"Autism Speaks U" advocacy group establishes on campus

Bobby Pendry, sophomore neuroscience major, and Megan Pruitt, senior psychology major and child development minor, combined their efforts with Naomi Ekas, assistant psychology professor, to bring "Autism Speaks U" to campus, making the university the third college in Texas to host the national organization.

Autism spectrum disorder (ASD), which encompasses autism, Aspergers and other mental disorders, are disorders that affect brain development, according to the official website. When referring to the range of disorders encompassed by ASD, it is called the spectrum.

The university chapter will focus on advocating and creating awareness of the disorder on campus, said Priutt, the president of the university's chapter of "Autism Speaks U". The group will have monthly meetings and fundraisers to create one big event each semester, she said.

Pruitt became interested in autism when she began working as a lab assistant for Ekas. She said her interest peaked because she was able to work with younger children with autism.

Pendry, vice president of the chapter,said he wanted to create an autism awareness group, similar to one he started in high school, because his brother is on the autism spectrum. Because the university does not allow more than one of certain kind of group, he decided to join the organization.

Robbins said she wants the group to be the "megaphone" for the metroplex.

Upcoming events:The first "Autism Speaks U" event will be on Oct. 19 at the Hope Center for Autism in Fort Worth. Students will babysit children while their parents have a night to themselves.

More:
"Autism Speaks U" advocacy group establishes on campus

“Autism Speaks U” advocacy group establishes on campus

Bobby Pendry, sophomore neuroscience major, and Megan Pruitt, senior psychology major and child development minor, combined their efforts with Naomi Ekas, assistant psychology professor, to bring "Autism Speaks U" to campus, making the university the third college in Texas to host the national organization.

Autism spectrum disorder (ASD), which encompasses autism, Aspergers and other mental disorders, are disorders that affect brain development, according to the official website. When referring to the range of disorders encompassed by ASD, it is called the spectrum.

The university chapter will focus on advocating and creating awareness of the disorder on campus, said Priutt, the president of the university's chapter of "Autism Speaks U". The group will have monthly meetings and fundraisers to create one big event each semester, she said.

Pruitt became interested in autism when she began working as a lab assistant for Ekas. She said her interest peaked because she was able to work with younger children with autism.

Pendry, vice president of the chapter,said he wanted to create an autism awareness group, similar to one he started in high school, because his brother is on the autism spectrum. Because the university does not allow more than one of certain kind of group, he decided to join the organization.

Robbins said she wants the group to be the "megaphone" for the metroplex.

Upcoming events:The first "Autism Speaks U" event will be on Oct. 19 at the Hope Center for Autism in Fort Worth. Students will babysit children while their parents have a night to themselves.

More:
"Autism Speaks U" advocacy group establishes on campus

Clinton Center hosts 2012 Walk Now for Autism Speaks

LITTLE ROCK (Oct. 6, 2012) - Every 11 minutes, another family receives the devastating news that their child has an autism spectrum disorder.

The third annual Arkansas Walk Now for Autism Speaksseeks to raise more than $105,000 for autism research and advocacy work. The event is today, October 6, at the Clinton Presidental Center.

"We continue to be pleasantly surprised and grateful to fellow Arkansans for the outstanding community support this event receives," said Dawn Itzkowitz, Autism Speaks co-chairwoman. "Not only is the walk a fundraiser to benefit the national Autism Speaks organization, the walk funds local grants to autism providers and introduces Arkansas families to each other and to resources in their area. We hope to see walkers from across the state at this event."

Searcy native Joe Aaron, perhaps best known as the co-creator of the Disney animated series Doug, joins the walk as a special guest. Aaron is an autism awareness advocate and is raising funds to film Guttersnipes, a feature film addressing autism, homelessness and race relations, in Arkansas. THV's own Ed Buckner and Craig O'Neill will serve as event emcees.

On-site, day-of registration begins at 8:30 a.m. The walk begins at 10 a.m.

The 2011 walk raised more than $99,000 for Autism Speaks and had more than 1,700 participants. This year's goal is to raise $105,000 from 1,800 participants and 140 teams.

The money raised funds autism research and advocacy work. Learn more at WalkNowforAutismSpeaks.org.

Autism Speak's goal is to change the future for all who struggle with autism spectrum disorders. They are dedicated to funding globalbiomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder.

(Source: Walk Now for Autism Speaks)

Read more from the original source:
Clinton Center hosts 2012 Walk Now for Autism Speaks

New Autism Criteria Will Have Minor Impact: Study

TUESDAY, Oct. 2 (HealthDay News) -- Parents should not worry that proposed changes to the criteria for diagnosing autism might leave their child ineligible for care, a new study indicates.

Researchers assessed the impact of the proposed changes, which were developed by an expert panel appointed by the American Psychiatric Association and are expected to take effect in May 2013.

Previous research had suggested that 45 percent or more of children who currently qualify for a diagnosis of autism would not under the new criteria. Those findings caused widespread concern among parents who depend on state-financed health services for their children, The New York Times reported.

However, this latest study concluded that only 10 percent of these children would be excluded under the new criteria.

