Cardiac Update: Friedreich's Ataxia and the Heart (5 of 14) – Video

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Cardiac Update: Friedreich #39;s Ataxia and the Heart (5 of 14)
Kimberly L. Lin, MD, discusses heart problems that have been observed in pediatric patients with Friedreich #39;s Ataxia, such as hypertrophic cardiomyopathy (HCM), dilated cardiomyopathy and arrhythmias, and the following-up, testing and treatment of heart conditions in children with FA.From:ChildrensHospPhilaViews:9 0ratingsTime:31:33More inScience Technology

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Cardiac Update: Friedreich's Ataxia and the Heart (5 of 14) - Video

Fifth Annual Friedreich's Ataxia Symposium – Panel Discussion: Accessible Travel (12 of 14) – Video

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Fifth Annual Friedreich #39;s Ataxia Symposium - Panel Discussion: Accessible Travel (12 of 14)
Dynah Haubert, Tom Trovinger and Norm Simpson share their expertise and advice about planning for travel and travel experience for people with disabilities. In addition, Dynah Haubert discusses the legal rights of travelers with disabilities.From:ChildrensHospPhilaViews:16 0ratingsTime:55:01More inScience Technology

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Fifth Annual Friedreich's Ataxia Symposium - Panel Discussion: Accessible Travel (12 of 14) - Video

Fifth Annual Friedreich's Ataxia Symposium – Open Question

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Fifth Annual Friedreich #39;s Ataxia Symposium - Open Question Answer Session (14 of 14)
Open question and answer session moderated by Ronald J. Bartek, President and Co-Founder FARA, during the Fifth Annual Friedreich #39;s Ataxia Symposium.From:ChildrensHospPhilaViews:10 0ratingsTime:41:35More inScience Technology

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Fifth Annual Friedreich's Ataxia Symposium - Open Question

No Techno 2.0 Xochimilco 21-12-12 – Video

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No Techno 2.0 Xochimilco 21-12-12
No Techno 2.0 - Xochimilco 21-12-12.... Ni el Fin del Mundo Nos Va Parar!!! #9658;Durs (Progressive Trance) | Spin Twist Rec | #9658;Akoustik (Progressive) | Play Label/Paax Kahn | Dj.Set´s #9658; Lacther (Progressive) | DATT | #9658;Straint Disorder (Hi Tech) | The Tribe/Mr/Ataxia Corp/Dnb/Kc | #9658;Beyond (Progressive Trance) | BDV | #9658;Tripingpsy (Hi Tech) | DnB Music / Minimatik Mexico | #9658; Blu3 P3rc3pt (Progressive Trance) | BDV | #9658;Vish-onary ( Full on Night Hi-Tech) | Tranzematic / Ataxia Corp | #9658;Vizhley (Progressive Trance) | DATT | #9658; Blue Fighter #39;s (Psy/ Full on Night Hi-Tech) | BDV//PSYMAFIA | #9658;Iktan (Progressive Trance) | Tranzematic | #9658;Zayed(Progressive Trance) | DATT |From:mixDjh15Views:0 2ratingsTime:01:30More inMusic

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No Techno 2.0 Xochimilco 21-12-12 - Video

Therapeutic Strategies and the FA Treatment Pipeline (13 of 14) – Video

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Therapeutic Strategies and the FA Treatment Pipeline (13 of 14)
Giovanni Manfredi, MD, PhD, Professor of Neurology and Neuroscience, Weill Medical College of Cornell University, recaps the therapeutic strategies for Friedreich #39;s Ataxia.From:ChildrensHospPhilaViews:17 0ratingsTime:14:44More inScience Technology

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Therapeutic Strategies and the FA Treatment Pipeline (13 of 14) - Video

Go The Tan 2012 TV coverage Ch9 – Video

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Go The Tan 2012 TV coverage Ch9
TV coverage of Go the Tan 2012. Our thanks to Ch9 News. FA (Friedreich Ataxia) is a degenerative neurological disease for which there #39;s currently neither treatment nor cure. FARA raises funds (and awareness) via events like Go The Tan in Melbourne in February each year. Find out more, and please donate to support our work, at http://www.fara.org.auFrom:Terry O #39;HanlonViews:3 0ratingsTime:00:29More inNonprofits Activism

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Go The Tan 2012 TV coverage Ch9 - Video

Toddler Diagnosed with Ataxia – Video

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Toddler Diagnosed with Ataxia
Marisol is a 4 year old girl diagnosed with ataxia. Before BalanceWear, her parents say she had a very difficult time keeping her balance and would fall 7-8 times a day, often hurting herself and ending up in the emergency room. This past August, she received the BalanceWear Stabilizing Garment and now wears it every day. These days, Marisol only falls about once a day and is able to run around and play with her friends and has recently learned to use a fork when eating. She and her family are so pleased with the contribution BalanceWear has made to her improvements, along with attending preschool and regular physical therapy. We are so happy to see her running around and enjoying being a little girl again!From:motiontherapeuticsViews:21 0ratingsTime:01:45More inScience Technology

