understand? I wanted to keep it soft so it wouldnt shock them.

We started small, giving out small care packages, and worked our way up to having a menstrual supplies bank that we manage. Everything is still organic. We still have dont have a corporate sponsor; we dont have brands that are funding us. Everything has been from donations and marketing what we do ourselves. When we created the menstrual supplies bank, the people that need these supplies told me that they dont have money to travel to even pick up these supplies they need them delivered. Thats how we started the delivery service.

There is a stigma, and I didnt want to ask directly for funds for tampons. I didnt know how the community was going to donate, you understand? I wanted to keep it soft so it wouldnt shock them.

That is fascinating. I think many people dont understand that this problem isnt only happening in developing countries its a Philadelphia issue.Thats very true. I get frustrated sometimes, but at the end of the day, I think there is really a lack of education and awareness about it. I feel like we arent talking about it enough. I dont think women talk about it enough in general. I started this #BlackGirlsBleed campaign because I really think there is a deficit in communities of color. The purpose was to amplify the voices of Black women, and also to reach out to different brands and suppliers and say, I see your pages, but I dont see people that look like us talking about our experiences. I really just want to decrease the stigma in the communities of color specifically.

For example, not everybody dealing with this is living in total poverty. Many women who ask for donations are hourly wage earners struggling to meet their families needs. Usually when people find me to get products, I find out that their attitudes towards their periods are generational. Theyll say, My mom did it, and my grandmother did it. We all stayed home, couldnt go to school, and we just used this or that. People are still using pieces of rag and pieces of comforter and socks and thinking that its okay. I have had parents and they work, and they are just trying to buy food, and they are trying to pay for utilities, and they and their children use paper towels because there isnt another option for them. Its so much deeper than people imagine, because we really arent talking about it. People dont have a space to talk about it.

What is period poverty, by your definition?Menstrual equity and period poverty are two different things. A lot of large organizations say they address period poverty. If you are giving someone a lunch bag with three tampons and two pads, that is not period poverty; that is menstrual equity. Its, I am giving you this for a moment until you can get other things.

Period poverty is, I dont have any pads; I cant get access to pads or tampons; me and my family need monthly supplies. Period poverty is when you are rationing pads between your sisters every month. That is a whole different conversation. But all these organizations are saying period poverty. So you give me two tampons in the little brown bag , and they are talking about solving period poverty! That is for what, one day? A half-day of my cycle?

What can change at a policy level? In the majority of the United States, these items are still taxed. I dont really get into that conversation about the Pink Tax, because the populations we serve whether its taxed or non-taxed, they still cant pay for it. A dollar or two is not going make a difference for them. These people have stood in lines all summer in the heat trying to get food. Some people would call me and say they need period supplies so they can go get food, because they are bleeding and they dont have toilet paper or paper towels. They cant go get supplies because they are bleeding.

I have had meetings with city officials and with the Department of Human Services and the Department of Public Health. I have gotten rebuttals like, This is not an issue in the community. How can you prove it? Where is the research? There does need to be more research so we have the evidence to show. I think this needs to be on the risk assessment for the Department of Human Services as risky behaviors, like housing insecurity and food insecurity.

Tell me more about the #BlackGirlsBleed Campaign this past month.#BlackGirlsBleed is a movement that we started in July of 2020 addressing the systemic racism in the practices of the menstrual space. The menstrual space is really a white space. There are not many people of color in these commercials and at these companies. We realized because of that, menstrual brands and menstrual movements have not historically uplifted Black communities or Black organizations. They dont like to give us resources even though we are on the ground doing the work. I want to highlight the disparities. I want to highlight that Black girls bleed and share their stories. We realized that women in our communities dont see people like them talking about their menstrual cycles, talking about their periods. Its not just menstrual equity its self-esteem-building, and changing the conversation and helping to empower young women to love themselves.

Their experiences are different than they might see in ads. Ill ask girls, What do you see in the commercials? They talk about people who are surfing and swimming and high-diving, but they say, That is not my experience.

We need to get to reality and be able to get to talk about these issues and not feel shame. It is really just a way of highlighting their voices and amplifying how they feel in our community. We want to get rid of the generational stigma within communities of color. I want women to start seeing more people talking about it. Women in our communities often suffer in silence.

Not everybody dealing with this is living in poverty. Many women who ask for donations are hourly wage earners struggling to meet their families needs.

Photograph courtesy of Lynette Medley.

Do you partner with schools or other local organizations?We do all the deliveries. We delivered to the School District of Philadelphia when it was open. When we delivered to them, they were called RED boxes resources for education and distribution. We would give a huge bin filled with pads, tampons, wipes, whatever the school requested. The school system only supplies feminine products to a very small number of our hundreds of schools. And, they only distributed size-one pads. Nurses who got these supplies told us, We need heavier; we need thicker; we need this size; we need variety.

Thats true. A thin size-one pad would be useless for me and many women I know.Yes. Its not like anyone is asking for a certain brand. I am trying to fit the needs of the people that I am serving. If you are giving size-one pads to a child in poverty who already has an irregular or heavy period, and they are having clots and they are in class, they cant use it. They will tell me, I am still not going to go to school, because I will be there bleeding over this size-one pad on the one uniform I have, and my mom doesnt have regular running water, so I dont know when it will be washed.