"I know that parents worry, but I don't believe there is any substantial reason to fear that children who need to be diagnosed with autism spectrum disorders, and provided with vital services, will not be included in the new criteria in this updated manual," said study senior investigator Dr. Catherine Lord, director of the Center for Autism and the Developing Brain at New York-Presbyterian Hospital's Westchester campus, along with its affiliated medical schools Weill Cornell Medical College and Columbia University College of Physicians and Surgeons.

The study is the largest to date to try to determine the effects of the new diagnostic criteria for autism. It was published in the Oct. 1 issue of the American Journal of Psychiatry.

Lord and her colleagues looked at 4,453 children currently diagnosed with autism and found that 91 percent of them would still qualify for the diagnosis under the proposed new criteria. Many of the remaining 9 percent would likely qualify with additional input from their doctors, the study added.

The proposed changes are designed to better identify autism and to distinguish it from other conditions, the researchers said.

The overall issue with the current criteria is "not that a lot of people are diagnosed with autism who shouldn't be, but that there is a lot of confusion because the criteria were not very accurate," Lord, who was a member of the panel that proposed the new criteria, said in a hospital news release.

She explained that in developing the new criteria, the panel "deliberately added and organized things to try to bring in and better address the needs of people with autism spectrum disorders (ASD) of all developmental levels and ages -- including girls, who were not represented as well as they should be in" the current criteria.

More:
New Autism Criteria Will Have Minor Impact: Study

Neurons Made From Adult Cells In The Brain

Featured Article Academic Journal Main Category: Stem Cell Research Also Included In: Neurology / Neuroscience;Alzheimer's / Dementia;Parkinson's Disease Article Date: 06 Oct 2012 - 2:00 PDT

Current ratings for: Neurons Made From Adult Cells In The Brain

4.5 (2 votes)

The researchers write about their work in the 5 October online issue of Cell Stem Cell.

Much of the stem cell research that is going on into making new brain cells focuses on using stem and adult cells from other parts of the body and reprogramming them to form new brain cells and then implanting them into the brain.

For example, earlier this year, Stanford researchers in the US reported how they converted mouse skin cells directly into neural precursor cells, the cells that go on to form the three main types of cell in the brain and nervous system.

But corresponding author of this latest study, Benedikt Berninger, now at the Johannes Gutenberg University Mainz, says they are looking at ways of making new neurons out of cells that are already in the brain.

"The ultimate goal we have in mind is that this may one day enable us to induce such conversion within the brain itself and thus provide a novel strategy for repairing the injured or diseased brain," says Berninger in a press release.

A major challenge of finding cells already in the brain that can be coaxed into forming new neurons, is whether they will respond to reprogramming.

The cells that Berninger and colleagues are focusing on are called pericytes. These cells are found close to blood vessels in the brain and help maintain the blood-brain barrier that stops bacteria and other unwanted material crossing from the bloodstream into the brain.

See original here:
Neurons Made From Adult Cells In The Brain

Blind Mice Get Experimental Stem Cell Treatment For Blindness

April Flowers for redOrbit.com Your Universe Online

Columbia University ophthalmologists and stem cell researchers have developed an experimental treatment for blindness using the patients skin cells, which has improved the vision of blind mice in testing.

The findings of this research, published online in the journal Molecular Medicine, suggest that induced pluripotent stem cells (iPS) could soon be used to improve vision in people with macular degeneration and other eye retina diseases. iPS cells are derived from adult human skin cells but have embryonic qualities.

With eye diseases, I think were getting close to a scenario where a patients own skin cells are used to replace retina cells destroyed by disease or degeneration, says Stephen Tsang, MD, PhD, associate professor of ophthalmology and pathology & cell biology. Its often said that iPS transplantation will be important in the practice of medicine in some distant future, but our paper suggests the future is almost here.

Scientists were very excited by the advent of human iPS cells when they were discovered in 2007, as they provide a way to avoid the ethical complications of embryonic stem cells. Another advantage is that the iPS cells are created from the patients own skin, eliminating the need for anti-rejection medications. Like the ethically challenged embryonic cells, iPS cells can develop into any type of cell. To-date, no iPS cells have been implanted into people, but many ophthalmologists say that the eye would prove to be ideal testing ground for iPS therapies.

The eye is a transparent and accessible part of the central nervous system, and thats a big advantage. We can put cells into the eye and monitor them every day with routine non-invasive clinical exams, Tsang said. And in the event of serious complications, removing the eye is not a life-threatening event.

Professor Tsang is running a new preclinical iPS study using human iPS cells derived from the skin cells of a 53-year-old donor. The cells were first transformed with a cocktail of growth factors into cells in the retina that lie underneath the eyes light-sensing cells.

Retina cells nourish the light-sensing cells and protect the fragile cells from excess light, heat and cellular debris. In macular degeneration and retinitis pigmentosa, retina cells die, which allows the photoreceptor cells to degenerate causing the patient to lose their vision. It is estimated that 30 percent of people will have some form of macular degeneration by the time they are 75 years old, as it is the leading cause of vision loss in the elderly. Currently, it affects 7 million Americans and that is expected to double by 2020.

