Genetic privacy: Who should know what your tests reveal?

Listen Story audio 37min 24sec Susan Wolf: Professor of law, medicine and public policy at the University of Minnesota Robert Green: Medical geneticist at Harvard Medical School and Brigham & Women's Hospital

Genetic tests are giving patients unprecedented insights into conditions that they could inherit, but should this information be made available to other family members who might also be susceptible?

On The Daily Circuit, we discuss the tension between awareness and privacy in genetic testing.

Susan Wolf, professor of law, medicine and public policy at the University of Minnesota joins the discussion along with Dr. Robert Green, a medical geneticist at Harvard Medical School.

From Science Friday:

That's even true when information can be vital for for the health of family members. "Let's say a researcher is doing a genetic study ... and they discover that their participant has a variant of the BRCA gene, associated with higher risk of breast and ovarian cancer," says Susan M. Wolf, the McKnight Presidential Professor of Law, Medicine and Public Policy at the University of Minnesota. "They go to that person and say, 'We think it's important for you to know this, but we're also concerned about your sister, or your brother, and other members of your family.'"

Do you think your genetic information is private? Does that change when a serious and inheritable disease turns up? Leave your comments below.

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Genetic privacy: Who should know what your tests reveal?

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