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Toddler Diagnosed with Ataxia - Video

Building A Gingerbread House with Cerebral Palsy – Video

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Building A Gingerbread House with Cerebral Palsy
My name is Charisse and I have Cerebral Palsy, Low Tone and Ataxia. This is a video of me making a gingerbread house on my own for the first time. I spent all day building it and decorating it but I got it done! At the end I don #39;t have the gingerbread tree, snowman, and gingerbread man because my dog, Bailey, took all of them when I wasn #39;t looking and ate them up fast. Thank you for watching! Merry Christmas! Please visit my Facebook page; Charisse Living with Cerebral Palsy http://www.facebook.comFrom:jazzygirl585Views:33 6ratingsTime:04:51More inPeople Blogs

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Building A Gingerbread House with Cerebral Palsy - Video

Breaking Bella – Video

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Breaking Bella
An educational documentary on Friedreich #39;s Ataxia, and how it took a toll on the life of young Bella. Any coincidental likeness to any real person is unintentional. Media used (in order): Barbie Girl - Aqua Scene from the film "Titanic" Girl on Fire - Alicia Keys Bella #39;s Lullaby - "Twilight" soundtrack Doradora (instrumental) - UKISS Physical - Olivia Newton John We do not own any of the media and material we used in the video. All belongs to their rightful owners. All we own is the script. No copyright infringement intended.From:AdamantFireViews:39 1ratingsTime:06:10More inEducation

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Breaking Bella - Video

Making a Sand Art Ornament with Cerebral Palsy – Video

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Making a Sand Art Ornament with Cerebral Palsy
My name is Charisse and I have Cerebral Palsy, Low Tone and Ataxia. This is a video of me making a Christmas sand art ornament. My Ataxia was fighting with me in this video, it was making my hands shake and making it hard to control my arms and hands. Thank you for watching! Happy Holidays! Please visit my Facebook page; Charisse Living with Cerebral Palsy http://www.facebook.comFrom:jazzygirl585Views:447 29ratingsTime:08:55More inPeople Blogs

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Making a Sand Art Ornament with Cerebral Palsy - Video

Poet Jude Lally – Living With Friedreich's Ataxia – Video

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Poet Jude Lally - Living With Friedreich #39;s Ataxia
While it wasn #39;t easy being diagnosed with a rare progressive neuromuscular disease at the age of 16 Jude has tried to make the best of living with FA. His poem "Parking At Keeneland" comes from his first book "The View From Down Here" released in 2010 by Accents Publishing from Lexington, Kentucky.From:Lisa LallyViews:1 1ratingsTime:01:22More inPeople Blogs

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Poet Jude Lally - Living With Friedreich's Ataxia - Video

Inpatient Sleeping Drug Quadruples Risk of Falls – Video

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Inpatient Sleeping Drug Quadruples Risk of Falls
According to a Mayo Clinic study published in November of 2012 in the journal, Hospital Medicine, the use of sleeping pills such as Ambien (zolpidem) quadruple the risk of falls. These drugs, which stimulate GABA brain receptors, have side effects such as dizziness, ataxia, hallucinations, and even sleep walking, may be much of the reason why. Falls can lead to fractures, blood clots in the lungs, and head trauma. There are many other much safer and more effective sleep enhancement approaches such as music, meditation, hypnotherapy, guided imagery, autosuggestion, and even brain wave balancing that could be considered that don #39;t have significant and potentiallyl dangerous side effects. Of course, the underlying reasons for insomnia should be addressed too. Factors such as pain, sleep apnea, anxiety, depression, PTSD, and many others should be addressed whenever possible.From:DoctorSaputoViews:0 0ratingsTime:06:17More inEducation

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Inpatient Sleeping Drug Quadruples Risk of Falls - Video

Go The Tan 2012 TV coverage Ch7

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Go The Tan 2012 TV coverage Ch7 Ch10
TV coverage of Go the Tan 2012. Our thanks to Ch7 News, Ch10 News and The Project on Ch10. FA (Friedreich Ataxia) is a degenerative neurological disease for which there #39;s currently neither treatment nor cure. FARA raises funds (and awareness) via events like Go The Tan in Melbourne in February each year. Find out more, and please donate to support our work, at http://www.fara.org.auFrom:Terry O #39;HanlonViews:2 0ratingsTime:04:20More inNonprofits Activism

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Go The Tan 2012 TV coverage Ch7