This article was originally published here<\/p>\n
J Cyst Fibros. 2021 Mar 25:S1569-1993(21)00058-8. doi: 10.1016\/j.jcf.2021.03.009. Online ahead of print.<\/p>\n
ABSTRACT<\/p>\n
BACKGROUND: Cystic Fibrosis (CF) is a chronic multi-system disease best cared for at Care centers with routine monitoring by interdisciplinary teams. Previously, remote home monitoring technology has been explored to augment in-person care. During the COVID-19 pandemic, traditional in-person care was limited and CF centers rapidly adapted to a telehealth delivery model. The purpose of this study was to understand how people with CF (PwCF) and families of PwCF experienced the shift to telehealthcare delivery.<\/p>\n
METHODS: This was a cross-sectional survey-based study conducted in 11 CF Centers. Two surveys were designed (one for adult PwCF and one for parents\/guardians of PwCF) by participating CF center members with patient and family partner input. Surveys were disseminated electronically via email\/text to all patients who completed a telehealth visit, and data were collected on secure Google Forms.<\/p>\n
RESULTS: Respondents rated their telehealth experiences as positive. Most were highly satisfied with their telehealth visit (77% adult, 72% pediatric) and found the visits to be highly convenient (85% for all surveyed). A majority of patients reported they had adequate time during the visit and had all questions and concerns addressed. Importantly, we also identified concerns regarding lack of in-person assessments including pulmonary function testing (PFT) and throat\/sputum culture.<\/p>\n
CONCLUSION: Telehealth was a feasible and well-accepted mechanism for delivering care in a chronic CF care model during the COVID-19 pandemic and may be useful in the post-pandemic era. Further work is needed to understand the impact of telehealth on patient outcomes, healthcare utilization and associated cost.<\/p>\n
PMID:33775604 | DOI:10.1016\/j.jcf.2021.03.009<\/p>\n
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Patient and family perceptions of telehealth as part of the cystic fibrosis care model during COVID-19 - DocWire News<\/a><\/p>\n","protected":false},"excerpt":{"rendered":" This article was originally published here J Cyst Fibros. Continue reading