I have women who have been in the EARN program. They tell me, I get fired every time because I dont have pads. I only have one outfit to wear to work, and two pairs of underwear, and the boss will ask, Why do you keep going to the bathroom? Its because I have one dollar-store pad and I leak through it every five minutes. These are conversations we just dont have. People are really suffering, and it is actually keeping some people in poverty.

I dont feel as though it is a handout, because I feel that its a disgrace and discriminatory in nature to not address menstrual rights in our communities. I feel it is a human rights issue. Im just giving them what they need to live their lives.

Is there any ever hesitation or shame from people about receiving these boxes of pads and tampons from you?We used to be like thieves in the night and go out to deliver at night, in the dark. Then one day, one of the recipients in our community, Amirra Jenkins, asked me, Why are you not thinking business? Why are you not posting this on IG so people know what you are doing? We took a picture, and soon we started seeing all these girls posting it on social media. So now, people all want to take a picture with us. They want to change this perception.

It was so surprising to me, but the girls feel proud that this is a movement. Its a movement for these girls and women to say, This makes no sense that this happening, and to take a stand. I dont feel as though it is a handout at all, because it is a disgrace and discriminatory in nature to not address menstrual rights in our communities. I feel it is a human rights issue. Im just giving them what they need to live their lives.

To donate to No More Secrets, visit their website here. You can also follow them on Instagram here.

Want to hear more from us? Join Be Well Philly at:FACEBOOK|INSTAGRAM|NEWSLETTER|TWITTER

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Not Everyone in Philly Has Access to Pads and Tampons. Thats a Problem. - Philadelphia magazine

University System of Maryland to require COVID-19 testing this fall – Maryland Daily Record

Testudo overlooks McKeldin Mall at the University of Maryland in College Park. (The Daily Record / Tim Curtis)

The University System of Maryland announced Thursday that students, faculty and staff returning to all of its campuses must be tested for COVID-19 within 14 days prior to arrival. Students and employees must also submit official confirmation of a negative result to university officials.

USMs 11 universities, which are typically home to over 170,000 students, will also implement additional infection prevention and control protocols and work with individuals if complications arise as they attempt to get tested, according to a statement released Thursday.

Anyone who tests positive for COVID-19 prior to arriving at a USM campus will not be allowed to return until a required period of isolation has been met, the system said. Those who test positive after arriving on campus will consult with university officials regarding medical follow-up and isolation requirements.

The announcement comes amid an intense national debate over reopening the nations schools from kindergarten up to universities.

USM policies were developed in response to increases in COVID-19s spread. Institutions engaged in involved and intentional discussions among themselves and worked closely with the Maryland Department of Health and its local jurisdictions, said Joann Boughman,senior vice chancellor for academic affairs at USM.

USM also took guidance from its professors with expertise in medicine and public health. Officials said adhering to testing, symptom monitoring and disease mitigation protocols are essential, for both safety and the ability to resume and sustain in-person instruction this fall.

Marylands cases, which started decreasing in late May and began increasing again at the beginning of July, have not been accelerating as rapidly as much of the nations. Right now, Marylands seven-day-averages total out to 873 cases and 10 deaths daily, according to data from the New York Times.

Prince Georges County has the highest rates of infection and death per capita in the state. One out of 40 residents has reportedly been infected with COVID-19. One out of 1,200 has died.

USMs largest campus, the University of Maryland, College Park, is in Prince Georges County. The university last year enrolled over 40,000 students, and it plans to welcome some of them back on Aug. 31. Population on campuses will be quite limited, a fraction of what would occur under more traditional circumstances like fall 2019, said Mike Lurie, media relations and web manager at USM.

Boughman said the system hopes students will be able to access nearby testing sites, which are often provided at no cost or covered by health care providers. Some USM campuses, like College Park, will set up testing sites on their grounds.

While were waiting for the test results, we want students to be not fully interacting and out there. In general, we want them to hunker down if you will, Boughman said. Were not asking them to quarantine in their room and not come out of their rooms, but we want them to in fact be prudent in what theyre doing until we get negative tests back. Once we get the negative tests back, we remain expecting students to do their symptom monitoring on a daily basis and follow the other public health actions.

Individual system universities will provide guidance to students and employees who have been tested for COVID-19 but are still awaiting their test results at the start of the fall semester. The schools alsowill share alternative testing arrangements with anyone who is unable to access a COVID-19 test before arriving.

Each campus will manage records of negative tests differently, said Boughman. Students living in on-campus residences must have this documentation when they move in, and they will be referred for testing if they do not. Universities will also use their campus health officials, registrars offices and general student management systems to stay organized and enforce this requirement.

All students and employees returning to a USM institution must also begin daily symptom monitoring and reporting 14 days before their arrival on campus. Individual universities will provide further evaluation and guidance to anyone reporting COVID-19-associated symptoms.

