{"id":4613,"date":"2012-11-09T11:42:35","date_gmt":"2012-11-09T11:42:35","guid":{"rendered":"http:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/new-survey-results-from-the-psoriasis-association-reveal-that-significant-improvements-are-still-needed-in-the-care-of\/"},"modified":"2012-11-09T11:42:35","modified_gmt":"2012-11-09T11:42:35","slug":"new-survey-results-from-the-psoriasis-association-reveal-that-significant-improvements-are-still-needed-in-the-care-of","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/psoriasis\/new-survey-results-from-the-psoriasis-association-reveal-that-significant-improvements-are-still-needed-in-the-care-of\/","title":{"rendered":"New Survey Results from The Psoriasis Association Reveal that Significant Improvements Are Still Needed in the Care of &#8230;"},"content":{"rendered":"<p><p>    NORTHAMPTON, England, November 8, 2012 \/PRNewswire\/ --  <\/p>\n<p>    New results from a recent survey by The Psoriasis Association    reveal that despite progress in the number of patients having    their psoriasis severity level assessed, there is still a high    level of patient dissatisfaction with treatment, suggesting    that these assessments may not be translated into therapy    changes where appropriate. Despite an increase in awareness of    psoriasis severity measurement, this latest survey also showed    that more than half of patients were very dissatisfied with the    treatment they were receiving, and over two thirds stated that    their doctor or nurse had not discussed any treatment to help    improve their quality of life    (QoL).[1]  <\/p>\n<p>    The 'Know your PASI' follow-up survey, which was supported by    Janssen, has revealed that patient awareness of Psoriasis Area    and Severity Index (PASI) assessments has increased since the    first survey in 2011. In fact, the percentage of patients aware    of the PASI measurement has nearly trebled to 59%. It is    surprising, however, that only 32% of patients have had this    important disease severity measurement taken by their doctor.    In addition, 63% of patients could not recall their psoriasis    severity being measured by any other means, suggesting that    they may not be managed effectively as a    result.[2]  <\/p>\n<p>    Helen McAteer, Chief Executive of The Psoriasis Association,    says \"The survey findings are astonishing and highlight that    there has become a need for patients to be proactive in order    to drive a change in therapy where they feel they are not    receiving the best treatment. We strongly support the need for    this change because we see that psoriasis severity assessments    are not consistently used or translated into changes in    treatment where appropriate.\"  <\/p>\n<p>    These findings show a significant disparity between the    recommendations being made in the latest National Institute for    Health and Clinical Excellence (NICE) guidelines - that    all patients should have their disease severity    regularly assessed through PASI measurements, and their QoL    assessed through the Dermatology Life Quality Index (DLQI), to    ensure that they receive the care and treatment they    require.[3]Further new    findings from the 'Know your PASI' follow-up survey revealed    that patients are not being assessed for other key factors such    as their cardiovascular risk, which worryingly may mean other    conditions and adverse effects of treatment are not being    identified.  <\/p>\n<p>    The government has recognised in a recent framework of care    that enhancing QoL for people with long-term conditions is of    great importance when considering patient    management.[4] The British    Association of Dermatologists (BAD) recommends that everyone    with psoriasis should have the severity of their disease    assessed - taking into consideration where on the body it    appears, how widespread it is and the thickness and redness of    the plaques. The PASI assessment helps patients and doctors    understand the physical severity of the psoriasis and provides    a benchmark which, with on-going checks, shows what    improvements treatment is making, or crucially, if the    treatment is not having the required effect.  <\/p>\n<p>    Helen McAteer concludes \"Based on the new survey findings, The    Psoriasis Association is calling for improved awareness of the    importance of disease severity, and consequently increased    measurement of this in psoriasis patients. We also recommend    that to facilitate improved QoL, patients need to proactively    request information on different treatments they may eligible    for, as soon as their psoriasis severity is deemed great enough    for a change in therapy. Patients should feel comfortable    speaking up when they are unhappy with their current    treatment.\"  <\/p>\n<p>    Every person who is passionate about the care provided for    patients with psoriasis in the UK is encouraged to sign the    Psoriasis Mandate, an online petition calling for improved    standards of care in the diagnosis and management of psoriasis.    The Psoriasis Association invites signatures to this Mandate,    which can be accessed via     <a href=\"http:\/\/www.psoriasis360.com\/psoriasis-mandate\" rel=\"nofollow\">http:\/\/www.psoriasis360.com\/psoriasis-mandate<\/a> to call for    support for five key rights of people with psoriasis:  <\/p>\n<p>    Estimated to affect up to 1.8 million people in the UK,    psoriasis is a painful and debilitating condition characterised    by red, raised and inflamed patches on the skin and is    classified as being mild, moderate or    severe.[5] As well as being    physically debilitating, psoriasis can have a deep    psychological impact.[6]  <\/p>\n<p>    Notes to Editors  <\/p>\n<\/p>\n<p>See the original post:<br \/>\n<a target=\"_blank\" href=\"http:\/\/finance.yahoo.com\/news\/survey-results-psoriasis-association-reveal-080000168.html;_ylt=A2KLOzIi7JxQU1wAW2D_wgt.\" title=\"New Survey Results from The Psoriasis Association Reveal that Significant Improvements Are Still Needed in the Care of ...\">New Survey Results from The Psoriasis Association Reveal that Significant Improvements Are Still Needed in the Care of ...<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> NORTHAMPTON, England, November 8, 2012 \/PRNewswire\/ -- New results from a recent survey by The Psoriasis Association reveal that despite progress in the number of patients having their psoriasis severity level assessed, there is still a high level of patient dissatisfaction with treatment, suggesting that these assessments may not be translated into therapy changes where appropriate. Despite an increase in awareness of psoriasis severity measurement, this latest survey also showed that more than half of patients were very dissatisfied with the treatment they were receiving, and over two thirds stated that their doctor or nurse had not discussed any treatment to help improve their quality of life (QoL).[1] The 'Know your PASI' follow-up survey, which was supported by Janssen, has revealed that patient awareness of Psoriasis Area and Severity Index (PASI) assessments has increased since the first survey in 2011. In fact, the percentage of patients aware of the PASI measurement has nearly trebled to 59% <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/psoriasis\/new-survey-results-from-the-psoriasis-association-reveal-that-significant-improvements-are-still-needed-in-the-care-of\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[22],"tags":[],"class_list":["post-4613","post","type-post","status-publish","format-standard","hentry","category-psoriasis"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/4613"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=4613"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/4613\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=4613"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=4613"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=4613"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}