Daily Archives: February 6, 2021

Gunnar Esiason and Emily Kramer-Golinkoff, Opinion contributors Published 7:00 a.m. ET Feb. 4, 2021

There are many questions surrounding Covid-19 vaccines, one of which is whether vaccines can be mixed and matched. Veuers Johana Restrepo has more. Buzz60

When it comes to getting vaccinated, why are many Americans with cystic fibrosis behind people working remotely, smokers, and cannabis growers?

In March, the term underlying condition was used toreassurehealthy Americans about their risk as COVID-19 overwhelmed New York Citys hospitals. Media reports saidoverandoverthat underlying health conditions presented an enormous amount of risk for Americans.

Yet, in many states people living with serious underlying conditions are still waiting for COVID-19 vaccines, prioritized below individuals with lower risk. Suddenly, it seems underlying health conditions are considered nothigh risk enough.

We live with cystic fibrosis (CF), a rare and fatal genetic disease associated with respiratory decline and failure. In 2019, the median age of death for individuals with CF in the United States was32.4 years old. And that'sunder the best of circumstances, notduring a pandemic.

When cases of COVID-19 started mounting nationwide, our patient community wasquickly urgedto stock up on supplies and stay home.Like the millions of Americans with underlying conditions, our goal was topreventexposure to COVID-19.

More than 30,000 people in the United States have CF. As of mid-January, at least799 individuals with CF have contracted COVID-19 in the U.S. with almost15% requiring hospitalization,according to a webinarhostedby the Cystic Fibrosis Foundation. According to preliminary data from theEuropean Cystic Fibrosis Society,the hospitalization rate for confirmed COVID-19 cases in Europeis almost 28%.

The risk for bad outcomes from COVID-19 increasesefor CF patientswith advanced lung disease, diabetes, or if they have received a double lung transplant.

Clearly, access to COVID-19 vaccines couldsubstantially reduce the risk of severe outcomesfrom the virus.

We have watched lower risk populations,including hospital employeeswithout direct patient careresponsibilities, universityfacultyable to teach remotely, and vaccine chasers receive their shots.

The specific prioritization varies state by state, but people with serious underlying conditions are finding themselves at the back of the line across the country, often because they are younger in age.

In Pennsylvania, people with CF are waiting in line behindsmokersand in Maryland, they are waiting behindcannabis growers. InWashingtonandMichigan, people with CF may have to wait until the spring or summer.

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In some parts of the country, likeNorth CarolinaandCalifornia, vaccines are beingallocated by agerather thanrisk of serious outcomes, thereby leaving people with life-shortening diseases like CF behind.

Why are people with underlying health conditions who may have substantial risk for bad outcomes from COVID-19 being forced to wait for vaccines?

It is because we are stuck in a high-risk limbo.In some ways, orders to stay at home as much as possible worked, but now they are being used against us.

Because of our conditionssmall patient population sizeand our strict adherence to social distancing guidelines, states don't have complete information when it comes to the risks we face aftercontracting COVID-19. Imperfect data should not beused to set policy.

With advanced stage disease, I (Emily) am at particularly high risk. I have not left my house aside from a daily masked and socially distanced walk since March. I have not stepped foot in a grocery store or restaurant, and I have had to convert all of my medical care to telehealth. While telehealth has many benefits, the reality remains that a zoom call with ones doctors is not a substitute for in-person care, nor is it always possible.

Emily Kramer-Golinkoff in Philadelphia in July 2018.(Photo: Cheyenne Gil)

Disability advocates are rightly frustrated with vaccine allocation. CF is not the only condition to be disadvantaged in the rollout. People living with asthma, dementia, hypertension, liver disease, andother rareconditionsare also having towait behind healthy Americans.

Only one of us (Emily) has been able to receive the first dose of a vaccine, while the other (Gunnar) has had no luck so far. We are a microcosm of the frustration our patient community faces in gaining access to vaccines.

Instead, we aretold to stay home.

Now, it is almost as if staying home is presented to us as an alternative to vaccination. Chronic conditions often require in-person medical care that put us at high risk for exposure. In addition, people with CF and their family members rely on jobs for rent, food and health insurance just like everyone else that cannot always be done remotely. They alsohave children that go to schooland require child care. Just staying home is simply untenable for many.

Beyond the practical considerations, the suggestion that people with underlying conditions just stay home while we wait for later phases of the rollout is a solution steeped in discrimination. Providing vaccinations to lower risk people makes society accessible again for able-bodied people, while those of us with underlying medical conditions and disabilities are tucked away, expected to put our lives on hold, and wait.

Virginia fails to protect elderly: My parents caught COVID while vaccines languish unused

The insistence that we simply stay home denies our worth and value to society and treats us as second class citizens. The effect is a perpetuation of systemic ableism and widening of pre-existing inequity among sick and disabled populations.

Just staying home is not a substitute for vaccines.