USMs statement provided a list of five requirements that employees, students and visitors at every USM institution must adhere to:

Individual universities will share with their campus communities the consequences of noncompliance with these rules.Noncompliance could lead to disciplinary measures through a universitys student conduct process, said Boughman. Still, she expects there will be flexibility for honest mistakes.

Everybody is going to be reasonable about this. There are times when people walk out of their dorm or a day they may forget a mask or something, Boughman said. It is the intentional noncompliance that we are most concerned about.

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University System of Maryland to require COVID-19 testing this fall - Maryland Daily Record

NIDDK 70th Anniversary (1950-2020) | NIDDK – National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Message from the Director

As NIDDK celebrates its 70th anniversary, we look back on decades of scientific advances and forward to what we will achieve in the decades to come. Discovery and innovation are at the core of our institute, the result of the dedication and talent of our staff and grantees. Our achievements together have led to better ways to prevent and treat conditions among the countrys greatest public health concerns, including diabetes, obesity, kidney diseases, and many others in our diverse mission. I invite you to read about some of these advances in the links below and to follow the development of our strategic plan, which will guide how NIDDK will maximize public investment in research and amplify efforts where needed the most.

This year weve faced remarkable challenges, as a global pandemic upended life as we know it. NIDDK staff, grantees, and trainees have risen to that charge at every step, joining the search for ways to combat COVID-19 or pioneering solutions to keep operations running smoothlydespite many uncertainties. With a strengthened spirit of community, we embark on the next 70 years with compassion and determination to preserve and advance public health.

- Griffin P. Rodgers, M.D., M.A.C.P.

Click anywhere on the NIDDK social media messages below to then like and share the posts on your Facebook and Twitter pages

Download our NIDDK 70th Anniversary Social Media Graphics (ZIP, 749.08 KB) and content to post on your Instagram , Facebook, and Twitter pages.

Over the past 70 years, NIDDK has made substantial scientific research advancements and our scientists have been honored with prestigious awards for their work to improve public health. Looking forward, we strive to discover better ways to help manage and treat diseases central to our missions. Learn more about NIDDK and its advances in the NIH almanac.

October 16, 1968 Dr. Nirenberg of the National Heart Institute shared the Nobel Prize in Physiology or Medicine with two other scientists. Dr. Nirenberg reported his celebrated partial cracking of the genetic code while an NIAMD scientist.

October 1972 Dr. Afinsen, chief of the Institutes Laboratory ofChemical Biology, shared the Nobel Prize in Chemistry with twoother American scientists for demonstrating one of the mostimportant simplifying concepts of molecular biology: that the threedimensionalconformation of a native protein is determined by thechemistry of its amino acid sequence. A significant part of theresearch cited by the award was performed while Anfinsen was withthe NIH.

November 1982 Dr. Neufeld, chief of the NIADDKs genetics andbiochemistry branch, received the Albert Lasker Clinical MedicalResearch Award. She was cited, along with Dr. Roscoe O. Brady ofthe then-named National Institute of Neurological andCommunicative Disorders and Stroke, for their contributions to theunderstanding and diagnosis of inherited diseases calledmucopolysaccharide storage disorders.

September 2010 Dr. Friedman, a NIDDK grantee and formergrantee Dr. Douglas Coleman won the Albert Lasker Basic MedicalResearch Award for discovering the hormone leptin, which plays akey role in regulating energy intake and energy expenditure.

September 21, 2012 Dr. Starzl, a longtime NIDDK grantee, receivedthe Lasker-DeBakey Clinical Medical Research Award, shared withanother scientist for his work developing liver transplantation, anintervention that has restored normal life to thousands of peoplewith end-stage liver disease.

September 2016 Dr. Semenza, a NIDDK grantee, shared the AlbertLasker Basic Medical Research Award with NIH grantee Dr. WilliamG. Kaelin Jr. and another scientist for their discovery of the pathwayby which cells from humans and most animals sense and adapt tochanges in oxygen availabilitya process essential for survival.

October 7, 2019 NIDDK grantee Dr. Semenza shared the Nobel Prizein Physiology or Medicine with NIH grantee Dr. William G. Kaelin Jr.and another scientist for their discoveries of how cells sense andadapt to oxygen availability.

Chronic liver disease can result from many causes, the two most common being viral hepatitisincluding hepatitis B, C, and Dand nonalcoholic fatty liver disease (NAFLD). NIDDK-supported research has yielded important knowledge that has improved the lives of people with many forms of chronic liver disease.

Over the past several decades, NIDDK has supported research to improve our understanding of Inflammatory Bowel Disease (IBD) through development of new approaches to study IBD and genetics, gut microbiome research, and personalized treatments for patients with IBD.

An estimated 37 million American adults have Chronic Kidney Disease (CKD), and kidney diseases are the ninth leading cause of death in the United States. NIDDKs continued development and testing of new detection strategies, therapies, and community education helps support the health and quality of life of people with CKD.

Nutrition plays a fundamental role in sustaining health and preventing disease. The NIDDK supports an extensive and collaborative portfolio in nutrition research, including clinical studies of diet and nutrition, microbiomes, and precision approaches to dietary recommendations.

Obesity has risen to epidemic levels in the United States and it is a major public health challenge. NIDDK-supported research has improved our understanding of body weight regulation and yielded new treatment approaches for people with obesity.