The Columbia research team injected the iPS-derived retina cells into the right eyes of 34 mice that had a genetic mutation that caused their retina cells to degenerate. In many of the mice, the iPS cells assimilated into the retina without disruption and functioned as normal retina cells well into the animals old age. Mice in the control group, who received injections of saline or inactive cells, showed no improvement in retina tests.

Our findings provide the first evidence of life-long neuronal recovery in a preclinical model of retinal degeneration, using stem cell transplant, with vision improvement persisting through the lifespan, Tsang says. And importantly, we saw no tumors in any of the mice, which should allay one of the biggest fears people have about stem cell transplants: that they will generate tumors.

Read the original:
Blind Mice Get Experimental Stem Cell Treatment For Blindness

RBCC Looks to China for Stem Cell Research

NOKOMIS, Fla.--(BUSINESS WIRE)--

In a continuing effort to expand its research into possible cures for neurological diseases gaining in prevalence, Rainbow Coral Corp.s (RBCC) biotech subsidiary, Rainbow Biosciences, is looking to China for possible partners for stem cell research.

Last month, RBCC announced that it was in talks to acquire a license to use a NASA-developed bioreactor to multiply adult stem cells for research. As RBCC closes in on an agreement with the cutting-edge devices license holders, Amarantus BioSciences (AMBS), China has emerged as a logical location to set up shop conducting medical research using the powerful tool.

With a massive, growing population of senior citizens and a scientific community that is receptive to advanced stem cell research, China could be an ideal choice for RBCCs work. Seniors are at the highest risk for devastating neurological disorders such as Parkinsons and Alzheimers, and the countrys number of senior citizens will hit 437 million by 2051.

Right now, all signs point to China as the obvious choice for both our company and our shareholders, said RBCC CEO Patrick Brown. The cheaper labor costs there, as well as a receptive market, make China a logical location to search for potential research partners that can utilize the bioassembler technology in a meaningful way.

There is certainly no space-age technology like the bioassembler available in China today, he added.

RBCC plans to pursue a license to use the bioreactor for stem cell expansion in China and other markets around the world potentially in excess of $100 billion.

Rainbow BioSciences is dedicated to developing new medical and research technology innovations to compete alongside companies such as Amgen Inc. (NASDAQ:AMGN),Cell Therapeutics, Inc. (CTIC), Abbott Laboratories (NYSE:ABT) andAffymax, Inc.(NASDAQ:AFFY).

For more information on Rainbow BioSciences, please visitwww.rainbowbiosciences.com/investors.

Follow us on Twitter atwww.twitter.com/RBCCinfo.

Go here to see the original:
RBCC Looks to China for Stem Cell Research

Potential new class of drugs blocks nerve cell death

Public release date: 1-Oct-2012 [ | E-mail | Share ]

Contact: Jennifer Brown jennifer-l-brown@uiowa.edu 319-356-7124 University of Iowa Health Care

Diseases that progressively destroy nerve cells in the brain or spinal cord, such as Parkinson's disease (PD) and amyotrophic lateral sclerosis (ALS), are devastating conditions with no cures.

Now, a team that includes a University of Iowa researcher has identified a new class of small molecules, called the P7C3 series, which block cell death in animal models of these forms of neurodegenerative disease. The P7C3 series could be a starting point for developing drugs that might help treat patients with these diseases. These findings are reported in two new studies published the week of Oct. 1 in PNAS Early Edition.

"We believe that our strategy for identifying and testing these molecules in animal models of disease gives us a rational way to develop a new class of neuroprotective drugs, for which there is a great, unmet need," says Andrew Pieper, M.D., Ph.D., associate professor of psychiatry at the UI Carver College of Medicine, and senior author of the two studies.

About six years ago, Pieper, then at the University of Texas Southwestern Medical Center, and his colleagues screened thousands of compounds in living mice in search of small, drug-like molecules that could boost production of neurons in a region of the brain called the hippocampus. They found one compound that appeared to be particularly successful and called it P7C3.

"We were interested in the hippocampus because new neurons are born there every day. But, this neurogenesis is dampened by certain diseases and also by normal aging," Pieper explains. "We were looking for small drug-like molecules that might enhance production of new neurons and help maintain proper functioning in the hippocampus."

However, when the researchers looked more closely at P7C3, they found that it worked by protecting the newborn neurons from cell death. That finding prompted them to ask whether P7C3 might also protect existing, mature neurons in other regions of the nervous system from dying as well, as occurs in neurodegenerative disease.

Using mouse and worm models of PD and a mouse model of ALS, the research team has now shown that P7C3 and a related, more active compound, P7C3A20, do in fact potently protect the neurons that normally are destroyed by these diseases. Their studies also showed that protection of the neurons correlates with improvement of some disease symptoms, including maintaining normal movement in PD worms, and coordination and strength in ALS mice.

