{"id":1063386,"date":"2012-12-02T07:49:21","date_gmt":"2012-12-02T07:49:21","guid":{"rendered":"http:\/\/www.longevitymedicine.tv\/diane-winokur-veteran-als-patient-advocate-named-to-california-stem-cell-agency-board\/"},"modified":"2024-08-17T20:29:10","modified_gmt":"2024-08-18T00:29:10","slug":"diane-winokur-veteran-als-patient-advocate-named-to-california-stem-cell-agency-board-2","status":"publish","type":"post","link":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/stem-cell-therapy\/diane-winokur-veteran-als-patient-advocate-named-to-california-stem-cell-agency-board-2.php","title":{"rendered":"Diane Winokur, Veteran ALS Patient Advocate, Named to California Stem Cell Agency Board"},"content":{"rendered":"

<\/a>
<\/a><\/p>

Longtime ALS patient advocate Diane
Winokur<\/b> of San Francisco, who has lost two sons to the disease, has
been appointed to the governing board of the $3 billion California
stem cell agency.<\/p>

<\/div>
She fills the vacancy left by David
Serrano Sewell<\/b>, who resigned from the 29-member panel<\/a> earlier this
year after serving since the agency's inception. CIRM has 10 patient advocates
on its board.<\/div>
<\/div>
<\/a><\/td><\/tr>
Diane Winokur
Photo -- Legal Momentum<\/td><\/tr><\/tbody><\/table>
Winokur is well-known in ALS circles.
She sat for five years on the governing board of the national ALS
advocacy group and currently serves on the board for the California
state group, the Golden West<\/b> chapter. She also served for six years on the board of
trustees for the Sanford- Burnham Institute<\/b> in La Jolla, which has received $37 million<\/a> from the stem cell agency. She left Sanford in 2011.<\/div>
<\/div>
Last summer Winokur appeared before the
CIRM board to successfully seek approval of an $18 million ALS grant
that was rejected by the agency's reviewers. Researcher Clive
Svendsen<\/b> of Cedars-Sinai<\/b> in Los Angeles appealed the denial to the
full board and was supported in emotional testimony by other patient
advocates as well, including persons with the affliction.(See here for video<\/a> of some of the testimony.)<\/div>
The agency has awarded about $30.6
million, including the Svendsen grant, for research directly related
to ALS.<\/div>
<\/div>
<\/a>Golden
West issued a press release <\/a>Nov. 21, lauding the Winokur appointment
by California Lt. Gov. Gavin Newsom.<\/b> The release quoted Lucie Bruijn<\/b>,
chief scientist of The ALS Association<\/b>, as saying,<\/div>

\"Her
contributions have been invaluable and she will be a tremendous asset
in moving the ALS research field forward through CIRM
funding.\"<\/p><\/blockquote>

The stem cell agency posted a blog item<\/a>
on Winokur's appointment in addition to a press release.<\/a> CIRM
Chairman J.T. Thomas<\/b> said,<\/div>

“Her knowledge, expertise and
leadership will be a tremendous addition to the ICOC (the stem cell
agency governing board) and help guide us in our work.”<\/p><\/blockquote>

Patient advocate Don Reed<\/b> of Fremont,
Ca., described Winokur in a 2008 blog item<\/a> as “small, elegant, full
of energy, an exclamation point of a person.”

(Editor's note: Based on information from CIRM and Golden West, an earlier version of this item incorrectly stated that Winokur is a current member of the Sanford-Burnham board.<\/p><\/div>

\"\"<\/div>

Source:
http:\/\/feedproxy.google.com\/~r\/blogspot\/uqpFc\/~3\/dITcyP7WJbs\/diane-winokur-veteran-als-patient.html<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Longtime ALS patient advocate DianeWinokur of San Francisco, who has lost two sons to the disease, hasbeen appointed to the governing board of the $3 billion Californiastem cell agency.She fills the vacancy left by DavidSerrano Sewell, who resigned from the … Continue reading →<\/span><\/a><\/p>\n","protected":false},"author":64,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"limit_modified_date":"","last_modified_date":"","_lmt_disableupdate":"","_lmt_disable":"","footnotes":""},"categories":[25,1246878],"tags":[],"class_list":["post-1063386","post","type-post","status-publish","format-standard","hentry","category-stem-cell-therapy","category-stem-cells"],"modified_by":null,"_links":{"self":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts\/1063386"}],"collection":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/users\/64"}],"replies":[{"embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/comments?post=1063386"}],"version-history":[{"count":0,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/posts\/1063386\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/media?parent=1063386"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/categories?post=1063386"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.euvolution.com\/futurist-transhuman-news-blog\/wp-json\/wp\/v2\/tags?post=1063386"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}