NIDDK-funded research has made important strides in developing new treatments for diseases like Sickle Cell Disease and understanding anemia. Recently, research into how cells detect oxygen and react to low oxygen levels was selected as the 2019 Nobel Prize in Physiology or Medicine.

NIDDK-supported research has led to critical knowledge in areas of intensive glucose control, preventing type 1 diabetes and improving longevity of people with the disease.

NIDDK research seeks to reduce the burden of this serious and all too common disease with findings shown to prevent, delay, and treat T2D in high-risk people or those living with the disease. NIDDK research also focuses its efforts in gestational diabetes studies and T2D in special populations.

The Healthy Moments celebration of NIDDKs 70th anniversary features five talks with NIHDirector, Dr. Francis Collins.

Episode 1: Creating Medical Devices to Improve Treatment of Type 1 Diabetes

Episode 2: Using Genetics to Improve Treatment of Type 2 Diabetes

Episode 3: Fighting Kidney Disease with Precision Medicine

Episode 4: Decoding the Burden of Inflammatory Bowel Disease

Episode 5: Making Obesity Treatment More Personal

Healthy Moments is a weekly broadcast that provides listeners reliable, science-based,healthy lifestyle tips, actionable suggestions, and other important health informationfeaturing Dr. Griffin Rodgers, Director of NIDDK. View more Healthy Moments episodes.

Originally posted here:

NIDDK 70th Anniversary (1950-2020) | NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

Sarepta Therapeutics Receives Fast Track Designation for SRP-9001 Micro-Dystrophin Gene Therapy for the Treatment of Duchenne Muscular Dystrophy -…

CAMBRIDGE, Mass., July 24, 2020 (GLOBE NEWSWIRE) -- Sarepta Therapeutics, Inc. (NASDAQ:SRPT), the leader in precision genetic medicine for rare diseases, today announced that theU.S. Food and Drug Administration(FDA) has granted Fast Track designation to SRP-9001 (AAVrh74.MHCK7.micro-dystrophin). SRP-9001 is an investigational gene transfer therapy intended to deliver its micro-dystrophin-encoding gene to muscle tissue for the targeted production of the micro-dystrophin protein. Safety and tolerability data at one year from four clinical trial participants who received SRP-9001 in Study 101 were recently published in JAMA Neurology, and Study 102, a randomized, double-blind, placebo-controlled study of SRP-9001, is ongoing with results expected in early 2021.

The Fast Track designation is a process designed to facilitate the development and expedited review of drugs that treat serious conditions and fill unmet medical needs.In addition to Fast Track, SRP-9001 has also been granted Rare Pediatric Disease (RPD) designation. SRP-9001 was previously granted Orphan Drug status in the United States, the European Union and Japan.

About SRP-9001

SRP-9001 is an investigational gene transfer therapy designed to deliver the micro-dystrophin-encoding gene to muscle tissue for the targeted production of the micro-dystrophin protein. Sarepta is responsible for global development and manufacturing for SRP-9001 and plans to commercialize SRP-9001 in the United States. In December 2019, the Company announced a licensing agreement granting Roche the exclusive right to launch and commercialize SRP-9001 outside the United States. Sarepta has exclusive rights to the micro-dystrophin gene therapy program initially developed at the Abigail Wexner Research Institute at Nationwide Childrens Hospital.

AboutSarepta TherapeuticsAt Sarepta, we are leading a revolution in precision genetic medicine and every day is an opportunity to change the lives of people living with rare disease. The Company has built an impressive position in Duchenne muscular dystrophy (DMD) and in gene therapies for limb-girdle muscular dystrophies (LGMDs), mucopolysaccharidosis type IIIA, Charcot-Marie-Tooth (CMT), and other CNS-related disorders, with more than 40 programs in various stages of development. The Companys programs and research focus span several therapeutic modalities, including RNA, gene therapy and gene editing. For more information, please visitwww.sarepta.com or follow us on Twitter, LinkedIn, Instagram and Facebook.

Forward-Looking StatementsThis press release contains "forward-looking statements." Any statements contained in this press release that are not statements of historical fact may be deemed to be forward-looking statements. Words such as "believes," "anticipates," "plans," "expects," "will," "intends," "potential," "possible" and similar expressions are intended to identify forward-looking statements. These forward-looking statements include statements regarding SRP-9001s intention to deliver the micro-dystrophin-encoding gene to muscle tissue for the targeted production of the micro-dystrophin protein; Sareptas expectation to have results from Study 102 in early 2021; and Sareptas plan to commercialize SRP-9001 in the United States.