Gunnar Esiason in Hanover, New Hampshire, in February 2020.(Photo: Family handout)

Highly effective vaccines are finally available. Now the onus is on policy makers to allocate them justly and equitably. That includes providing them to people with serious underlying conditions. This is particularly critical now as new coronavirusvariantsemerge in the US.

After all, for many of us with serious underlying conditions, a vaccine now versus in a few weeks or months can be the difference between life and death.

Gunnar Esiason, aMaster of Business Administration/Master of Public Healthcandidate at the Tuck School of Business at Dartmouth, lives with cystic fibrosis and is a rare disease patient leader with the BoomerEsiason Foundation. Follow him on Twitter @G17Esiason

Emily Kramer-Golinkoff, a Master of Bioethics,lives with advanced stage cystic fibrosis and is theco-founder of Emilys Entourage, which promotes research and drug development for Cystic Fibrosis,and a patient advocate and speaker. Follow Emily on Twitter at @emilykg1 and Emilys Entourage at @EmilysEntourage.

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Having an underlying health condition doesn't mean we move up the COVID-19 vaccine line - USA TODAY

In April 2020, CF PharmTech and Chengdu Shangyi launched the "Home-Based Recovery Program for Discharged Covid-19 Patients". Under the guidance of Professor Li Jian'an, a member of the American Academy of Medical Sciences and Director of the Rehabilitation Medical Center of the First Affiliated Hospital of Nanjing Medical University, they successfully conducted studies of discharged Covid-19 patients using sports rehabilitation remote monitoring by "R Plus Health" App.

The clinical results exceeded everyone's expectations. Professor Li Jian'an concluded that the effect of sports rehabilitation monitoring for patients using the App was comparable to the effect from care given patients in the "Mobile Cabin Hospital" in Wuhan. The companies jointly launch the free "R Plus Health" App globally today.

The App is the world's clinically proven and effective, home-based rehabilitation treatment for Covid-19 patients. It is the first "patented digital therapy" approved by the NMPA(National Medical Products Administration). The main function of the App is its remote intelligent cardiopulmonary/muscle/nutrition assessment, combining the wearable equipment with prepackaged medicinal supplements.

The App will assist in improving the cardiopulmonary endurance and immunity of Covid-19 patients, susceptible populations, high-risk contacts, elderly people and children with poor immunity. Once users register, the App carries out intelligent assessments including questionnaires, and cardiopulmonary endurance and body function tests. After an evaluation, users can access a personalized exercise program including sports type, intensity, length of time and frequency. Users simply need to follow the sports training videos and do the exercises. The effect will be enhanced if the App is connected to intelligent equipment.

Since the outbreak of Covid-19, more than 100 million people have been diagnosed worldwide, and the number of infected individuals is increasing rapidly. It has become a global pandemic. Join the "R Plus Health" App to enhance physical fitness, improve immunity and fight against the coronavirus.

How to download:1.Search for "R Plus Health" App in the Apple Store or Google Play2.Click the link: https://download.rplushealth.cn/app/patient

SOURCE CF PharmTech, Inc.

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CF PharmTech and Chengdu Shangyi Launch the "Home-Based Recovery Program for Discharged Covid-19 Patients" and Announce Today's Global...

Once regarded as one of the Philadelphia Phillies top young talents, Scott Kingery did not have the 2020 that we were all expecting from him. After a nasty bout with COVID-19 leading into the shortened season, Kingery simply never got his feet under him. He finished the year with career-worsts across the board, slashing a measly .159/.283/.511. Kingerys defense was equally as suspect, as he actually finished with a negative defensive WAR on the year (-0.4).

It was a brutal 2020 campaign for the young infielder/outfielder, one that was constantly riddled with nagging injuries and bouts of inconsistencies. Anytime it looked like he was finally starting to find a rhythm, hed immediately fall back into a slump highlighted by lots of strikeouts and miscues in the field.

With all that said, theres still little reason to be 100% out on the former second round pick. He had an encouraging season in 2019 (career-high .788 OPS, 2.8 WAR), and hes still one of the better athletes on the Philadelphia Phillies roster. While he might struggle to snag himself an everyday role at second base the position he won a Gold Glove at in the minor leagues theres a possibility he finds himself a new starting gig in the Phillies outfield this season.

With Didi Gregorius now under contract for the next two seasons, the Phillies actually have a bit of a logjam when it comes to their infield. Didi is obviously the teams shortstop, Alec Bohm and Rhys Hoskins should be locking down the corners, and then Jean Segura likely takes second base. While the Phillies could in theory rotate Segura and Kingery at 2B to get them both playing time (like they did in 2020), it might make more sense for Joe Girardi to finally commit to Kingery as a full-time center fielder.

Due to his elite athleticism, Kingery has spent a good amount of time in the outfield throughout his three-year career. Hes logged 636 career innings as an outfielder, with 547 of them coming in center. While hes not been *great* by any stretch of the imagination out in CF, he did post a perfect fielding percentage at the position in 2020, at least showing signs of potential.