Of mice and worms

Excerpt from:
Potential new class of drugs blocks nerve cell death

Amarantus BioSciences Announces Landmark MANF Genomics Publication

SUNNYVALE, Calif., Oct. 1, 2012 /PRNewswire/ -- Amarantus BioSciences, Inc. (AMBS), a biotechnology company developing new treatments for brain-related disorders including Parkinson's disease and Traumatic Brain Injuries (TBI) centered on its proprietary anti-apoptotic therapeutic protein known as MANF, today announced the publication of a landmark research paper on MANF, Amarantus' lead development program. The studies were conducted at the University of Helsinki, a research institution based in Helsinki, Finland, performing groundbreaking neuroscience research based in its' Department of Biosciences and Institute of Biotechnology. This research paper, published by Palgi et al., from Dr. Tapio Heino's laboratory at the University of Helsinki in the peer-reviewed journal BMC Genomics is entitled "Gene expression analysis of Drosophila Manf mutants reveals perturbations in membrane traffic and major metabolic changes," in which researchers describe the critical role MANF plays in the endoplasmic reticulum, the unfolded protein response (UPR), and dopaminergic neurons which are affected by Parkinson's Disease. http://www.ncbi.nlm.nih.gov/pubmed/22494833.

"This publication marks a significant advancement in our understanding of how the MANF molecule works in improving overall cellular function," said Dr. John W. Commissiong, Founder & Chief Scientist at Amarantus. "This could be very significant as the MANF Program is advanced for Parkinson's disease"

The MANF-family (MANF and CDNF) of proteins are remarkably conserved in evolution in multicellular organisms. Previous studies in Dr. Heino's laboratory carried out by Palgi et al. demonstrate that fruit fly, Drosophila melanogaster, Manf (DmMANF) is a true orthologue to mammalian MANF, meaning that the proteins have similar biological functions in the two systems. This was most clearly demonstrated by the observation that the lethal effects of the absence of DmMANF observed in Manf mutant flies are fully rescued by human MANF (hMANF). This gene orthology makes Drosophila a powerful genetic model that can be used to study MANF signaling pathways. Furthermore, DmMANF is specifically required for the maintenance of dopaminergic neurites because in Manf mutant embryos and larvae, dopaminergic neurites degenerate and dopamine levels are extremely low. Still, despite these important observations, little is known about the mechanism of action, and about the molecules that interact with the MANF/CDNF proteins.

Dr. Heino's research group has performed an extensive microarray analyses and report interesting genome-wide differences in gene expression between wild type flies, Manf mutant flies, and flies overexpressing Manf. The data obtained from functional annotation clustering, which provides information about biological pathways influenced by these genetic differences, revealed statistically significant enrichment of genes related to metabolism and membrane transport. The observed changes at the gene expression level were further supported by ultrastructural studies of the mutants, which revealed accumulation of vesicles and a structurally disorganized endoplasmic reticulum (ER). Altogether more than 40% of the known Drosophila genes related to the ER and the unfolded protein response (UPR) showed altered expression levels in the mutants. The researchers were also able to demonstrate that lack of DmMANF results in activation of UPR in vivo. Overexpression of DmMANF resulted in upregulation of genes involved in oxidation reduction, an important process that protects dopamine neurons from oxidative stress. Thus, the results support the previously reported findings in mammalian cells that upregulation of MANF is important in the UPR and is protective for the cell. The UPR has been implicated in several human neurodegenerative diseases.

Dr. Mari Palgi, the lead author on the study observed that, "Additionally, this microarray study in Drosophila revealed several other genes and processes implicated in the pathology of Parkinson's disease such as mitochondrial Htra2 and DJ-1, oxidative phosphorylation, and protein ubiquitination. Interestingly, despite the very low dopamine levels in Manf mutants, the genes involved in dopamine synthesis and metabolism showed clear upregulation."

About Amarantus BioSciences, Inc.

Amarantus BioSciences, Inc. is a development-stage biotechnology company founded in January 2008. The Company has a focus on developing certain biologics surrounding the intellectual property and proprietary technologies it owns to treat and/or diagnose Parkinson's disease, Traumatic Brain Injury and other human diseases. The Company owns the intellectual property rights to a therapeutic protein known as Mesencephalic-Astrocyte-derived Neurotrophic Factor ("MANF") and is developing MANF-based products as treatments for brain disorders. The Company also is a Founding Member of the Coalition for Concussion Treatment (#C4CT), a movement initiated in collaboration with Brewer Sports International seeking to raise awareness of new treatments in development for concussions and nervous-system disorders. For further information please visit http://www.Amarantus.com.

Forward Looking Statements

This press release contains forward-looking statements within the meaning of the Private Securities Litigation Reform Act of 1995. Such statements include, but are not limited to, statements about the possible benefits of MANF therapeutic applications and/or advantages presented by Amarantus' PhenoGuard technology, as well as statements about expectations, plans and prospects of the development of Amarantus' new product candidates. These forward-looking statements are subject to a number of risks, uncertainties and assumptions, including the risks that the anticipated benefits of the therapeutic drug candidates or discovery platforms, as well as the risks, uncertainties and assumptions relating to the development of Amarantus' new product candidates, including those identified under "Risk Factors" in Amarantus' most recently filed Annual Report on Form 10-K and Quarterly Report on Form 10-Q and in other filings Amarantus periodically makes with the SEC. Actual results may differ materially from those contemplated by these forward-looking statements Amarantus does not undertake to update any of these forward-looking statements to reflect a change in its views or events or circumstances that occur after the date of this presentation.