These forward-looking statements involve risks and uncertainties, many of which are beyond Sareptas control. Known risk factors include, among others: fast track designation by the FDA may not lead to faster development or regulatory review or approval process, and does not increase the likelihood that SRP-9001 will receive marketing approval; Sarepta may not be able to complete clinical trials required by the FDA or other regulatory authorities for approval of SRP-9001; SRP-9001 may not result in a viable treatment suitable for commercialization due to a variety of reasons including the results of future research may not be consistent with past positive results or may fail to meet regulatory approval requirements for the safety and efficacy of product candidates; Sarepta may not be able to execute on its business plans and goals, including meeting its expected or planned regulatory milestones and timelines, clinical development plans, and bringing its product candidates to market, due to a variety of reasons, many of which may be outside of Sareptas control, including possible limitations of company financial and other resources, manufacturing limitations that may not be anticipated or resolved for in a timely manner, regulatory, court or agency decisions, such as decisions by the United States Patent and Trademark Office with respect to patents that cover Sareptas product candidates and the COVID-19 pandemic; and those risks identified under the heading Risk Factors in Sareptas most recent Annual Report on Form 10-K for the year ended December 31, 2019, and most recent Quarterly Report on Form 10-Q filed with the Securities and Exchange Commission (SEC) as well as other SEC filings made by Sarepta which you are encouraged to review.

Any of the foregoing risks could materially and adversely affect Sareptas business, results of operations and the trading price of Sareptas common stock. For a detailed description of risks and uncertainties Sarepta faces, you are encouraged to review the SEC filings made by Sarepta. We caution investors not to place considerable reliance on the forward-looking statements contained in this press release. Sarepta does not undertake any obligation to publicly update its forward-looking statements based on events or circumstances after the date hereof.

Internet Posting of Information

We routinely post information that may be important to investors in the 'For Investors' section of our website atwww.sarepta.com. We encourage investors and potential investors to consult our website regularly for important information about us.

Source: Sarepta Therapeutics, Inc.

Sarepta Therapeutics, Inc.

Investors:Ian Estepan, 617-274-4052iestepan@sarepta.com

Media:Tracy Sorrentino, 617-301-8566tsorrentino@sarepta.com

Original post:

Sarepta Therapeutics Receives Fast Track Designation for SRP-9001 Micro-Dystrophin Gene Therapy for the Treatment of Duchenne Muscular Dystrophy -...

There’s No Such Thing as Family Secrets in the Age of 23andMe – WIRED

From time to time, Ann would notice qualities in Deniseher smarts, her athleticism, her bright blue eyesand think, she must have gotten that from her donor. She secretly hoped that one day Denise would track him down. She knew it was a long shot, though. The clinic hadnt even given her the donor number.

Norman succumbed to his drinking, and in 2010, at age 60, he died from cirrhosis of the liver. Denise was 32. Freed from her promise of secrecy, Ann prepared to tell her daughter the truth. Arriving home with the family after her youngest daughters graduation, Ann announced she had news. A thought came to Denise, as if from someone elses mind. Shes going to tell me my dad isnt my real dad. It took her aback. The idea had never occurred to her before.

Ann told her about the mumps, the infertility, the Birmingham clinic, the donor. She handed Denise the receipt from the clinicfor a couple hundred dollarsand a clipping from the Donor Sibling Registry, an organization that launched in 2000 to connect offspring to their donors and siblings. She hoped that Denise could use it to track down her biological father.

But Denise shrugged it off. She already had someone whod wanted to be her father. My dad was my dad, she said. I dont really need another one. OK, Ann thought, surprised. Thats that.

The first woman ever to give birth to a donor-conceived child never knew it. In 1884, an unscrupulous Philadelphia doctor named William Pancoast chloroformed one of his patients, then inseminated her using a rubber syringe loaded with sperm from what he considered his most attractive medical student. He eventually came clean to the womans husband, but the men agreed the mother would be better off left in the dark. The six medical students who witnessed the procedure were sworn to secrecy; however, compelled by the peculiar ethics of the case, one of them published an account of the affair 25 years later in a letter to the publication Medical World.

Donor insemination continued largely underground, sans chloroform, until the 1950s. Doctors typically used fresh semen from a limited supply of nearby medical studentsor occasionally their own. In 1953, an Arkansas doctoral student named Jerome K. Sherman successfully inseminated a woman with sperm hed frozen in solid carbon dioxide and preserved with glycerol. For the most part, a combination of stigma, religious opposition, and legal roadblocks kept the practice in the closet. In 1954 and again in 1963, state courts ruled that donor insemination constituted adultery, husband consent notwithstanding. They deemed the resulting children illegitimate.

That changed In 1973, when ULC, a nonprofit that drafts state legislation, introduced the Uniform Parentage Act, which was later adopted by a handful of states. It afforded legal paternity rights to the husbands of women who birthed children from donor sperm. A few years later, scientists developed reliable cryopreservation methods, setting the stage for commercial sperm banks. Freezing sperm allowed banks to stockpile catalogs of donors, ushering in an era of consumer choice.

Frozen sperm became standard in the late 1980s during the AIDS crisis, after several women contracted HIV from donors. A new infection could take months to show up on a test, so freezing kept sperm alive during a quarantine period, after which clinics could retest it. The practice remained voluntary, however; no law mandated it.

All the while, doctors advised couples against telling children the truth about their parentage, warning that it could threaten family unity. It wasnt until LGBTQ parents obtained widespread access to assisted reproduction that the practice started coming into the light. Nondisclosure wasnt really an option, and these children expressed curiosity about their origins.

