Setting Up


Setting Up Decorating My Christmas Tree!
My name is Charisse and I have Cerebral Palsy, Low Tone, and Ataxia. This is a video of me setting up and decorating my own little 4 foot Christmas tree I put up in my room each year. I love Christmas time! Thank you for watching! Please visit my facebook page; Charisse Living with Cerebral Palsy http://www.facebook.comFrom:jazzygirl585Views:8 0ratingsTime:09:12More inPeople Blogs

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Setting Up

Ataxia Gait: What is causing my mom not to walk? – Video


Ataxia Gait: What is causing my mom not to walk?
My mother has diabetes and neuropathy. Her CPK reading was severely elevated and the doctors say something is attacking her muscles severely. She has seen a rheumatologist, neurologist neurosrgnFrom:brownduchess1703Views:12 1ratingsTime:02:19More inPeople Blogs

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Ataxia Gait: What is causing my mom not to walk? - Video

Just Say NO to Convenia – Video


Just Say NO to Convenia
My cat Angelina was given a shot of Convenia only a few days before her death. She developed a high fever, lethargy, dopiness, anorexia and other symptoms. She was already very ill, with possible FeLV, and Lymphoma of the liver and pancreas which came as a total surprise. She developed what seemed to be a cold and 2 weeks later, a few days after Convenia she was gone. I believe she was fatally ill, but I believe Convenia also caused a severe anemic reaction in her. Please don #39;t use this drug for your cat or dog- go to the Facebook Convenia Adverse reactions page for more information and to see what this drug is doing to cats and dogs on a daily basis. If your cat or dog has used Convenia and is having an adverse reaction you can try an aggressive probiotic treatment to counteract the convenia reaction but please consult with a vet before trying this. If your cat or dog has had an adverse Convenia reaction, please report this to Pfizer and to the FDA as well as asking your vet to make an official adverse report to Pfizer. If your cat or dog has passed away after a Convenia shot please also do a necropsy to determine the cause of death and to see if Convenia played a role. Just say NO to Convenia- lets take this drug off the market by boycotting it!! Pfizer has been offering to pay for health care costs for some cats who have been damaged by Convenia, so they know very well that it causes severe reactions. What they need to do is take Convenia off the market completely ...From:sumelle2Views:34 0ratingsTime:06:16More inPets Animals

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Just Say NO to Convenia - Video

John Frusciante Cut Out + Lyrics – Video


John Frusciante Cut Out + Lyrics
Best music John Frusciante Cut Out Lyrics: Your number fakes coming along whitout you Knowing a shift took place Your father hooks a wing about you If you flail this broken sword around you #39;ll Cut nothing up Again we #39;ll face these things when they #39;re dead issues Moments take each other #39;s place Born and forgotten the same way Hey, I #39;ll pay you to cut me out A blower of hot flesh is a baby That #39;s the first white stuff I sucked To feed this open fire with with windy day Moments take each other #39;s place Born and forgotten the same way Never knowing who you are John Anthony Frusciante i/fru #720; #712; #643; #593; #720;nt #603;/; born March 5, 1970) is an American guitarist, singer, songwriter, record and film producer. He is best known as the guitarist of the rock band Red Hot Chili Peppers, with whom he had been for a number of years and recorded five studio albums from 1988 until 1992 and again from 1998 until 2009. Frusciante also has an active solo career, having released eleven albums under his own name, two with Josh Klinghoffer and Joe Lally as Ataxia, and was a studio member of The Mars Volta, as performing guitarist and occasional live member from 2002-2008. His solo recordings include elements ranging from experimental rock and ambient music to New Wave and electronica. Frusciante joined the Red Hot Chili Peppers at eighteen years old, first appearing on the band #39;s 1989 album, Mother #39;s Milk. The group #39;s follow-up album, Blood Sugar Sex Magik (1991), was a breakthrough success. However, he was ...From:6SexyBunny9Views:1 0ratingsTime:04:38More inPeople Blogs

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John Frusciante Cut Out + Lyrics - Video