MEDIA CONTACTS Amarantus BioSciences, Inc. Gerald E. Commissiong 408-737-2734 pr@amarantus.com

See the article here:
Amarantus BioSciences Announces Landmark MANF Genomics Publication

Researchers define 2 categories of multiple sclerosis patients

Public release date: 26-Sep-2012 [ | E-mail | Share ]

Contact: Marjorie Montemayor-Quellenberg mmontemayor-quellenberg@partners.org 617-534-2208 Brigham and Women's Hospital

BOSTON, MAThere are approximately 400,000 people in the United States with multiple sclerosis. Worldwide, the number jumps to more than 2.1 million people. Rather than a one-size-fits-all approach to treating the millions with multiple sclerosis, what if doctors could categorize patients to create more personalized treatments? A new study by researchers at Brigham and Women's Hospital (BWH) may one day make this idea a reality in the fight against the debilitating autoimmune disease.

A research team led by Philip De Jager, MD, PhD, BWH Department of Neurology, senior study author, has found a way to distinguish patients with multiple sclerosis into two meaningful subsets. The ability to categorize patients with multiple sclerosis may open new doors for treatment development.

The study will be electronically published on September 26, 2012 in Science Translational Medicine.

"Our results suggest that we can divide the multiple sclerosis patient population into groups that have different levels of disease activity," said De Jager. "These results motivate us to improve these distinctions with further research so that we may reach our goal of identifying the best treatment for each individual who has multiple sclerosis."

De Jager and his team extracted RNAkey molecules involved in making proteins from the instructions found in the DNA sequencefrom blood cells of patients with multiple sclerosis. After analyzing the samples, they found distinct sets of RNA molecules among the patient samples. These unique sets formed a transcriptional signature that distinguished two sets of multiple sclerosis patientsMSa patients and MSb patientswith those in the MSa group having a higher risk for future multiple sclerosis relapse.

According to the researchers, knowing the category a person with multiple sclerosis is in may help doctors make more informed treatment decisions. For instance, since a patient who falls into the MSa category is more likely to experience relapse, her doctor may consider a stronger treatment for the patient.

In light of the discovery, the researchers remain cautious about the findings.

"Our study is an important step towards the goal of personalized medicine in MS, but much work remains to be done to understand under which circumstance and in combination with which other information this transcriptional signature may become useful in a clinical setting," said De Jager.

See the article here:
Researchers define 2 categories of multiple sclerosis patients

Lewy Body Dementia Association (LBDA) Is Making October "A Month to Remember"

Newswise ATLANTA (October 1, 2012) The Lewy Body Dementia Association (LBDA) announces today is the first day of nationwide October Lewy body dementia awareness month, A Month To Remember. LBDA invited volunteers to join the awareness movement by Standing Strong with LBDA to build awareness for Lewy body dementia in their communities all month long. The LBD Awareness Movement is a national, grass roots effort to increase LBD awareness in the general public and medical profession. Participants in the movement are getting involved with LBDA in several ways to make Lewy body dementia (LBD) become a household word, from distributing materials in their community and to local physicians offices, to organizing outreach or community fundraising events.

Lewy body dementia (LBD) affects an estimated 1.3 million individuals and their families in the United States. It is currently widely underdiagnosed because LBD symptoms can closely resemble other more commonly known diseases like Alzheimers and Parkinsons. Many doctors or other medical professionals still are not familiar with LBD. Early diagnosis allows for important early treatment that may extend quality of life.

Given the growing population of older Americans, at some point in your life LBD will likely affect someone you know, said Angela Herron, President of LBDAs Board of Directors. The general public, and far too many primary care doctors and nurses, have never heard of LBD. In addition to trying to manage a very difficult disease, LBD families find themselves in the unanticipated role of educator and advocate.

These are just a few of the outstanding efforts around the country: Karen F. of Allentown, PA has 8 outreach events and media activities in October Rachael V. and Samantha L. are organizing the 1st Annual LBD Walk for Awareness in Abilene, TX on Oct. 20! Karen M. organized the Giddy-Up for Gary 5K in Omaha, NE on Oct. 12! Sue Ellen J. is doing an outreach event, delivering posters and materials to physicians and getting the word out and the PSAs to her local media in Austin, TX!

Check out LBDAs online calendar for all of the events for October Awareness Month!

LBDA is also encouraging Awareness Movement participants throughout the country to engage with each other locally by joining a Hub of Hope in their community. LBDA Hubs of Hope provide opportunities to connect LBD families and friends in local areas to build a network of resources for caregivers and people with LBD, as well as engage them in social and educational programs about LBD. To join LBDAs awareness movement, A Month To Remember, and for more information please visit http://www.lbda.org/go/awareness.

The Lewy Body Dementia Association The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances. Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit http://www.lbda.org.

Go here to see the original:
Lewy Body Dementia Association (LBDA) Is Making October "A Month to Remember"

Lewy Body Dementia Association (LBDA) Is Making October “A Month to Remember”

Newswise ATLANTA (October 1, 2012) The Lewy Body Dementia Association (LBDA) announces today is the first day of nationwide October Lewy body dementia awareness month, A Month To Remember. LBDA invited volunteers to join the awareness movement by Standing Strong with LBDA to build awareness for Lewy body dementia in their communities all month long. The LBD Awareness Movement is a national, grass roots effort to increase LBD awareness in the general public and medical profession. Participants in the movement are getting involved with LBDA in several ways to make Lewy body dementia (LBD) become a household word, from distributing materials in their community and to local physicians offices, to organizing outreach or community fundraising events.

