{"id":54000,"date":"2012-10-11T14:25:43","date_gmt":"2012-10-11T14:25:43","guid":{"rendered":"http:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/uncategorized\/citing-privacy-concerns-u-s-panel-urges-end-to-secret-dna-testing.php"},"modified":"2012-10-11T14:25:43","modified_gmt":"2012-10-11T14:25:43","slug":"citing-privacy-concerns-u-s-panel-urges-end-to-secret-dna-testing","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/genetic-medicine\/citing-privacy-concerns-u-s-panel-urges-end-to-secret-dna-testing.php","title":{"rendered":"Citing privacy concerns, U.S. panel urges end to secret DNA testing"},"content":{"rendered":"<p><p>NEW YORK (Reuters) - They're called discreet DNA samples, and the  Elk Grove, California, genetic-testing company easyDNA says it  can handle many kinds, from toothpicks to tampons.  <\/p>\n<p>    Blood stains from bandages and tampons? Ship them in a paper    envelope for paternity, ancestry or health testing. EasyDNA    also welcomes cigarette butts (two to four), dental floss (\"do    not touch the floss with your fingers\"), razor clippings, gum,    toothpicks, licked stamps and used tissues if the more standard    cheek swab or tube of saliva isn't obtainable.  <\/p>\n<p>    On Thursday it released a report on privacy concerns triggered    by the advent of whole genome sequencing, determining someone's    complete DNA make-up. Although sequencing \"holds enormous    promise for human health and medicine,\" commission chairwoman    Amy Gutmann told reporters on Wednesday, there is a \"potential    for misuse of this very personal data.\"  <\/p>\n<p>    \"In many states someone can pick up your discarded coffee cup    and send it for (DNA) testing,\" said Gutmann, who is the    president of the University of Pennsylvania.  <\/p>\n<p>    \"It's not a fantasy to think about how, without baseline    privacy protection, people could use this in a way that would    be really detrimental,\" such as by denying someone with a gene    that raises their risk of Alzheimer's disease long-term care    insurance, or to jack up life insurance premiums for someone    with an elevated genetic risk of a deadly cancer that strikes    people in middle age.  <\/p>\n<p>    \"Those who are willing to share some of the most intimate    information about themselves for the sake of medical progress    should be assured appropriate confidentiality, for example,    about any discovered genetic variations that link to increased    likelihood of certain diseases, such as Alzheimer's, diabetes,    heart disease and schizophrenia,\" Gutmann said.  <\/p>\n<p>    The commission took on the issue because whole genome    sequencing is poised to become part of mainstream medical care,    especially by personalizing medical treatments based on a    patient's DNA.  <\/p>\n<p>    $1,000 GENOME  <\/p>\n<p>    That has been driven in large part by dramatic cost reductions,    from $2.5 billion per genome in the Human Genome Project of the    1990s and early 2000s to $1,000 soon. Several companies,    including Illumina Inc. and Life Technology's Ion Torrent    division, sell machines that can sequence a genome for a few    hundred dollars, but that does not include the analysis to    figure out what the string of 3 billion DNA \"letters\" means.  <\/p>\n<p>    A three-year-old federal law prohibits discrimination in    employment or health insurance based on someone's genetic    information but does not address other potential misuses of the    data. Without such privacy protection, said Gutmann, people may    be reluctant to participate in genetic studies that do whole    genome sequencing, for fear their genetic data will not be    secure and could be used against them.  <\/p>\n<\/p>\n<p>Follow this link: <\/p>\n<p><a target=\"_blank\" href=\"http:\/\/chicagotribune.feedsportal.com\/c\/34253\/f\/622812\/s\/24597a3f\/l\/0L0Schicagotribune0N0Cnews0Cnationworld0Csns0Ert0Eus0Eusa0Egeneticprivacybre89a0A6h0E20A1210A10A0H0A0H35445590Bstory0Dtrack0Frss\/story01.htm\" title=\"Citing privacy concerns, U.S. panel urges end to secret DNA testing\">Citing privacy concerns, U.S. panel urges end to secret DNA testing<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p> NEW YORK (Reuters) - They're called discreet DNA samples, and the Elk Grove, California, genetic-testing company easyDNA says it can handle many kinds, from toothpicks to tampons.  <a href=\"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/genetic-medicine\/citing-privacy-concerns-u-s-panel-urges-end-to-secret-dna-testing.php\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"limit_modified_date":"","last_modified_date":"","_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[5],"tags":[],"class_list":["post-54000","post","type-post","status-publish","format-standard","hentry","category-genetic-medicine"],"modified_by":null,"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts\/54000"}],"collection":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/comments?post=54000"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts\/54000\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/media?parent=54000"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/categories?post=54000"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/tags?post=54000"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}