{"id":45217,"date":"2014-11-12T08:43:11","date_gmt":"2014-11-12T13:43:11","guid":{"rendered":"http:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/despite-personalized-medicine-potential-distrust-lingers-over-googles-genome-play\/"},"modified":"2014-11-12T08:43:11","modified_gmt":"2014-11-12T13:43:11","slug":"despite-personalized-medicine-potential-distrust-lingers-over-googles-genome-play","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/genome\/despite-personalized-medicine-potential-distrust-lingers-over-googles-genome-play\/","title":{"rendered":"Despite personalized medicine potential, distrust lingers over Googles genome play"},"content":{"rendered":"<p><p>    Googles push into the    genome storage and research market seems like a natural    move to make personalized medicine a mainstream treatment    option. And the price for storing genomic data has plummeted to    a consumer friendly $25 per month. But comments in response to    a     recent article from MIT Technology Review illustrate the    mixed feelings we have about the potential benefits and    potential for abuse these businesses pose.  <\/p>\n<p>    So far 3,500 genomes are stored on Googles servers, according    to the article. David Glazer, the software engineer who led the    development of Google Genome, also led platform engineering for    Google+.  <\/p>\n<p>    Google has developed an interface for its genome business that    lets it move DNA data into its servers and do experiments using    the same database technology that indexes the Web and tracks    billions of Internet users, according to the article. We    saw biologists moving from studying one genome at a time to    studying millions, Glazer told MIT Technology Review. The    opportunity is how to apply breakthroughs in data technology to    help with this transition.  <\/p>\n<p>    Other groups are taking different approaches to storing DNA and    research.     StoreMyTumor holds onto customers tumors that have been    removed in surgery so they can be screened to gain admittance    into clinical trials as well as determining their best cancer    treatment options. Though the global directory of biobank and    tissue bank websites on     Speciman Central illustrates is extensive, most of these    are run by institutes and educational institutions, not    corporations. Some of the comments left on the article suggest    Google has a lot to prove to ease peoples instinct to distrust    what a company will do with this sensitive data.  <\/p>\n<p>    Here are some of the comments:  <\/p>\n<p>      Xomami 1 day ago With extremely low      sequencing costs almost anyone may have access to your      genome. In fact, your full genome is not even necessary. Just      the critical parts detailing the major diseases      susceptibilities (think 23andme profile) are good enough for      a health insurer. After a stay in a hotel, a piece of hair,      some dander, the tiny saliva left on a glass will be enough      for getting a good genetic profile. In fact, it is said the      US president has a DNA cleanup crew everywhere he goes now;      they      pick up bedsheets, pillowcases, glasses, everythingWonder      what he has to hide \ud83d\ude42    <\/p>\n<p>      abraham.samma 2 days ago      Putting aside the assertions made by geoffrey and darrend      below, I think their overall sentiment can be aptly      summarised in one word; distrust. It is a sentiment that      resonates with everyone I think. The genome is about as      personal as you can get wrt to the patients medical profile.      I dare say we need to be more serious about how this kind of      information can be abused and research better ways to ensure      data integrity and security. Atleast, more serious than how      we currently manage other corporate entities like banks.    <\/p>\n<p>      canoeberry 2 days ago      For profit companies and private medical data do not mix      unless there are serious standards put in place, and serious      repercussions if they are violated. And even then Id be      worried with a company like Google, whose business is to sell      as much about us as they know to advertisers. However, I have      NO DOUBT that putting together a bunch of genomes in a      machine learning world could be and will be a revolutionary      way to advance medicine. Incredibly hard to do now but every      year hardware gets better and we could definitely learn a lot      from doing number crunching on large numbers of genomes    <\/p>\n<p>      RJWilton 2 days ago      Dont kid yourselves, people. Theres always a few      visionaries out there touting the potential of aggregating      your personal information. (Gee. Personalized      pop-up advertising. How nice.) But ask      yourselves: wheres the big money in this picture?      Answer: Marketing. (Dear Google, please send us a list      of everybody whose genome says theyre likely to want what      were selling.) Health insurance. (What passes as      a pre-existing condition is nothing compared to what can be      harvested from your genome.) Big pharma. (What do      the genomes tell us about the next big drug?) And      so on.      And, given the frequency with which even the easiest stuff to      protect (think credit card numbers) gets hacked into the dark      Internet, just how eager are you to post your genome      online?      Google ought to be paying us, not the other way around.      And indemnifying us, too, while theyre at it. And Id      still be awfully reluctant    <\/p>\n<p>      mkogrady 2 days ago      @RJWilton If the big picture is marketing, and the results      of targeted marketing means (I hope) cheaper medications for      that specific target audience, then wheres the harm? If a      pharmaceutical company sees the potential to invest a couple      million dollars on a treatment that will be needed by 10      million people, and the end cost is cheaper BECAUSE they know      beforehand what the potential target market is, then I say      thats a good thing.    <\/p>\n<p><!-- Auto Generated --><\/p>\n<p>The rest is here:<br \/>\n<a target=\"_blank\" href=\"http:\/\/medcitynews.com\/2014\/11\/googles-genome-play-fits-comfort-level-personalized-medicine-goal-doubt-lingers\" title=\"Despite personalized medicine potential, distrust lingers over Googles genome play\">Despite personalized medicine potential, distrust lingers over Googles genome play<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> Googles push into the genome storage and research market seems like a natural move to make personalized medicine a mainstream treatment option. And the price for storing genomic data has plummeted to a consumer friendly $25 per month <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/genome\/despite-personalized-medicine-potential-distrust-lingers-over-googles-genome-play\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[25],"tags":[],"class_list":["post-45217","post","type-post","status-publish","format-standard","hentry","category-genome"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/45217"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=45217"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/45217\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=45217"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=45217"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=45217"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}