{"id":50715,"date":"2014-12-29T16:42:31","date_gmt":"2014-12-29T21:42:31","guid":{"rendered":"http:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/disease-burden-and-patient-reported-outcomes-among-patients-with-moderate-to-severe-psoriasis-an-ethnography-study\/"},"modified":"2014-12-29T16:42:31","modified_gmt":"2014-12-29T21:42:31","slug":"disease-burden-and-patient-reported-outcomes-among-patients-with-moderate-to-severe-psoriasis-an-ethnography-study","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/psoriasis\/disease-burden-and-patient-reported-outcomes-among-patients-with-moderate-to-severe-psoriasis-an-ethnography-study\/","title":{"rendered":"Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: an ethnography study &#8230;"},"content":{"rendered":"<p><p>      (PRWEB) December 30, 2014    <\/p>\n<p>      Psoriasis:      Targets and Therapy has published the original research      Disease burden      and patient reported outcomes among patients with moderate to      severe psoriasis: An ethnography study.    <\/p>\n<p>      As corresponding author Mr Siva Narayanan says Our      ethnography study is one of the first of its kind in the      Psoriasis arena to uncover and describe subtle or less      well-defined HRQoL concepts and highlight the voice of the      patient and their perception of their disease. As such, we      were able to highlight the issues such as patients      self-isolation, relationships with their partner and family,      self-consciousness and anxiety, and the extensive planning      and daily routines that are required to cope with everyday      life and avoid uncomfortable social situations. We also      exposed cultural differences in this study, including      differing expression of emotional impacts and      (un)willingness\/(in)ability to discuss psoriasis with others,      which contributes to severe psychosocial burden.    <\/p>\n<p>      Mr Narayanan continues We believe that the findings from our      study could aid families, care givers and healthcare      providers alike in recognizing the psoriasis disease burden      (from patient perspective) and accordingly suggest coping      techniques to improve patient HRQoL. Further, our results      could inform development and\/or refining of PRO instruments      in psoriasis.    <\/p>\n<p>      As Dr Uwe Wollina, Editor-in-Chief, explains There are very      few investigations on psoriasis available. This paper tries      to bridge this gap of knowledge.    <\/p>\n<p>      Psoriasis:      Targets and Therapy is an international, peer-reviewed,      open access journal focusing on psoriasis, nail psoriasis,      psoriatic arthritis and related conditions, identification of      therapeutic targets and the optimal use of integrated      treatment interventions to achieve improved outcomes and      quality of life.    <\/p>\n<p>      Dove Medical      Press Ltd is a privately held company specializing in the      publication of Open Access peer-reviewed journals across the      broad spectrum of science, technology and especially      medicine.    <\/p>\n<p><!-- Auto Generated --><\/p>\n<p>Read the original post:<br \/>\n<a target=\"_blank\" href=\"http:\/\/www.prweb.com\/releases\/2014\/12\/prweb12416461.htm\/RK=0\/RS=LdAt8I6QXfAoh6V6S67SPsO5pXc-\" title=\"Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: an ethnography study ...\">Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: an ethnography study ...<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> (PRWEB) December 30, 2014 Psoriasis: Targets and Therapy has published the original research Disease burden and patient reported outcomes among patients with moderate to severe psoriasis: An ethnography study. As corresponding author Mr Siva Narayanan says Our ethnography study is one of the first of its kind in the Psoriasis arena to uncover and describe subtle or less well-defined HRQoL concepts and highlight the voice of the patient and their perception of their disease.  <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/psoriasis\/disease-burden-and-patient-reported-outcomes-among-patients-with-moderate-to-severe-psoriasis-an-ethnography-study\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[22],"tags":[],"class_list":["post-50715","post","type-post","status-publish","format-standard","hentry","category-psoriasis"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/50715"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=50715"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/50715\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=50715"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=50715"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=50715"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}