{"id":202451,"date":"2017-06-29T23:50:16","date_gmt":"2017-06-30T03:50:16","guid":{"rendered":"http:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/girl-has-rare-genetic-disorder-that-makes-her-hair-impossible-to-brush-new-york-post\/"},"modified":"2017-06-29T23:50:16","modified_gmt":"2017-06-30T03:50:16","slug":"girl-has-rare-genetic-disorder-that-makes-her-hair-impossible-to-brush-new-york-post","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/human-genetics\/girl-has-rare-genetic-disorder-that-makes-her-hair-impossible-to-brush-new-york-post\/","title":{"rendered":"Girl has rare genetic disorder that makes her hair impossible to brush &#8211; New York Post"},"content":{"rendered":"<p><p>    A one-year-old girl has permanent bedhead thanks to a genetic    condition that makes her frizzy white locks impossible to    brush.  <\/p>\n<p>    Phoebe Braswell, from Smithfield, North Carolina, is one of an    estimated 100 children worldwide with a documented case of    Uncombable Hair Syndrome.  <\/p>\n<p>    The condition  thought to have been the cause of Albert    Einsteins wild locks  impairs the protein that gives hair its    shape and strength. The hair follicles are also kidney-shaped    instead of round.  <\/p>\n<p>    As a result, Phoebes hair is fine, coarse, bright white,    tangled and constantly static.  <\/p>\n<p>    Luckily for Phoebes mom Jamie Braswell, 27, Phoebes favorite    movie is Trolls and her favorite character has hair just like    hers.  <\/p>\n<p>    You never think that your child is going to have a rare    disorder, but I absolutely love Phoebes hair. Its just    Phoebe, Jamie told SWNS.  <\/p>\n<p>    She loves the Trolls and Poppy is her favorite, with the pink    hair. When Phoebe turns two in three months shes going to have    a Trolls-themed party, the mom of two said, adding shes    nicknamed her youngest daughter Poppy.  <\/p>\n<p>    Unfortunately to others who dont understand the disorder,    Phoebes hair simply looks messy.  <\/p>\n<p>    We were in the grocery store once and a lady said, She is    going to hate you when she looks at her baby photos because you    let her go out in public like that, Jamie recalled.  <\/p>\n<p>    But no matter how many times Jaime brushes Phoebes hair, it    stays frizzy. Hair product doesnt help either.  <\/p>\n<p>    Every morning it is sticking straight up and throughout the    day I try and spray stuff in it to keep it down, but within 30    minutes its spiky again, said Jamie.  <\/p>\n<p>    Thats why Phoebe always has a headband or hair tie in to keep    the fly-aways out of her face.  <\/p>\n<p>    If she didnt have that, people would think I was neglecting    her, lamented Jamie.  <\/p>\n<p>    Jamie first noticed something was different about Phoebe when    strands of straw-like hair started to sprout from her scalp    when she was 3 months old.  <\/p>\n<p>    She took Phoebe to a doctor who said hed never seen any child    with hair like hers before. After spotting an article on    Facebook about Uncombable Hair Syndrome,    Jamie phoned the doctor and got a diagnosis.  <\/p>\n<p>    The syndrome is caused by a mutation to one of three genes     PADI3, TGM3 and TCHH Phoebe will have genetic testing in August    to confirm she has the disorder.  <\/p>\n<p>    In total there are 100 cases reported to date in the world but    there may be many more which have not been reported, Professor    Regina Betz from the Institute for Human Genetics at the    University of Bonn, Germany, said.  <\/p>\n<p>    There is no cure for the condition, though it is reported to    improve with age. Jamie thinks her daughters hair is unique,    but she fears Phoebe might be bullied when she grows old enough    to go to school.  <\/p>\n<p>    I do worry about her going to school because kids can be so    cruel and Phoebe is the most tender-hearted little girl I have    ever known, Jamie said.  <\/p>\n<p>    Its hard for me to anticipate that people might make nasty    comments, but I am going to teach her that we are all different    in every way and it doesnt matter, she added.  <\/p>\n<p>                SWNS              <\/p>\n<p>              Waiting for your baggage can often be a boring              task,...            <\/p>\n<p><!-- Auto Generated --><\/p>\n<p>Here is the original post:<br \/>\n<a target=\"_blank\" href=\"http:\/\/nypost.com\/2017\/06\/28\/girl-has-rare-genetic-disorder-that-makes-her-hair-impossible-to-brush\/\" title=\"Girl has rare genetic disorder that makes her hair impossible to brush - New York Post\">Girl has rare genetic disorder that makes her hair impossible to brush - New York Post<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> A one-year-old girl has permanent bedhead thanks to a genetic condition that makes her frizzy white locks impossible to brush. Phoebe Braswell, from Smithfield, North Carolina, is one of an estimated 100 children worldwide with a documented case of Uncombable Hair Syndrome.  <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/human-genetics\/girl-has-rare-genetic-disorder-that-makes-her-hair-impossible-to-brush-new-york-post\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[27],"tags":[],"class_list":["post-202451","post","type-post","status-publish","format-standard","hentry","category-human-genetics"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/202451"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=202451"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/202451\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=202451"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=202451"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=202451"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}