The Sperm Bank of California, the countrys only nonprofit sperm bank, opened in Oakland in 1982, catering to lesbian couples. Responding to requests for more information, they pioneered the first identity disclosure program in 1983: Once donor-conceived people turned 18, they could request their donors identity and contact information. Commercial sperm banks seized the opportunity to expand their customer bases, adding their own identity disclosure programs.

Read more from the original source:

There's No Such Thing as Family Secrets in the Age of 23andMe - WIRED

Hot-and-cold golfers, try this gambling game to start scoring low – Golf.com

By: James Colgan July 24, 2020

Cut out the valleys and ride the peaks by playing in an eclectic format.

Getty Images

The psycho scorecard is a rite of passage in the world of golf no matter the visceral, occasionally exhausting level of frustration it causes players. The sight of rows of 2s and 3s alongside 6s and 7s (or worse, the dreaded snowman) is enough to raise the blood pressure of any sane golfer.

But worse than the outcome (which is typically a ballooning handicap) is the knowledge that accompanies the psycho scorecard. You know what youre doing at least some of the time youre on the course. But for whatever reason, you cant seem to put it together for longer than a few holes in a row.

I know all this because I am the holder of more than a few psycho scorecards in this season alone. I know the pain of going 3 under on the first four holes of the back nine only to record a 42 coming in, of starting the day bogey-bogey-double and realizing I need to go low to salvage my score.

Frankly, it stinks. Im tired of it. Which is why during my next round(s), Im trying out this weeks golf gambling format, the Eclectic Tournament.

An Eclectic Tournament is, essentially, a collection of your best scores from playing multiple rounds or multiple balls. This tournament is perfect for boom-or-bust players because, over the span of several rounds, your outlier scores should begin to vanish, while your lower scores remain.

An Eclectic Tournament is a perfect format to follow if (like me) youre someone who often falls victim to the psycho scorecard. You dont need to constantly score low, but if you want to be in contention, you have to ride your peaks while avoiding valleys on the same holes. For those whose golf game is feast or famine, its time to feast.

Link:

Hot-and-cold golfers, try this gambling game to start scoring low - Golf.com

PAGCOR in the red as first-half gambling action grinds to a halt – CalvinAyre.com

The first half of 2020 has not been kind to the gaming industry. COVID-19 has attempted to maintain control over gambling and, for the most part, has done a good job, unfortunately. Many gaming operators across the globe have suffered major losses and are looking for ways to stop the hemorrhaging before things get even worse. The Philippine Amusement and Gaming Corporation (PAGCOR), which governs the countrys casino industry and runs several venues of its own, hasnt been immune to the declines, either. It recently presented its results for the first half of the year, and the numbers arent good.

According to PAGCOR, it saw a net loss of almost $32.5 million across the first six months of 2020. Compared to a net gain of almost twice that for same period last year, the hit is huge. Total revenue from gaming operations dropped 49.5% from the first-half results last year, reaching just $374.88 million $743.46 million was seen a year ago.

Of the amount taken in, PAGCOR had to turn over $196.7 million on gaming taxes and other contributions, of which $177.48 million went to the Bureau of the Treasury. According to the laws governing PAGCORs operations, it must give up 50% of its gross take to the Philippine taxman. The entity has reportedly continued to be a good corporate citizen throughout the coronavirus ordeal.

Total expenses during the period dropped by 28.4%, according to PAGCOR, coming in at $230.24 million. This was made possible, in part, due to a cutback in outlay provided to several social responsibility programs and other types of donations it would have normally provided if it hadnt been for the massive losses brought about by COVID-19.

Regulatory fees collected from licensed casinos by PAGCOR during the period dropped, as well. During the first half of last year, PAGCOR received $277.91 million; however, the fees were cut to $138.24 million this year. The only positive movement seen centered on offshore operations, which fall under the Philippine Offshore Gaming Operators (POGO) scheme. The income collected from these entities increased from $54.3 million last year to $59.39 million this year.

That increase from the POGOs is certainly welcome, but PAGCOR cant be confident that the segment will be around for much longer. It is currently involved in a dispute with the Bureau of Internal Revenue (BIR) over the latters attempt to collect a 5% franchise tax on all POGOs, a fee the regulator says is invalid.

As grim as the first half of the year was, the second half isnt shaping up to be much better. The number of cases of the coronavirus in the Philippines hasnt diminished, with Metro Manila, where most casinos are found, seeing the bulk of the infections. That has forced the area to stay locked down on quarantine until at least tomorrow. After that, according to the Manila Bulletin, the quarantine could be extended into August.

Read more here:

PAGCOR in the red as first-half gambling action grinds to a halt - CalvinAyre.com

What is alt text in WordPress? How to add image descriptions on your web page to improve accessibility and website ranking – Business Insider…

Alt text is a short text description of an image published to the internet that can be read aloud by accessibility programs for the blind and visually impaired, including screen readers.

But theres another reason to include alt text: Google and other search engines use alt text to better understand your photos content, which affects your websites page ranking in search results.

Because WordPress is a popular web site publishing tool, it includes the ability for you to add alt text to images contained in those web pages. The best time to add alt text to an image is when you upload it to WordPress. This way, the image has alt text right from the start, and the text is already there every time you add the image to a web page.