While the infield might be a more natural fit for Kingery based on his minor league experience, the Phillies are lacking in outfield depth. Andrew McCutchen is on his last legs, Roman Quinn can be a liability at times, and Adam Haseley has still failed to earn the trust of Girardi as an everyday option himself.

Barring any sort of last minute outfield additions, the Phillies would be wise to at least continue to cross-train Kingery as a second baseman and center fielder. On days where McCutchen needs a rest, lining up Kingery and Haseley as the center and left fielders wouldnt be the worst thing in the world.

While most still share the belief that Kingery needs to get everyday reps at 2B to continue to develop, at some point, playing time starts to become a factor. As long as Segura remains on the roster, itll be tough for Scott to be the full-time starter at second base. If taking over CF means getting daily action in the lineup, its something the Phillies should consider.

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Philadelphia Phillies: Could Scott Kingery end up as the everyday CF? - Section 215

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CF & CFRP Market Report The demand for the Market will drastically increase in the Future Forecast 2025 KSU | The Sentinel Newspaper - KSU | The...

In Episode 71 of the Third Sub Podcast, Alexandre Gangue-Ruzic and Samuel Rowan dive into the latest Vancouver Whitecaps and MLS news from this past week, before finishing off with some more MLS kit chatter.

Welcome back to another episode of the Third Sub Podcast!

In this episode, Alex and Sam are back, as usual, this time to chat all things Vancouver Whitecaps and MLS.

Up first, they catch up on the Whitecaps news of the week, as they look at some of the confirmed transactions that have happened in the past week.

First, they look at a confirmed departure, as David Milinkovics contract was officially terminated this week, before looking at some of the names that signed new deals in the past week, as Andy Rose officially re-signed (and became an assistant coach for the Caps U19 team!), while Caps Super Draft pick David Egbo and longtime USL veteran Evan Newton signed deals to join the team.

After that, they look at how the CBA negotiations have progressed over the last week, giving some thoughts on the multiple extensions of the negotiating deadline by MLS, breaking down what sort of message this whole process has delivered.

To round off the episode, they then tip their hat to Club de Foot Montreal and the incredible work theyve put in behind the scenes to build a sneaky-good team, before devolving into some more MLS kit discussion and speculation.

If you have Twitter, make sure to check out The Third Sub Podcast @thirdsubpod!

The Third Sub can be found on Spotify, Google Play, Apple Podcasts and Anchor. It can also now be found on Breaker, Overcast, Pocket Casts and Radio Public, so if you have any of those platforms installed, you can now find it on them.

(We are no longer uploading to Soundcloud, but you can still find the first two episodes there, if interested.)

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The Third Sub Episode 71: Whitecaps make moves, CF Montreal continue to build, and some other MLS chatter - Between The Sticks

It was not only Filipino superstar Rolando Dy who experienced a fruitful 2020 because even his home promotion garnered noteworthy recognition for its effort to work through the so-called new normal last year.

Staying true to its commitment to deliver top-notch mixed martial arts action to fans around the world, FightBook MMA bestowed the Global Promotion of the Year award on BRAVE Combat Federation for the fourth year in a row.

Its no surprise to me that BRAVE CF won the award. In 2020, theyre one of the few promotions in the world that dared to take the first step and brought hope to fighters like me who were exploring different means to survive during the pandemic. Thats truly commendable, Dy said.

Founded by His Highness Shaikh Khaled bin Hamad Al Khalifa in 2016, the organization overcame an array of challenges caused by the global health crisis in 2020, finding a way to hold a total of 12 live events in countries such as Slovenia, Romania, Sweden, and Bahrain.

Looking back at 2020, Bahrain turned into an isolated fight hub dubbed as Kombat Kingdom to host five of the promotions 12 shows.

Moreover, BRAVE CF came to the rescue of the struggling European MMA scene by staging six cards in six weeks behind closed doors.

The year 2020 also witnessed the coronation of new world champions such as Amin Ayoub at lightweight and Mohammad Fakhreddine at middleweight.

Meanwhile, new contenders emerged through the pandemic-raged year with the likes of Dy, Muhammad Mokaev, Mochamed Machaev, and Benoit Saint Denis establishing themselves in their respective divisions.

The Bahrain-based MMA outfit paved the way for Dys career resurgence. He had a sensational 2020 that saw him clinch the prestigious BRAVE CF Fighter of the Year trophy with two remarkable victories as a lightweight.

Most recently, it was announced that Dy signed a brand new multi-fight contract with BRAVE CF.

They treat fighters with respect, and thats very important to us. I am grateful to be part of this promotion and for the opportunity they gave me last year, he stated.

They can count on me that I will represent the promotion to the best of my ability.

BRAVE CF 46 in Sochi, Russia was the companys curtain-raiser this year, featuring Eldar Eldarov who successfully defended his super lightweight title against Leonardo Mafra in the headliner.

The promotion is expected to announce its next event in the coming weeks.

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Rolando Dy attests to BRAVE CF's recognition as top global organization - Tiebreaker Times