{"id":187723,"date":"2017-04-13T23:53:45","date_gmt":"2017-04-14T03:53:45","guid":{"rendered":"http:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/leitrim-welcome-for-cf-drugs-leitrim-observer\/"},"modified":"2017-04-13T23:53:45","modified_gmt":"2017-04-14T03:53:45","slug":"leitrim-welcome-for-cf-drugs-leitrim-observer","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/cf\/leitrim-welcome-for-cf-drugs-leitrim-observer\/","title":{"rendered":"Leitrim welcome for CF drugs &#8211; Leitrim Observer"},"content":{"rendered":"<p><p>      Cystic fibrosis patients in Sligo-Leitrim are set to benefit      from a new deal between the Health Service Executive and      pharmaceutical company, Vertex, which will see Orkambi and      Kalydeco made available from next month.    <\/p>\n<p>      The HSE are now working to finalise the contractual terms to      make sure we have the best and most robust deal possible for      CF patients and the healthcare service overall.    <\/p>\n<p>      Sligo-Leitrim TD Tony McLoughlin says that the deal announced      by Minister for Health, Simon Harris is a landmark decision      for CF patients and their families. The HSE and Vertex have      reached an agreement in principle on the commercial terms for      the supply to Irish patients of Orkambi for patients aged 12      years an older and for Kalydeco for patients aged 2 to 5      years and for other treatments and age cohorts following      market authorisation in Europe.    <\/p>\n<p>      This is great news for CF patients here in Sligo-Leitrim. I      know that this has been a particularly difficult time for all      cystic fibrosis patients and their families and hopefully      this announcement gives them some degree of relief and      certainty.    <\/p>\n<p>      I want to thank my Fine Gael colleague, the Minister for      Health, Simon Harris, and the HSE for bringing this deal to      fruition. I know they have been working hard on this deal for      a number of months.\"stu    <\/p>\n<p>      Speaking of the announcement, Minister Harris said, I was      very pleased to be in a position to bring this news to CF      patients and their families this week. I hope that it will      help to finally put people's minds at rest, knowing that the      drugs their family and friends need will be available to them      from the beginning of next month.    <\/p>\n<p><!-- Auto Generated --><\/p>\n<p>See more here:<\/p>\n<p><a target=\"_blank\" rel=\"nofollow\" href=\"http:\/\/www.leitrimobserver.ie\/news\/home\/244906\/leitrim-welcome-for-cf-drugs.html\" title=\"Leitrim welcome for CF drugs - Leitrim Observer\">Leitrim welcome for CF drugs - Leitrim Observer<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> Cystic fibrosis patients in Sligo-Leitrim are set to benefit from a new deal between the Health Service Executive and pharmaceutical company, Vertex, which will see Orkambi and Kalydeco made available from next month. The HSE are now working to finalise the contractual terms to make sure we have the best and most robust deal possible for CF patients and the healthcare service overall. Sligo-Leitrim TD Tony McLoughlin says that the deal announced by Minister for Health, Simon Harris is a landmark decision for CF patients and their families <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/cf\/leitrim-welcome-for-cf-drugs-leitrim-observer\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[187753],"tags":[],"class_list":["post-187723","post","type-post","status-publish","format-standard","hentry","category-cf"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/187723"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=187723"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/187723\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=187723"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=187723"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=187723"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}