If the image is already in the WordPress media library and you are merely selecting it to insert in the post, there may already be a description in the alt text field in the Attachment Details pane. If the alt text is appropriate, insert it into the post. But if you prefer, you can edit the alt text before adding it.

While alt text is not required, you should strive to add useful, well-crafted alt text to every image you publish via WordPress so all users and search engines can better understand your content.

Heres how to write and add alt text in WordPress.

Because alt text describes the image to a visually impaired person, try to make the alt text as useful as possible. That will also help search engines rank your web pages appropriately for relevant keywords. Here are some things to keep in mind:

1. While writing a post in WordPress, click Add Media at the top of the page.

2. Add the image to your media library, either by browsing or dragging it to the web page.

3. After the is uploaded, the Attachment Details page should appear on the right side of the screen. Enter a description of the image in the Alt Text field.

4. Complete any other entries you need to add, such as the caption and media credit.

5. Click Insert into post.

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What is alt text in WordPress? How to add image descriptions on your web page to improve accessibility and website ranking - Business Insider...

10 Main TV Characters Who Were Dead The Whole Time | ScreenRant – Screen Rant

On television, there have been many characters on shows who were actually dead, too. In many cases, however, this fact was no secret. But the way their death was approached is pretty unique in each case.

RELATED: 5 Coen Brothers Characters Who Didn't Deserve To Die (& 5 Who Did)

In some, the person is only seen only in flashbacks or visions. In others, the story is centered around the dead person's new "life" while dead.

This entire series is set in the future (2033, to be exact) when technology has advanced so much that virtual afterlife is possible, and people can choose (rather, pay) to be uploaded to a variety of different versions of "heaven" once they perish.

Nathan, a young, handsome, smart 20-something, gets into a car accident in the first episode and is seemingly about to die, at which point he makes the decision to upload. The series is very intriguing as Nathan continues his "life" interacting with the people he loves while existing in a completely different virtual world.

It's no secret that Eleanor is dead. In fact, the entire series is based on the premise that she enters the afterlife where she realizes that she was sent to the glorious Utopian version of heaven by mistake and has to try and hide the error from the others so they don't send her to the seemingly less appealing alternative place (the bad place?)

In the living world, Eleanor wasn't exactly "Heaven" material. But since she has been given this tremendous opportunity, she must try to make good and become a better person in order to earn her spot in "the Good Place."

Harry wasn't necessarily a main character on the show, but he did appear in 96 episodes throughout the series' eight-season run. Except he was never alive. He either showed up in flashbacks or as a vision of Dexter's, sort of the angel on his shoulder.

RELATED: Harry Potter: How 10 Characters We Never Met Died

Harry was Dexter's adoptive father who, when alive, found a way to help Dexter control his Dark Passenger by developing a "code" for Dexter to live by (only kill those people who have done very, very bad things). In death, Harry continued to appear as a construct in Dexter's mind, helping him through his toughest times.

Professor Proton wasn't technically dead the whole time. He did appear very much alive in several episodes of the series.But when the show killed his character off, much to Sheldon's heartbreak, that wasn't the end of him.

Professor Proton appeared several times thereafter in Sheldon's dreams, still unhappy to be there, yet unwittingly offering sage advice that Sheldon always took to heart.

The list wouldn't be complete with at least one vampire character. Bill was supposedly over 100 years old, but he was technically dead just turned into a vampire that made him immortal. Like on the other shows, it was well known that he was not human.

He lived among humans, however. So while some people he came across might initially have thought he was actually a living person, he was, most certainly, very, very dead.

At first, Lady Melisandre appeared to be some sort of magical witch with special powers. She was certainly not entirely human, or at least was born with special gifts a deity of some kind.

RELATED: The Walking Dead: 5 Characters Who Died Too Soon (& 5 Who Should've Died Sooner)

It wasn't until that one episode when she looked in the mirror and saw the image of a frail, old woman staring back at her that it was revealed that she wasn't necessarily dead, but able to use her power to appear as a beautiful, young woman. Without that trusty necklace, however, Lady Melisandre would likely perish pretty quickly.

At first, it appears that Mr. Robot is a strange, reclusive man using Elliott to do his bidding. Then, it's revealed that Mr. Robot is really another personality of Elliott's, who suffers from a myriad of disorders, one of which includes having multiple personalities.

But later, it is revealed that Mr. Robot is also based on someone who is no longer living: Elliott's own father. There's so much complexity in who or what Mr. Robot is. But the bottom line: he is based on someone who is dead and he isn't real. Actually, he's Elliott, but the person he is illustrated as in the series isn't really there.

This situation is very unique to the others on this list. The character was set to marry Betty's older sister Hilda. But she finds in the first season finale that he was shot in a convenience store.

When season two begins, however, Santos is seemingly alive and well. Viewers were confused until it was revealed at the end of the episode that he actually was, in fact, dead. In trying to deal with the grief and in serious denial, Hilda contrived an entire fantasy life with him in it until she was able to come to terms with things and accept the fact that he was really gone.