John Frusciante The Past Recedes + Lyrics – Video


John Frusciante The Past Recedes + Lyrics
Best music John Frusciante The Past Recedes Lyrics: And then the past recedes and I won #39;t be involved The effort to be free Seems pointless from above You #39;re looking down at me I #39;d rather stay below Than have you staring up at me It is nowhere I want to go Ay, this business of how long we try to stay alive Why to be here you first got to die so I gave it a try And what do you know Time was so long ago And things come back you see To where they don #39;t belong and every drop of sea is the hole ocean I lied to the greatest thieves about anything and everything I #39;m a figure of forgotten speech I #39;m out of reach I can #39;t play it safe But I #39;m might just in case I #39;m disguised as a reaching hand I #39;m a working man I don #39;t understand why clockout come so slow everytime That #39;s one line I stay right behind John Anthony Frusciante i/fru #720; #712; #643; #593; #720;nt #603;/; born March 5, 1970) is an American guitarist, singer, songwriter, record and film producer. He is best known as the guitarist of the rock band Red Hot Chili Peppers, with whom he had been for a number of years and recorded five studio albums from 1988 until 1992 and again from 1998 until 2009. Frusciante also has an active solo career, having released eleven albums under his own name, two with Josh Klinghoffer and Joe Lally as Ataxia, and was a studio member of The Mars Volta, as performing guitarist and occasional live member from 2002-2008. His solo recordings include elements ranging from experimental rock and ambient music to New Wave and ...From:6SexyBunny9Views:0 0ratingsTime:03:53More inPeople Blogs

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John Frusciante The Past Recedes + Lyrics - Video

What I'm Thankful For – Video


What I #39;m Thankful For
My name is Charisse and I have Cerebral Palsy, Low Tone, and Ataxia. This is a short video telling you what I #39;m thankful for. I hope you all have a great Thanksgiving! Thank you for watching! Please visit my facebook page; Charisse Living with Cerebral Palsy http://www.facebook.comFrom:jazzygirl585Views:354 25ratingsTime:03:54More inPeople Blogs

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What I'm Thankful For - Video

Hayden's Hope Warrior Run 2012 – Video


Hayden #39;s Hope Warrior Run 2012
Our son, Hayden, was diagnosed with Freidriech #39;s Ataxia in May. The community of Mason City, Iowa and surrounding areas came out in full force to show their support for Hayden and join in the fight against this relentless, devastating disease. To learn more visit cureFA4hayden.com or cureFA.orgFrom:cureFA4haydenViews:64 1ratingsTime:07:54More inNonprofits Activism

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Hayden's Hope Warrior Run 2012 - Video

DURGO KENNEL – Video


DURGO KENNEL
HOME BOY Red Pearl in Ginger ( ATAXIA - CLEAR, HD ED - soon ) Father; GR #1057;H Je T #39;aime Iz Doma Allvik Mother; INTCH BATAVIA Red Pearl in Ginger AVAILABLE STUD DOG in DURGO KENNELFrom:GochaFrankyViews:135 3ratingsTime:03:39More inPets Animals

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Regular "trespasser" cat has some disease – Video


Regular "trespasser" cat has some disease
This cat is not mine, just regularly wander through the backyard. I made this video to show it to the local vet to find out what #39;s wrong and cure it, if it is possible. My guess based on relevant youtube videos and some searches is: cerebellar ataxia.From:dtg977Views:13 0ratingsTime:01:46More inPets Animals

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Regular "trespasser" cat has some disease - Video

Jeremy Kyle 'Inspirational Children' episode, Leo, Joubert Syndrome. – Video


Jeremy Kyle #39;Inspirational Children #39; episode, Leo, Joubert Syndrome.
This is 4 year old Leo #39;s #39;Inspirational Children #39; episode of Jeremy Kyle, October 2012. Leo is registered blind, has ataxia and kidney problems. He is also extremely cute!!From:Hannah LakeViews:81 1ratingsTime:09:12More inComedy

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Jeremy Kyle 'Inspirational Children' episode, Leo, Joubert Syndrome. - Video

Leo's Journey. 4 year old affected by Cep290. Joubert Syndrome. Lebers Congenital Amaurosis. – Video


Leo #39;s Journey. 4 year old affected by Cep290. Joubert Syndrome. Lebers Congenital Amaurosis.
Meet Leo... He is a beautiful, clever, funny little boy. He is also registered blind, has ataxia and kidney problems all related to the Cep290 gene fault. This is his journey so far. See http://www.viskid.com or http://www.facebook.com/VisKidFoundationFrom:Hannah LakeViews:40 0ratingsTime:03:29More inPeople Blogs

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Leo's Journey. 4 year old affected by Cep290. Joubert Syndrome. Lebers Congenital Amaurosis. - Video