Lewy body dementia (LBD) affects an estimated 1.3 million individuals and their families in the United States. It is currently widely underdiagnosed because LBD symptoms can closely resemble other more commonly known diseases like Alzheimers and Parkinsons. Many doctors or other medical professionals still are not familiar with LBD. Early diagnosis allows for important early treatment that may extend quality of life.

Given the growing population of older Americans, at some point in your life LBD will likely affect someone you know, said Angela Herron, President of LBDAs Board of Directors. The general public, and far too many primary care doctors and nurses, have never heard of LBD. In addition to trying to manage a very difficult disease, LBD families find themselves in the unanticipated role of educator and advocate.

These are just a few of the outstanding efforts around the country: Karen F. of Allentown, PA has 8 outreach events and media activities in October Rachael V. and Samantha L. are organizing the 1st Annual LBD Walk for Awareness in Abilene, TX on Oct. 20! Karen M. organized the Giddy-Up for Gary 5K in Omaha, NE on Oct. 12! Sue Ellen J. is doing an outreach event, delivering posters and materials to physicians and getting the word out and the PSAs to her local media in Austin, TX!

Check out LBDAs online calendar for all of the events for October Awareness Month!

LBDA is also encouraging Awareness Movement participants throughout the country to engage with each other locally by joining a Hub of Hope in their community. LBDA Hubs of Hope provide opportunities to connect LBD families and friends in local areas to build a network of resources for caregivers and people with LBD, as well as engage them in social and educational programs about LBD. To join LBDAs awareness movement, A Month To Remember, and for more information please visit http://www.lbda.org/go/awareness.

The Lewy Body Dementia Association The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances. Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit http://www.lbda.org.

Go here to see the original:
Lewy Body Dementia Association (LBDA) Is Making October "A Month to Remember"

Overnight dementia care gives caregivers some rest

NEW YORK (AP) Just after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."

"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.

The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.

It's meant to provide care and activity lots of activity to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers usually a son or daughter with a treasured night's sleep.

"Without this program, my father would be lost, and I would be crazy," said Robert Garcia, whose 82-year-old father, Felix, is in the program at the Hebrew Home at Riverdale called ElderServe at Night. "He doesn't sleep. At night he's wide awake, and he needs activity."

Garcia, who lives in a Bronx apartment with his wife and three of their children, said that before his father went into the program he would wake up in the night, loudly, and keep everyone else from sleeping.

"We would all wake up, and my daughter would ask, 'Why is Grandpa screaming? Why is he so grumpy?'" Garcia said.

"Now he comes home in the morning, shows me his drawings, tells me what they did all night."

While many nursing homes offer temporary "respite care" so caregivers can catch up on sleep or go on vacation, the overnight-only program at the Hebrew Home fills a niche.

But costs are high, and such programs are rare. An official at the Alzheimer's Association said she knew of no other.

Follow this link:
Overnight dementia care gives caregivers some rest

Dementia 'night camp' gives caregivers a rest

Jim Fitzgerald / AP

Victor Rivera dances with a dementia patient Sept. 20 at the Hebrew Home at Riverdale in the Bronx borough of New York. The Hebrew Home has a program that provides care and activity overnight for dementia victims with sleep problems.

By JIM FITZGERALD, AP

NEW YORKJust after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."

"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.

The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.

It's meant to provide care and activity lots of activity to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers usually a son or daughter with a treasured night's sleep.

"Without this program, my father would be lost, and I would be crazy," said Robert Garcia, whose 82-year-old father, Felix, is in the program at the Hebrew Home at Riverdale called ElderServe at Night. "He doesn't sleep. At night he's wide awake, and he needs activity."

Garcia, who lives in a Bronx apartment with his wife and three of their children, said that before his father went into the program he would wake up in the night, loudly, and keep everyone else from sleeping.

See the rest here:
Dementia 'night camp' gives caregivers a rest

Dementia ‘night camp’ gives caregivers a rest

Jim Fitzgerald / AP

Victor Rivera dances with a dementia patient Sept. 20 at the Hebrew Home at Riverdale in the Bronx borough of New York. The Hebrew Home has a program that provides care and activity overnight for dementia victims with sleep problems.

By JIM FITZGERALD, AP

NEW YORKJust after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."

"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.

The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.

It's meant to provide care and activity lots of activity to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers usually a son or daughter with a treasured night's sleep.

"Without this program, my father would be lost, and I would be crazy," said Robert Garcia, whose 82-year-old father, Felix, is in the program at the Hebrew Home at Riverdale called ElderServe at Night. "He doesn't sleep. At night he's wide awake, and he needs activity."

Garcia, who lives in a Bronx apartment with his wife and three of their children, said that before his father went into the program he would wake up in the night, loudly, and keep everyone else from sleeping.

See the rest here:
Dementia 'night camp' gives caregivers a rest

Overnight dementia 'camp' allows caregivers rest

NEW YORK (AP) Just after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."