Dan's debatable"death" is one of the most interesting and confusing ones on television. In the final season of Roseanne, the family embarks on a spree after winning the lottery. But then it's revealed that it was all a story that Roseanne made up to help process Dan's death. In fact, the entire series was as he was supposed to have been dead for quite some time, since Darlene (not Becky) and David got married. So he had seemingly appeared on the show when he was supposed to be dead.

Dan, however, rose from the dead for the revival of the series; it was explained away with jokes. In one episode, Dan comes across the novel Roseanne was writing in the finale of the original series and joked that it would have sold like hotcakes had she not killed off the most interesting character.

Kenny, the kid who only talked with a muffled voice in this long-running animated series, wasn't dead all along. But he was dead in pretty well every episode. It became a running gag with the line "Oh my God! They killed Kenny!" delivered each time it happened in some fantastical way.

But he would always be resurrected. As the series progressed, Kenny was supposedly killed off for good in season five, then came back. Now, he only dies occasionally.

NEXT: Westworld: Characters Who Have Died The Most Times, Ranked

Next Game Of Thrones: 5 Characters Who Would Make The Best Girlfriends (& 5 Who Would Make The Worst)

A professional writer and editor with 18+ years of experience, Christine, now a freelance writer/editor, is a self-professed TV fanatic with tastes that vary considerably from comedies to dramas, sci-fi, and more. She can usually be found binging a new show at night, coupled with a glass of red wine. With a long history writing in the field of consumer tech, she now also writes on topics from entertainment to parenting, lifestyle, marketing, and business. She resides in Toronto, Ontario in Canada with her husband and young son.

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10 Main TV Characters Who Were Dead The Whole Time | ScreenRant - Screen Rant

Montage Announces Development of a New Private Island Resort in The Bahamas – Luxury Travel Magazine

Montage Hotels & Resorts has announced Montage Cay, a 48-acre private-island resort and residential community in The Abacos Islands in the Bahamas. Owned in partnership with Sterling Global Financial, the project will see the rebranding and complete redevelopment of the private island of Matt Lowes Cay in The Abacos, re-emerging as Montage Cay, alongside the launch of The Residences at Montage Cay. The private island features seven pristine beaches, varied topography with elevated sight lines for expansive sunrise and sunset views, mature and diverse landscaping,and stunning scenery of the surrounding cays, all in the tranquil turquoise waters of the Sea of Abaco. Poised to become one of the most exclusive ultra-luxury resort destinations in the Caribbean,Montage Cay will blend Montages unparalleled service with the serene, natural beauty of the region and offer a contemporary execution of traditional Bahamian architecture.

Remote yet easily accessible, Montage Cay is located less than one mile off the coast of Marsh Harbour. The private-island resort will feature 50all-suiteaccommodationsand a limited collection of Montage Residences built in harmony with the islands seven white-sand beaches against a tranquil backdrop of the Sea of Abaco and the stunning surrounding cays.A 46-slip marina accommodating vessels up to 110 feet anchors the resort, allowing guests and residents of Montage Cay exceptional access to an array of world-class boating, fishing and water sports activities.

Thoughtfully integrating the guest experience with the islands natural environment, the 50-room,all-suite resort will feature light and airy ocean-view rooms with luxury outdoor amenities including plunge pools, outdoor showers, private gardens and lounge areas, creating an unmatched resort experience in the Bahamas.

Montage Cay will boast an array of unique restaurant and bar experiences including all-day dining, a signature dinner-only restaurant, two beach bar and grilles, lobby and pool bars, as well as a spa caf and juice bar. Additional resort amenities include a full-service Spa Montage, an extensive health and wellness program, fitness center, swimming pools, and Montages signature Paintbox Childrens Club. A robust water sports and recreation center will provide guests and residents endless opportunities to explore some of the most important natural reserves in the Bahamas with pristine coral reefs that showcase an incredible diversity of tropical marine life. The resort will offer indoor meeting space,as well as wedding and social-event lawn space with unobstructed views of the clear blue sea.

The Residences at Montage Cay will unveil an idyllic oceanfront location, coupled with the exclusivity of the Montage brand, to set a new benchmark for luxury living in the Bahamas with a bespoke collection of fully-furnished Villa Residences and Estate Lots with custom homes.Situated within private enclaves adjacent to the resort, the Villa Residences at Montage Cay will include stunning ocean-views and will range from two to four-bedrooms. The Estate Lots with custom homes will showcase unique elevations and sight lines offering buyers the opportunity to create their own personalized Bahamian retreat with breathtaking ocean vistas.Montage Cay guests and residents can easily access the resort through the extensive direct flights offered from major American and European markets to the Bahamas,as well as a modern FBO that welcomes private jets and charters.After arriving on Marsh Harbour, Montage Cay guests and residents will take a brief10-minute boat ride to the resorts exclusive oasis or dock a private boat at the Montage Cay marina. Seaplane access directly to the Montage Cay dock will be available.

For more information on Montage Cay, please visit http://www.montagehotels.com or follow @montagehotels@montagecay.

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Montage Announces Development of a New Private Island Resort in The Bahamas - Luxury Travel Magazine