[1 of 12] Bruteman Live! Concert 2012 (opening


[1 of 12] Bruteman Live! Concert 2012 (opening stage reveal)
Part 1 of 12, video from the 2012 Bruteman Live! Philanthropy Concert for Ataxia Research in London, Ontario, Canada. Proceeds donated to the Canadian Association for Familial Ataxias, http://www.lacaf.org. Staring "Bruteman" Roger Foley, Sarah Smith, Laura Gagnon, Dana Hartman, Kristin Dawn, Pete Comrie, Ken Ross, the Ill At Will dance crew, the Brute Beauties, and more. Concert from October 20th 2012 at London, Ontario #39;s Wolf Performance Hall, concert a part of the Canadian Ataxia Conference lineup of events. http://www.bruteman.com http://www.sarahsmithmusic.com http://www.canadianataxiaconference.com http://www.lacaf.org mdash; at Wolf Performance Hall, Central Library London, OntarioFrom:CAFAcentralViews:0 0ratingsTime:06:59More inEntertainment

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[1 of 12] Bruteman Live! Concert 2012 (opening

How To Raise Kids Gluten Free – Video


How To Raise Kids Gluten Free
xxsurl.com How To Raise Kids Gluten Free How To Raise Kids Gluten Free ORDER NOW FAQ Disclaimer Privacy About Affiliates Contact Blog Attention: Parents of kids with celiac disease and/or gluten intolerance You Just Found Your DefinitiveGuide To Raising Happy Kids In A Gluten Free World This is an actual practical guide (not a theoretical-medical exposition) on how you can get your kids to survive and thrive despite celiac disease and/or gluten intolerance. ABSOLUTELY EVERYTHING you need to know about raising gluten-free kids from infancy to their teenage years is right here! This was written by a parent, for parents. Thank You Thank You Thank You!! What else can I say! I love your book. It has been so helpful to me but particularly for my child. We can now go out to restaurants I feel like T have got my life back!. We set our kitchen up just like you recommended and now never get any cross contamination. Thanks for that advise. And now I know where to get all the pre-manufacturedgluten-free food. WOW! I never knew there was so much variety until I read this book. Cant thats you enough. Lynn Dawson Dayton, Ohio USA Invaluable book, highly recommended My son was recently diagnosed as Gluten Intolerant, so I bought this book. I found it an invaluable resource and would I strongly recommend it to anyone looking for great advice and helpful hints and recommendations. Not only does it cover the medical aspects of the condition including what medical tests are available, but it ...From:robertroberts9865Views:0 0ratingsTime:01:48More inPeople Blogs

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How To Raise Kids Gluten Free - Video

Proteostasis Therapeutics Presents Data at Two Scientific Conferences for Lead Programs in Cystic Fibrosis and …

CAMBRIDGE, Mass.--(BUSINESS WIRE)--

Proteostasis Therapeutics, Inc., a company developing novel therapeutics that regulate protein homeostasis to improve outcomes for patients with neurodegenerative and orphan diseases, announced today that company scientists made presentations at two premier scientific conferences. These presentations highlighted progress with the Companys lead programs in cystic fibrosis (CF) and Parkinsons disease (PD) and demonstrated the potential of its differentiated approach to developing disease modifying therapeutics.

At the North American Cystic Fibrosis Conference, we presented data that show how our Proteostasis Network drug discovery platform can identify proteostasis regulators that function as correctors of F508 CFTR, the most common genetic mutation leading to CF. Our data at the Society for Neuroscience Annual Meeting show how the modulation of proteasome activation through the inhibition of Usp14, a deubiquitinase enzyme, stimulates the degradation of -synuclein, a misfolding- and aggregation-prone protein that can accumulate in the brains of PD patients, commented Peter H. Reinhart, Ph.D., President and Chief Scientific Officer of Proteostasis Therapeutics.We are planning to begin clinical trials for both programs in 2014 and are very encouraged by the data we have generated to date.

About Proteostasis Therapeutics

Proteostasis Therapeutics is developing disease-modifying therapeutics for orphan and neurodegenerative diseases. The Companys lead programs in cystic fibrosis (CF) and protein aggregation disorders such as Parkinsons disease (PD) modulate protein chaperone and proteasomal degradation pathways within the cell. These pathways are part of the cellular quality control machinery, called the protein homeostasis network or Proteostasis Network (PN) that regulates protein folding, trafficking, and clearance. By enhancing the function and capacity of the PN, the Companys product candidates correct for imbalances in the PN resulting from the cumulative effects of disease, genetic mutations, environmental factors, and aging. For more information, please visit the Companys website at http://www.proteostasis.com.

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Proteostasis Therapeutics Presents Data at Two Scientific Conferences for Lead Programs in Cystic Fibrosis and ...