"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.

The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.

It's meant to provide care and activity lots of activity to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers usually a son or daughter with a treasured night's sleep.

"Without this program, my father would be lost, and I would be crazy," said Robert Garcia, whose 82-year-old father, Felix, is in the program at the Hebrew Home at Riverdale called ElderServe at Night. "He doesn't sleep. At night he's wide awake, and he needs activity."

Garcia, who lives in a Bronx apartment with his wife and three of their children, said that before his father went into the program he would wake up in the night, loudly, and keep everyone else from sleeping.

"We would all wake up, and my daughter would ask, 'Why is Grandpa screaming? Why is he so grumpy?'" Garcia said.

"Now he comes home in the morning, shows me his drawings, tells me what they did all night."

While many nursing homes offer temporary "respite care" so caregivers can catch up on sleep or go on vacation, the overnight-only program at the Hebrew Home fills a niche.

But costs are high, and such programs are rare. An official at the Alzheimer's Association said she knew of no other.

Excerpt from:
Overnight dementia 'camp' allows caregivers rest

Overnight dementia ‘camp’ allows caregivers rest

NEW YORK (AP) Just after 10 p.m., when most people their age are going to sleep, a group of elderly folks suffering from dementia are just getting started, dancing and shaking tambourines and maracas in a raucous version of "La Bamba."

"It's a party," says an 81-year-old woman, among dozens of patients brought to a Bronx nursing home every night for a structured series of singalongs, crafts and therapy sessions that lasts until dawn.

The program, which appears to be rare, is kind of a "night camp" for dementia victims who don't sleep at night or tend to wake up agitated or become frightened or disoriented by the fall of darkness.

It's meant to provide care and activity lots of activity to fill the wee hours for people with Alzheimer's and similar diseases who live at home. And it's meant to provide their caregivers usually a son or daughter with a treasured night's sleep.

"Without this program, my father would be lost, and I would be crazy," said Robert Garcia, whose 82-year-old father, Felix, is in the program at the Hebrew Home at Riverdale called ElderServe at Night. "He doesn't sleep. At night he's wide awake, and he needs activity."

Garcia, who lives in a Bronx apartment with his wife and three of their children, said that before his father went into the program he would wake up in the night, loudly, and keep everyone else from sleeping.

"We would all wake up, and my daughter would ask, 'Why is Grandpa screaming? Why is he so grumpy?'" Garcia said.

"Now he comes home in the morning, shows me his drawings, tells me what they did all night."

While many nursing homes offer temporary "respite care" so caregivers can catch up on sleep or go on vacation, the overnight-only program at the Hebrew Home fills a niche.

But costs are high, and such programs are rare. An official at the Alzheimer's Association said she knew of no other.

Excerpt from:
Overnight dementia 'camp' allows caregivers rest

Autism Center receives gift from Hussman foundation

Home News

30 September 2012 By Jonathan Munshaw, News Editor One Comment

Abby Murphy/ The Towerlight

After receiving a $1.25 million gift from the John P. Hussman Foundation, the Towson University Center for Adults with Autism has constructed a life skills center inside the Towson City Center. The skills center includes a fully-functional kitchen, living room, bedroom and bathroom that students on the spectrum of autism use to gain social and life skills that are often impeded by autism. The autism center used to only exist in a 150 square-foot space, Ray Stinar administrative director for the Center for Adults with Autism said. Last year, we had a student who would not come out of his room for eight hours, because he couldnt decide what shirt to put on, Stinar said. For us, thats not that big of a deal, its something that we do every day, but for him, it was a huge task and eventually he got it, but those are the types of things that adults on the spectrum need help with. With help from the Baltimore County Government as well as the gift from the Hussman Foundation, the center was able to move into the Towson City Center and open several classrooms, including an animation lab and the life skills center. In addition to the faculty members at the center, student mentors also assist the students and adults on the spectrum. Since weve moved, weve seen a huge increase in interest to volunteer with us, Rhonda Greenhaw, director of the center for adults with autism, said. Its really exciting because we keep expanding every year. Greenhaw said that the students and adults are learning practical skills and that in the near future, some of the students with autism will also work in dining halls. We just really hope that students can learn these skills so they have something to contribute, and could hopefully turn these skills into a job, she said. The gift came out of a mutual understanding between the University and the Hussman Foundation, Greenhaw said. [The Hussman Foundation] is the largest funder of autism research, so it was a huge vote of confidence to us because they are putting their faith in our program, she said. The center has a lease in the City Center for the next 10 years, according to Greenhaw, and staff wants even more students to volunteer. Autism is really an internal experience, she said. Thats why its important to have a program like this, because it allows the adults on the spectrum to work these things out for themselves. We want them to build up these experiences, and take them outside of the center and revolutionize the community.

See the original post here:
Autism Center receives gift from Hussman foundation

Autism on the Rise and a Young Mother's Struggle

Olga Chinchilla, then 18 and pregnant, sat glued to the television screen, intrigued by a report on a developmental disorder that impairs social skills.

