{"id":1060389,"date":"2022-02-17T08:14:01","date_gmt":"2022-02-17T13:14:01","guid":{"rendered":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/uncategorized\/my-skin-began-to-swell-and-ooze-so-much-i-woke-up-stuck-to-my-pillowcase-now-my-bones-itch-the-sun\/"},"modified":"2022-02-17T08:14:01","modified_gmt":"2022-02-17T13:14:01","slug":"my-skin-began-to-swell-and-ooze-so-much-i-woke-up-stuck-to-my-pillowcase-now-my-bones-itch-the-sun","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/eczema\/my-skin-began-to-swell-and-ooze-so-much-i-woke-up-stuck-to-my-pillowcase-now-my-bones-itch-the-sun\/","title":{"rendered":"My skin began to swell and ooze so much I woke up stuck to my pillowcase  now my BONES itch&#8230; &#8211; The Sun"},"content":{"rendered":"<p><p>A WOMAN has been ravaged by a severe skin condition that leaves her oozing face stuck to the pillowcase.<\/p>\n<p>Sedi Khumalo said her skin is so itchy that it feels like I need to scratch down to my bones.<\/p>\n<p>4<\/p>\n<p>4<\/p>\n<p>The 28-year-old, from Worsley, Greater Manchester, says she's in constant pain after quitting oral steroids which helped treat her eczema.<\/p>\n<p>She suffers with a condition known as topical steroid withdrawal (TSW), when the skin becomes worse after stopping medication.<\/p>\n<p>TSW has had a devastating effect on Sedis mental health and even triggered thoughts of ending her own life.<\/p>\n<p>Sedi claims she was on medication for over seven years and initially thought the pills were a miracle treatment as they cleared her eczema.<\/p>\n<p>But she found that they made the condition worse over time. The flare-ups became more severe the more she took steroids.<\/p>\n<p>The bank worker decided to go cold turkey on the creams and pills in October 2020.<\/p>\n<p>She was stunned as she noticed her skin began to swell, crack and ooze as a result of the skin desperately needing the medication.<\/p>\n<p>Sedi said: \"Although this might look like eczema, it's not and it's important that people know that.<\/p>\n<p>\"Its addiction to prescription drugs and my body became so dependent on them and now it is learning to heal itself.<\/p>\n<p>\"I'm still trying to get my head around the condition.<\/p>\n<p>\"TSW gives me what is known as a 'bone itch' - my nerves are damaged from the steroids and when I'm itchy it can't be relieved and it feels like I need to scratch down to my bones.\"<\/p>\n<p>At times, the only relief was a scalding hot bath or shower which isn't good for your skin either.<\/p>\n<p>Sedi said she keeps going back to her GP who tries to treat her for eczema.<\/p>\n<p>She said: \"I was told by the GP it was severe eczema but I knew in myself it wasn't - I was quite scared because I thought my health in general was deteriorating.<\/p>\n<p>They didn't realise the thing they were using to treat me was making me ill - it was really frustrating.\"<\/p>\n<p>The National Eczema Association says that TSW is a serious potential side effect of topical steroid use that is not readily recognized by patients and providers.<\/p>\n<p>Much is unknown about TSW, including how many people are affected and how much steroid medication use triggers it.<\/p>\n<p>But it is clear that it occurs mostly with long-term use of the drugs, for example in people who have used creams to keep their eczema at bay since childhood.<\/p>\n<p>Whilst her skin is in recovery mode, Sedi said that she couldn't leave her own home and the condition had a financial and severe mental impact on her daily life.<\/p>\n<p>She added: \"Since I've been in withdrawal, I've had panic attacks and experienced depression which I used to take antidepressants for.<\/p>\n<p>\"I wanted to end my own life and had to call the Samaritans to try to get help to manage the situation.<\/p>\n<p>\"It got so bad that I had to drop out of my studies and stop my part time job which had a financial impact.<\/p>\n<p>\"TSW can also mess with your hormones and cause insomnia - I was waking up several times in the night but I had no idea why. \"<\/p>\n<p>Now, Sedi is feeling slightly better and wants to raise awareness about TSW as she believes it is not a topic that is discussed enough.<\/p>\n<p>She said: \"Some people go through TSW for years - my body is healing from a steroid addiction and it needs to figure out how to heal itself again.\"<\/p>\n<p>4<\/p>\n<p>4<\/p>\n<p><!-- Auto Generated --><\/p>\n<p>Go here to see the original:<br \/>\n<a target=\"_blank\" href=\"https:\/\/www.the-sun.com\/health\/4699106\/my-skin-oozed-stuck-pillowcase-bones-itch-eczema\/\" title=\"My skin began to swell and ooze so much I woke up stuck to my pillowcase  now my BONES itch... - The Sun\" rel=\"noopener\">My skin began to swell and ooze so much I woke up stuck to my pillowcase  now my BONES itch... - The Sun<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> A WOMAN has been ravaged by a severe skin condition that leaves her oozing face stuck to the pillowcase.  <a href=\"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/transhuman-news-blog\/eczema\/my-skin-began-to-swell-and-ooze-so-much-i-woke-up-stuck-to-my-pillowcase-now-my-bones-itch-the-sun\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":9,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[23],"tags":[],"class_list":["post-1060389","post","type-post","status-publish","format-standard","hentry","category-eczema"],"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/1060389"}],"collection":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/comments?post=1060389"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/posts\/1060389\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/media?parent=1060389"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/categories?post=1060389"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/prometheism-transhumanism-posthumanism\/wp-json\/wp\/v2\/tags?post=1060389"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}