"I remember sitting there and had never heard about the disability before," said Chinchilla. "Little did I know that in three years my son Anakin was going to be diagnosed with autism." Initially, she said she ignored signs that her son potentially had autism a developmental disorder that is exhibited in impaired comprehension, language barriers, and repetitive behaviors because she was in shock and did not quite know what to expect. "I was the one in denial," she said. Her family's reaction did not help. "Being Hispanic, the typical thing they tell you is that 'it's okay, he's a boy. Boys develop a lot slower than girls do.'"

But there was something alarming and oddly different about Anakin's behavior. At 12 months, he could not walk or talk. There were many times when Anakin could not even look his mother directly in the eyes. He did not like it when anyone touched him and he would often slam doors and spin objects in a repetitive manner warning signs that eventually prompted Chinchilla to seek help from a pediatrician, a health center and then a psychologist.

Chinchilla, now 24, has transitioned from initial disbelief and denial of her son's diagnosis, to struggling as a single mother to find the right resources for Anakin and later advocating and educating others about the rights of families of children with developmental disabilities in the Alhambra area.

Anakin was diagnosed with autism at 22 months and later began receiving funds for ABA therapies at age four at Alhambra's East Los Angeles Regional Center (ELARC), one of 21 resource and service centers in the state of California catering to individuals with developmental disabilities.

Gloria Wong, executive director of ELARC says that 38 percent of their clients are diagnosed with autism, the second largest diagnosis at the center, after mental retardation. Nationally, autism cases have spiked in recent years. According to the Centers for Disease Control and Prevention, 1 in 88 children have been diagnosed with an autism spectrum disorder, a 23 percent increase from CDC's 2009 report. Additionally, more children are being diagnosed at an earlier age and the disability seems much more prevalent in boys than girls.

"There is really an unknown reason for that spike that continues to grow, but there have been studies in terms of what is spiking the ongoing growth in California," said Wong.

Olga Chinchilla and her son Anakin. Shortly after her son's diagnosis, Chinchilla recalls struggling to work as a full-time medical assistant while providing Anakin the special care he needed.

"I was in Rosemead at one point, and I tried two different daycares within a week," Chinchilla said. "I would get off work and get there crying....You try to make a living for your child, you go to work but the whole day, you wonder, 'how's my kid?'"

Chinchilla realized that Anakin needed more than just regular daycare service; he needed a place that catered to children with developmental disabilities. But the search for special daycares was a challenge, and as a single mother, she was not able to afford the cost many of which were well over $30,000 a year.

Read this article:
Autism on the Rise and a Young Mother's Struggle

Autism on the Rise and a Young Mother’s Struggle

Olga Chinchilla, then 18 and pregnant, sat glued to the television screen, intrigued by a report on a developmental disorder that impairs social skills.

"I remember sitting there and had never heard about the disability before," said Chinchilla. "Little did I know that in three years my son Anakin was going to be diagnosed with autism." Initially, she said she ignored signs that her son potentially had autism a developmental disorder that is exhibited in impaired comprehension, language barriers, and repetitive behaviors because she was in shock and did not quite know what to expect. "I was the one in denial," she said. Her family's reaction did not help. "Being Hispanic, the typical thing they tell you is that 'it's okay, he's a boy. Boys develop a lot slower than girls do.'"

But there was something alarming and oddly different about Anakin's behavior. At 12 months, he could not walk or talk. There were many times when Anakin could not even look his mother directly in the eyes. He did not like it when anyone touched him and he would often slam doors and spin objects in a repetitive manner warning signs that eventually prompted Chinchilla to seek help from a pediatrician, a health center and then a psychologist.

Chinchilla, now 24, has transitioned from initial disbelief and denial of her son's diagnosis, to struggling as a single mother to find the right resources for Anakin and later advocating and educating others about the rights of families of children with developmental disabilities in the Alhambra area.

Anakin was diagnosed with autism at 22 months and later began receiving funds for ABA therapies at age four at Alhambra's East Los Angeles Regional Center (ELARC), one of 21 resource and service centers in the state of California catering to individuals with developmental disabilities.

Gloria Wong, executive director of ELARC says that 38 percent of their clients are diagnosed with autism, the second largest diagnosis at the center, after mental retardation. Nationally, autism cases have spiked in recent years. According to the Centers for Disease Control and Prevention, 1 in 88 children have been diagnosed with an autism spectrum disorder, a 23 percent increase from CDC's 2009 report. Additionally, more children are being diagnosed at an earlier age and the disability seems much more prevalent in boys than girls.

"There is really an unknown reason for that spike that continues to grow, but there have been studies in terms of what is spiking the ongoing growth in California," said Wong.

Olga Chinchilla and her son Anakin. Shortly after her son's diagnosis, Chinchilla recalls struggling to work as a full-time medical assistant while providing Anakin the special care he needed.

"I was in Rosemead at one point, and I tried two different daycares within a week," Chinchilla said. "I would get off work and get there crying....You try to make a living for your child, you go to work but the whole day, you wonder, 'how's my kid?'"

Chinchilla realized that Anakin needed more than just regular daycare service; he needed a place that catered to children with developmental disabilities. But the search for special daycares was a challenge, and as a single mother, she was not able to afford the cost many of which were well over $30,000 a year.

Read this article:
Autism on the Rise and a Young Mother's Struggle